Topic: Appalling, Shocking Statement made by a primary care doc! Unbelievable!
Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
You will not believe the gall, the utmost epitomy of an axis of evil. I helped a local person find a LLMD in another state. This person had been seeing a PCP after having symptoms for nearly a year, you know, sent to different docs, told nothing, getting worse and worse, finally bedridden.
So they go to the LLMD I referred to,and it was a Godsend. He had them stay overnight, he gave him several shots. Very caring LLMD, I might add. Guy has been in treatment about 4 weeks now, herxing, you know the deal. Tonight I get this message from his wife:
"Hey Trickey ticky, ***** was telling us that you go to Dr.Blank in Blanktown for your primary care doc. Do you happen to know his first name and phone number? My hubby's family doctor will no longer see him cause he don't believe in Dr.****llmd and his way of treating my hubby. He said the only way he would continue seeing my hubby is if he would stop going to Dr. ****llmd and go to B***** Hospital. That is not going to happen!!!! We love Dr.*****llmd and really feel he is going to get hubby better."
I was literally shaking I was so mad. I'm trying to find out who the doc was so I can earmark him as an enemy (not publicly, but privately). It is shocking and appalling. This is clearly bias and Ignorance with a capitol 'I'.
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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posted
Tricky, I am so sorry. I just posted here last week about a family doc/friend who we've known all the way back to med school. She's treated me and fam for over 10 yrs.
She knows I'm disabled(at 34) and has sent me through the whole system for a couple years trying to find out what was wrong with me to no avail.
I finally went to an LLMD, found out I have Lyme & co's, and took the results back to her. She literally looked and talked to me like she never had seen me before and said she could no longer see me.
It hurt sooooo bad. Our behavior didn't cause this illness yet we are treated worse than drug addicts. UGH.
Posts: 184 | From taking pills | Registered: Oct 2011
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posted
It's very political - many of us lose our primary care docs over this and have to find another one who will be sympathetic - I now have one I like, but I had to go through four to find my current one.
And I'm not quiet with the docs - I tell them I know what's going on.
I scared one doc when he learned that walking someone's dog was a risk, since pets can pick up ticks and we have some actual cases here of people being infected that way. That's the first time I saw concern in a doctor's eyes.
Posts: 13116 | From San Francisco | Registered: May 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
So sorry you and your contact had this experience. Unfortunately, it is all too familiar.
I can't say what I am thinking about their treatment of you all, or lack of it, because my mouth would be filled quickly with a bar of soap for using that kind of language!
I will say if we could expose the idiots who do this, perhaps others won't have the same bad experience. I would hope you'd have her (the lady that contacted you) let all her neighbors know about that local doc.
There is no reason for you all to keep quiet about POOR medical care and ignorance like that.
Shout it out!!!! Don't let others keep contributing to the idiots country club fees at your expense.
Maybe when the toads start feeling their lilly pads sinking, they will wise up and act more like a human than a clone of a monster and donkey combined.
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
One more comment. Yes, one more... then I'll leave you alone! HA!
NORMALLY, when a doc says something that all fired STUPID and uncaring, it means he has really messed up someone's life by misdiagnosing them, and he knows it.
He then feels threatened and acts like a jerk to try to compensate for his screw up, and this can happen simply when someone even mentions the word Lyme.
The more ignorant they act and the more stupid junk they say (or scream), the more lives they know they have messed up.
At least that is what I've seen in the past- the worst ones squeal (like a pig) the loudest.
posted
[QUOTE]Originally posted by Tincup: [QB] Oh, and as for Robin4593757693....
When she says she tells the docs what is going on.... my bet is she SINGS it, or says it in rhymes that she is so good in making up!
This is what I sang to the fourth primary noncare doc I fired:
Brotha brought a tick, you nut, He brought it home, a crime, His sista had another, She paid dearly for her Lyme.
She got her Lyme, almost croak, you nut, She tanked then belly up, She got her Lyme, almost croak, you nut, Called the docta, broken up, and said,
"Docta, ain't there nothin' I can take?" She said, "Docta, to relieve this body ache?" We said, "Docta, ain't there nothing she can take?" We said, "Docta?!"
"Now let me set you straight: You think there's Lyme in the folk, you nut? You make it all up. You think there's Lyme in the folk, you nut? You think it all up! If there's Lyme in you folk, you nut, Your shrink you call up! You think there's Lyme in you folk? You nut! You're such a silly woman! Think there's Lyme in you folk, you nut! You think too much together! Think there's Lyme in you folk? You nut: Don't think there's Lyme in the folk, you nut - Then you'll feel better. I put down Lyme as a joke, you nut, I tink it not around. I put down Lyme as a joke, you nut, Don't call me in the morning..."
Posts: 13116 | From San Francisco | Registered: May 2006
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Carol in PA
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Member # 5338
posted
Very good, Carol - I couldn't stop laughing!
Posts: 13116 | From San Francisco | Registered: May 2006
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
ADDENDUM: The good doctor also told him that, get this,........
".....if this was just Lyme, hubby wouldn't be so sick...."
Now that takes the taco!!!!
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
I'm very disappointed in this doctor. I'd just had a conversation with my best friend about him and she was telling me that he would be easily approachable, as she had gone to him for years. Well, now I know.
It almost sounds like blackmail.
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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posted
We have been "dropped" by three PCP in the last 5 years. It stinks. Weren't even in treatment during some of them. Just mention the L word and it was all over.
In spite of the fact his is disabled from it! Duh! Frustrating and perplexing given how prevalant it is in our area of the country.
Sorry to hear it keeps happening.
Posts: 252 | From USA | Registered: Sep 2003
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
I went to a doctor for about ten years and I really liked her. She was so easy to talk with and I recommended her to many people.
Since my daughter's diagnosis, she has acted very cold to both of us. I have quit going to her. I just think it's so sad. I really thought she cared about her patients, but I was wrong!
We have finally found someone who I THINK is going to be understanding. If not, I will keep looking until I find "the one."
Maybe at some point doctors will figure out that we are not just the patient, we are the customer too. We need to hit them where it hurts....the wallet!
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
they (primarys) are beign threatened and are scared
they have families too
i really appreciate it when i find one who is not scared of my lyme...but i understand the others
its wrong...they took an oath to help us...but if someone is threatenting their livlihood and they have children etc...i can understand it
it sbetter ot have them drop you than to have them tell you you are stupid or mentally ill
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Yep. The PCP that had seen me for my entire life, and seen my parents and grandparents before I was born. When I got really sick, and started having weird symptoms, he just gave up on me. Then, when I finally mentioned Lyme disease, he laughed me out of the office (literally), and suggested he should start a betting pool (on the results of my blood test).
I was 18. I'd had episodes of extreme disorientation , horrible brain fog, anxiety, not to mention the fatigue and pain it had started with. Thank goodness my Mom went with me, because I was so hysterical I couldn't drive myself home after that.
Posts: 503 | From Alberta, Canada | Registered: Jun 2009
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
I was lucky. I found a local doc who was willing to order the blood test I requested (CD57 from Lapbcorp). Of course , he had never heard of it, but he said "....I'm willing to do the test and find out more about it." He even requested my records from my LLMD, just so he would have them because he knew I was concerned I might possibly be having a relapse.
He's not afraid, he just doesn't know what to do for it. He's conferred with the 2 major LLMD's that everyone from around here goes to and read the book (about CFS) of one of them. How cool is that? Yes, some are willing to look outside the box, thank God.
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
I am one of the few that is CDC positive. A fairly enlightened urgent care doc ran the test and when I went to my PCP with it, he didn't believe it and ran another. That one was positive as well, and so he declared them both "false positives." Then he warned me about all the crazy people on the internet who are convinced they have Lyme but it is really all in their heads and they are actually sick because of the drugs they are taking. The worst part was the animosity in his voice towards the "sick people on the internet" whom traditional medicine has failed. Absolutely no compassion for the sick, who he is supposed to be healing, just derision and dismissiveness. Appalling.
So, I clearly don't go there anymore. I have however been pleasantly surprised by both my dentist and allergist. Both said they have seen lots of people with chronic Lyme and both were very compassionate. Although my allergist freaked me out a little. He said that as a doctor that the only two diseases that scare him are Alzheimers and Lyme.
Posts: 1737 | From Virginia | Registered: Aug 2011
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
This is just so sad...........
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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posted
You're right - and it's politics - so we're suggesting everyone learn what's going on so we can all be prepared to advocate for our collective needs -
There are many sites that educate. I particularly like www.LymeDisease.org - some excellent blogging there -
Posts: 13116 | From San Francisco | Registered: May 2006
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jackie51
Frequent Contributor (1K+ posts)
Member # 14233
posted
I just don't understand the why behind it all. Doctors weren't like this with AIDS. It is all so shocking. I've seen it firsthand myself and I really don't understand.
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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jackie51
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Member # 14233
posted
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Well, daughter and I are about 6 months into Lyme treatment with LLMD.
We switched insurance, last week 2 appts. with new primary care docs for her and I.
While I knew going in it would be hard, it is very difficult not to take it personally, because it is all over their faces that I am the crazy lady.
I wasn't asking them for Lyme treatment, either.
Sorry for these stories- wow.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
jackie51:
The reason that the docs didn't behave this way about AIDS, is because the media was on top of the AIDS thing from the onset. They HAD to address it...there was no proof that somebody "dropped the ball" and released this deadly virus into this country. It's all about media coverage.
It [AIDS] was an "acceptable" and reportable story for that reason. The Lyme controversy has not taken center stage. There has been some spotty coverage, but they only report once, then it's forgotten. They won't jump in with both feet on our dilemma.
Maybe they are sleeping with the IDSA, who the heck knows? Perhaps daily protesters in from of the offices of CBS, ABC and NBC would enlighten them. But who has the $$$ and time available to stand for endless hours? Most are too sick.
Occupy Wall street did it, though not exactly orderly. We have to get them to take us seriously.
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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posted
That's it, Tricky - we have to go occupy their headquarters! OccupyLymeSpring anyone?
Posts: 13116 | From San Francisco | Registered: May 2006
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Occupy the IDSA headquarters!!!
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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posted
Affinity groups can come dressed as ticks, spirochetes and other bacteria, protozoa, etc!
Posts: 13116 | From San Francisco | Registered: May 2006
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
doesn't surprise me at all. i don't metnion lyme to my gp at all. i know it impacts my treatment of other ailments but i can't help it.
i truly believe there is a medical conspiracy to not treat lyme.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
As to why the docs do this, I think TinCup nailed it. Of course there is a lot of ignorance, and then they are afraid to even entertain the thought that they might be wrong, because that would mean facing all the mistakes they have made over the years.
Has anyone ever sued - or brought a complaint against - any of the IDSA docs? The one I went to told me to stop taking my meds because it had been four weeks, even though I was clearly very, very sick and far from cured.
Posts: 1737 | From Virginia | Registered: Aug 2011
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
my llmd was sued but it was a disgruntled husband who did not believe in his wife getting treatment. The doctor went out of business
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
I've had 2 pcps since lyme. The 1st was concerned and ran tests and when I came from my llmd with orders for IV Rocephin, she kind of looked funny but she did go ahead and order a port to be put in and had to "rewrite" the orders for Rocephin for insurance to pay. After I was still sick following that, she gave up. The only thing she "found" was my low b-12, so she attributed all my neuro sx to that. Sent me to specialists. End of story. Very cold after. All the specialists ever did was laugh, or scream or deny. One gastro doc I just wanted to send back my test results to, SO bad. He was always very nice and polite to me and my friend who saw him. Once I mentioned "L" to him he went biserk.
Started yelling and told me, "NO, you do not have lyme, or have you ever had it!". You have IBS, and you can stop taking the b-12 as you are not anemic. Well, I was, and stopping that b-12 damaged my peripheral nerves, as stated by a neurologist.
I digress. The 2nd pcp I had, and have, is a nurse practioner. He is understanding and has stayed with me through all this. He just admits that he doesn't know what to do for me. He helps when he can, but doesn't treat lyme, because he doesn't know what to do. He gives me referrals and has been appauled by what some of them have done and how they've treated me.
But, it seems that when I go in now he just spends very little time in with me and only to just "fix" what's bothering me symptomatically. He was very kind in writing abx rx's for me in between llmd trips a few times. He did all the paperwork for my disability stuff as well.
I think I'm going to try a new pcp, just because now that I'm no longer able to travel to llmd, I just need someone who will monitor me, and do some bloodwork, and maybe write a rx or two once in awhile. I am going to try a doc my friend likes who is 50 miles away. We'll see, she may throw me out 1st visit..who knows.
My llmd just shook his head when I told him all the things these docs had told me. He said that I have such a "classic" case of lyme it should be obvious to any doctor anywhere that's what my problem is. Blood tests are +, and MRI's with lesions, etc.. He couldn't believe no one here would even consider the possibility.
Anyway, I can feel your pain, all who post here. It's a very real problem.
-------------------- One day at a time Posts: 409 | From TX | Registered: Mar 2004
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posted
This is a good thread - we usually discuss the LLMD situation, but the primary care situation is just as bad. I think all the doctors are under orders not to treat.
Posts: 13116 | From San Francisco | Registered: May 2006
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