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This topic has been moved to Medical Questions.     next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » General Support » New to lymes disease and need help.

   
Author Topic: New to lymes disease and need help.
catina
Member
Member # 35873

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Hello,First off I want to apologize for all the typos I am right handed and have a cast on due to a broken wrist, so I cant type well.
I recently was diagnosed with Lyme.Up until Oct I biked 10-12 miles a day. And hiked ,walked and was active.
A couple of months ago I started to experience a lot of different symptoms of which I didn't understand.I woke up one day and could not bend, I thought my siatic nerve in my back was out.
In Nov of 2011 I fell down a flight of stairs due to chronic back pain which I never experienced before. then I got a little better and one day I woke up and it was in my neck.I felt like I slept on my neck wrong. It only got worse. There was all this different tingling from my fingers and it truly felt like a pinched nerve.
I had been experiencing a tingling sensation in my hands and a cold feeling that radiates from my shoulder down to my wrist.
by the end of the week this pain and sensation was so bad I could not move my neck so I went in to ortho doctor and they didn't know what to think, so I continued to decline in my health.
Later I started to have what seemed to be signs of nerve problems only on my left side of the body. So I went to go to the Primary Dr. and she ran a series of testing to find out what was going on. It came back with Lyme's. So for almost 3 weeks I have been treated with Doxy 100 twice daily.
Well I was getting better and then 3 days go i started to experience the tingling sensation and the numbing feeling in the arms again.I feel like I have a bunch of needles going in me. I also feel on one arm hot only on the bottom of the arm and the right arm is like someone is putting a cold ice pack on me.Im also starting to feel like my neck is sore again.
I just came back from a visit to the primary Dr. again only to be told that the symptoms Im having are not usual symptoms of lymes.
The Dr. said she deals with alot of lymes patients and never sees the tingling sensation or the difference in cold and hot in my arms.She suggest going back to the ortho Dr. and get him to look things over. I cant justify that because my copays are to expensive.
I have 3 days left of doxy and she said there is no other oral antibiotic she can give me due to having a penicillin allergy.
I have my labs here with me and it looks like my IgG p45 is present.
then the others numbers look negative.
then Im also looking at what appears to be the Igm bands and it says that Igm p41,39,23 are present.
my dr. says that this is early lymes and it is most likely 1 to 3 months post bite. but why does it feel like Im back peddling here.
Am I always going to feel like my back and neck are broken ?
What do I do from here I dont want to be like this anymore.
I dont know what else to do. After the visit with my Dr. I just want to cry.
Can anyone help me understand this.
I have been reading the links here that everyone has been recommending to others.
I just feel helpless now.
Thanks

Posts: 38 | From kingston,ny | Registered: Jan 2012  |  IP: Logged | Report this post to a Moderator
Healerdealer
LymeNet Contributor
Member # 23032

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Hi Catina,

Sending you a PM.

Posts: 163 | From New Jersey | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

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Welcome!! I'm moving this to Medical where you will get more help. Since you are having trouble typing, I'm going to edit your post so we can all read it more easily. Hope you don't mind.

In the future, help us out by putting more space between every few sentences. It's hard for many of us to read large blocks of print.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

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