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» LymeNet Flash » Questions and Discussion » General Support » IDSA Facebook Comments Sent To Congress

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Author Topic: IDSA Facebook Comments Sent To Congress
lymenow
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Member # 36175

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Awesome, even if it falls on deaf ears.

it's a .pdf file so you need Adobe Reader (most cpu's have it) if not it's a free download.

http://www.fileden.com/files/2012/2/27/3271113/IDSA%20Comments%20Document/Official_IDSA_Comments_Document_for_Congress_2-15-12_FINAL.pdf
Posts: 109 | From PA | Registered: Feb 2012  |  IP: Logged | Report this post to a Moderator
Dogsandcats
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It is awesome - one of these days......I even found my post!

Thank you for posting this link.

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God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.

Billy Graham
Posts: 1967 | From California | Registered: Oct 2010  |  IP: Logged | Report this post to a Moderator
aperture
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The obituaries at the end are a powerful reminder of how serious this disease is.

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aperture
Posts: 551 | From Louisville, KY | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
Jacqi
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I found my post! I am on the first page of comments! Hopefully this will get something done!

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J
Posts: 91 | From Northwest Indiana | Registered: Dec 2004  |  IP: Logged | Report this post to a Moderator
poppy
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This is great. Thanks to all who arranged this, and to those who commented.

I just wish we could do this kind of thing to bring attention to the NIH and CDC mishandling of this disease complex. That is where the trouble starts. The IDSA just carries out their wishes.
Posts: 2888 | From USA | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
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BEAUTIFUL JOB!!!

Love it! Lots of work involved too!

Thanks for kicking IDSA butt around a bit. They needed it!

[Big Grin]

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www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org
Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
paulieinct
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Thanks to ALL who worked on this very impressive, powerful document.

I urge everyone on this board to write a letter to the editor of their local paper about this epidemic. It WILL get published, just make sure you mail it by US mail, you use your real name, sign it, and include your phone# (they will call you for verification). I have done this

three times with different CT newspapers. You WILL get people calling you (if your phone# is listed), asking for information, referrals to Lyme docs, Lyme testing. Important to list all the conditions that Lyme can mimic.

Again, KUDOS to all who worked so hard on this. -Paulie

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Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that.
Posts: 765 | From nw ct | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
dbpei
Frequent Contributor (1K+ posts)
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This is an amazing document. Many thanks to those of you who compiled it. I feel in my heart it is going to make a difference. Very powerful stuff... esp. the obituaries.

I was proud to see my own little paragraph in there. When I am feeling more able, I plan on writing a letter to the editor and more. Thanks to all who have tried to make a difference.
Posts: 2386 | From New England | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
   

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