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» LymeNet Flash » Questions and Discussion » General Support » If you live in PA, please read this TODAY - NOW !!

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Author Topic: If you live in PA, please read this TODAY - NOW !!
17hens
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www.lymeactionpa.com

CRITICAL UPDATE!!!

Senate Bill 210 will be considered in committee on Wed, 3/7- they will decide whether to pass the bill out of committee and onto the Senate floor. If they vote to move it out of committee on 3/7 we could get a Senate vote soon. This is what we have been waiting for.

PLEASE SHOW UP:


If YOU want action on LYME in PA, this bill must move out of committee.


We want Parents/Lyme Youth there if possible- we are working on Press. If you can help get press there, email us [email protected]


WHEN/LOCATION: Wed, 3/7, 9:30am, Capitol Building, East Wing, Rm 8E-B,

The new version of the bill will be posted on www.lymeactionpa.com on Monday, 3/5.


PLEASE SHOW UP IF YOU CAN - Let us know you're coming: Facebook LymeActionPA. or email [email protected].

IF YOU WANT THIS BILL MOVING THIS IS THE TIME!


(My Dear Mods, I know I'm cheating by putting this here in General but this is soooo important right now and I don't know if people actually look in Action much...but of course I'll move this if you want me to. - poor little Hensie Pensie)

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"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

Posts: 3043 | From PA | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
Cracker Jack
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Passed it on. I copied and pasted it on facebook & I'll keep passing it on...

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Let us not become weary in doing good,for at the proper time we will reap a harvest if we do not give up.
--
[hi]

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17hens
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Cracker Jack, thank you, thank you, thank you!!

This is our third year, you know, trying to get this bill passed.

And every year they take more and more off the bill.

And then they reject it.

This year is our chance for change.

Small steps, baby steps, but every step counts.

We need to turn out in numbers, make them sit up and take notice, make them stop trampling on us and on our kids, on our families.

It's got to be this year... please help us, everyone.

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"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

Posts: 3043 | From PA | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
Cracker Jack
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Anyone plan on going?

--------------------
Let us not become weary in doing good,for at the proper time we will reap a harvest if we do not give up.
--
[hi]

Posts: 247 | From HOME | Registered: Oct 2011  |  IP: Logged | Report this post to a Moderator
17hens
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It passed!! Took about 10 minutes.

So this means...the senate passed the bill out of committee and onto the Senate floor.

I'm waiting for marching orders...I'll let you know as soon as I hear the next moves.

Or stay tuned to www.lymeactionpa.com

We're still trying to find a lead in Indiana county. Anyone know anyone there?

--------------------
"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

Posts: 3043 | From PA | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
Cracker Jack
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I know. Praise God!!!!!!!!!!!

http://www.senatordonwhite.com/banking/2012/030712/agenda.htm

--------------------
Let us not become weary in doing good,for at the proper time we will reap a harvest if we do not give up.
--
[hi]

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Cracker Jack
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This over rides obama care!!! this is real big!!!

Still one more step to go...

--------------------
Let us not become weary in doing good,for at the proper time we will reap a harvest if we do not give up.
--
[hi]

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Dekrator48
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Great news!!

Thanks for the update, hens!

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The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.

"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11

Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
17hens
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quote:
Originally posted by Cracker Jack:
This over rides obama care!!!

Not quite. You must read the bill.

https://docs.google.com/viewer?a=v&pid=sites&srcid=ZGVmYXVsdGRvbWFpbnxseW1lYWN0aW9ucGF8Z3g6NmZkZTFjOGMyMGY2OGFhNw&pli=1

Doctors care and insurance were amended out until all that was left was information, education, and task force.

But something is better than nothing. We must move forward.

--------------------
"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

Posts: 3043 | From PA | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
Cracker Jack
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Its a big step;

A. Synopsis:
SB210 establishes the Lyme and Related Tick-Borne Disease Education, Prevention, and Treatment Act, and creates a task force.
B. Summary:
SB210 states:
* These diseases are caused primarily by ticks
* In 2009, 5,722 cases were reported in PA
* Lyme disease is most prevalent in South East PA
* Early diagnosis is imperative
* Untreated Lyme is a great threat to health
* Some people may have signs or symptoms for months or years
This legislation will:
* Provide the public with information on the disease through an educational task force and educate physicians, insurers, and government agencies on the different treatment options
* Allow a physician to prescribe short- or long-term antibiotics without negative repercussion if the treatment is not effective
* Mandate insurance reimbursement be provided for any type of treatment

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

It also strikes Section 7 relating to a licensee's right to diagnose and treat Lyme Disease without any negative repercussion should the treatment fail. The bill as written would not place disciplinary action on a physician if the treatment failed. This amendment removes that protection.
The amendment also changes the phrase ``multiple standards of care'' to read ``treatment options.''
A08991 adds veterinarians and a school nurse to the task force.
It also removes the term ``Chronic Lyme Disease'' as this is not a recognized term by the medical community.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

I see this as a good start. Also by removing cronic & leaving it just lyme allows early treatment. If I'm reading it right.

--------------------
Let us not become weary in doing good,for at the proper time we will reap a harvest if we do not give up.
--
[hi]

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LymeLogged
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Maybe it's just me, but this seems like a fairly worthless piece of legislation.

I don't see how this benefits us at all.

If I'm reading this right, it just creates an education task force. Does nothing for those with Chronic Lyme.

Posts: 74 | From NEPA | Registered: Mar 2012  |  IP: Logged | Report this post to a Moderator
Cracker Jack
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I think they removed the cronic for a good reason to cover anyone with lyme.

But everytime I re-read it the whole thing, I'm left scratching my head.

--------------------
Let us not become weary in doing good,for at the proper time we will reap a harvest if we do not give up.
--
[hi]

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17hens
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It didn't start out "worthless". It started out as excellent. It's been amended over and over for 3 years now.

Senators have been heard to say, "This will never pass as long as I'm around. Insurance companies can't afford it." This is what we're dealing with.

It was realized a while back that we can't afford all or nothing, we need to get our foot in the door, and so the amendments...

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"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

Posts: 3043 | From PA | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
LymeLogged
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"Insurance companies can't afford it" Amazing.

And how would they know unless the insurance companies weren't in their back pocket.

I'm still confused what this does for us. Seems like "nothing" to me.

Not giving anyone a hard time, but it just seems they passed legislation that does nothing but protect the insurance companies.

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LymeLogged
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I think we need to know which senators say things like "This will never pass as long as I'm around. Insurance companies can't afford it."

We all need to let them know they work for us, not the insurance companies. We vote them in, we can vote them out.

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17hens
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Well, acknowledging lyme is a problem is good.

Educating schools, school nurses, nurses, parents, kids, landscapers, hunters, fishermen, etc. that ticks are a problem, lyme is real, here are the signs, all that stuff is important.

I believe the reason insurance companies are more important than the constituents the senators serve is because not that many constituents have been heard or seen.

We need to put the pressure on in force. 500 or 100 or 500 people in the whole of PA is not enough (apparently).

So raise awareness, raise knowledge and more people will start to raise their voices.

Like I said, it's a start.

Of course it means that any direct benefit to us (safe doctors, more insurance responsibility) will take more time.

--------------------
"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

Posts: 3043 | From PA | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
Cracker Jack
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send this out to those in Pa who could have made a difference..


http://news.yahoo.com/chronic-lyme-patients-political-victory-book-top-infectious-081216122.html

--------------------
Let us not become weary in doing good,for at the proper time we will reap a harvest if we do not give up.
--
[hi]

Posts: 247 | From HOME | Registered: Oct 2011  |  IP: Logged | Report this post to a Moderator
   

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