-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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RDaywillcome
Frequent Contributor (1K+ posts)
Member # 21454
posted
It is but with all that we've all been through, I doubt any of us are surprised.
I don't know what it's going to take for ego trippers to start thinking outside the box and listen to their patients some of our top authorities on lyme disease have to offer.
Posts: 1738 | From over the rainbow | Registered: Jul 2009
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
Some patients wonder why these doctors were ever allowed to practice medicine.
Maybe they also don't "believe" in TB, or AIDS, or any other infectious disease.
Posts: 2888 | From USA | Registered: Mar 2004
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posted
My husband was seen last month by a neurologist at the Hospital of the University of Pennsylvania. We had the experience of this Harvard educated MD actually laugh at us sarcastically and say that she didn't believe in chronic Lyme disease. She claimed that the Lyme bacteria were, "weak and could easily be removed with 2-3 weeks of oral antibiotics". ....OK
She never did diagnose my husband who has a lot of neuro symptoms but did insisted that he probably had something that could be helped with steroids. My husband refused to consider them and this brilliant MD couldn't understand why.
We didn't go back.
Posts: 34 | From Bucks County, Pa | Registered: Apr 2012
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posted
Some patients wonder whether real doctors exist.
At least I felt that way until I found my LLMD.
I was at a meeting this past weekend with several doctors, who remarked about their humility in the face of medical diversity and the unknown. It was very refreshing to hear, like some honesty for a change...
Posts: 13171 | From San Francisco | Registered: May 2006
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tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
That is refreshing to hear Robin. My child's pediatrician once said to me after I told her of my struggles that it's possible I could have something that hasn't yet been identified. I'd prefer to hear something like that than "nothing is wrong with you".
Posts: 2541 | From Northeast | Registered: Jan 2008
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
I have to say, I lost all faith in the medical community until I found a great LLMD. The man is brilliant, kind, and compassionate. Even his staff is awesome.
I've had a lot of doctors in my life time (middle aged) and moved all over the country. The worst docs I've ever had are here in MA. It blows my mind. They are so closed minded!
I have never had docs (pre lyme) treat me as if I was making up my symptoms before. Maybe they are just getting so many patients with lots of little complaints (lyme) that they think we're all a bunch of hypochondriacs.
One tick lays 2000 eggs. Once they get out of the office, they'll get it (or a family member). It's just going to take some time. What goes around comes around...
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
Sorry to say, catgirl, that has already happened. When the bad guys or their families get lyme, they get treated right and they keep quiet about it. So, you see, they don't even use their own guidelines when they care about the patients. And that is not very many people. Did you think that having lied about us, they would get honest when faced with it closer to home? Nope. They are all around liars.
Posts: 2888 | From USA | Registered: Mar 2004
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Not everyone finds the bite though. Sometimes it's on the head. I'm hoping they get it in the winter time and think it's just the flu. Whoops, my evil twin is coming out (ha ha)!
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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