-------------------- Gayle Posts: 19 | From Highland Park Area | Registered: Apr 2008
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
Have you looked at the listing on lymenet? Green menu box on left side of this page, click on support groups, then go to your state. Not up to date probably, but a good place to start.
I would have given you the direct link to your state but don't know where highland park is.
Posts: 2888 | From USA | Registered: Mar 2004
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posted
ask if the New Brunswick group is still active and see what you hear back?
-------------------- Gayle Posts: 19 | From Highland Park Area | Registered: Apr 2008
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
if you are in nj i was there 1 1/2 yrs and could not find a group...there are some special problems with groups in nj...it doesnt surprise me that pat said that...i can talk about the problem but cant type about it-pm me if you want to talk and i will call you or give you my number
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Gayle said... "ask if the New Brunswick group is still active and see what you hear back?"
I've never been to New Brunswick, but I hear about this Lyme group's fabulous work all the time. Not only is this group- which is one of the few long standing and most successful groups in the country- active with local and state efforts, the leader is a driving force behind many of our federal accomplishments too.
From what I understand the very dedicated leader was at the Congressional Hearing in Washington, DC a couple of weeks ago helping to make OUR voices heard. I met her years ago at an early protest and I believe she has been to most of the others since then, if not all of them.
I most recently saw her in CT supporting Dr. J (CT) and the children during the grueling hearings brought on by the idiot medical board and Dept. of Health. She so loves the children!
She is involved with or leading at least 25 -30 active support group meetings and sponsored events each year in her area. She is a super dedicated volunteer who lives and breathes Lyme so we can all have a fighting chance to survive this illness.
The leader, in spite of her own illness, continues to advise and assist leaders of numerous support groups nationwide, as well as respond to doctors who need advise (highly regarded by all LLMD's). She has been instrumental in nearly every big decision that has been made on behalf of people with Lyme everywhere and those treating them.
In fact, I can't think of one big step we've taken in our 20 plus year history that she wasn't there leading and/or supporting us.
From what I remember, she holds meetings in a church, and the meetings, although some are designed for new patients, some are for her committees that are working on a special project, etc.. but the rest are open to those who can behave themselves and make positive contributions.
If you need more information, please feel free to contact her directly.
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Tutu said... "I have no idea how I could help you with this. If you know how I could help, I'm all ears."
You're not ALL ears, you're a droppy drawers little girl that has no shame, NO shame I say! Pull them britches up before I report you young lady!
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
YO! LP Kayak!
You changed your email address a while back? Can you please send me your new one? Your emails have been bouncing back to me and that's just no fun, no fun at all!
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
LP said.. "there are some special problems with groups in nj."
She is RIGHT! NOT in New Brunswick, but beware of the sharks in the water in NJ. There are some who may refer to themselves as "support" or support groups, but they must mean for the devil himself.
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