posted
I have a 19 year old daughter being treated for Lyme. For 8 years she was treated for Fibro before we got the Lyme diagnosis. We are seeing a LL doctor in Colorado and is on oral antibiotics on a 3 year plan. I am so discouraged. I need to hear some success stories from people on oral antibx. She took one class per semester last year and will attempt 2 classes this semester but no more. When she is not somewhere she HAS to be, she is in bed and in pain. She sees her high achieving sister traveling the world and being very successful. She has no friends or social life because she was never in school long enough to develop any social skills or learn how to make friends. After one year on antibiotics, I see a TINY improvement. I try to get her to exercise and take some responsibility for her life, but I feel like such a failure. Help
-------------------- get my daughter well Posts: 3 | From denver | Registered: Jul 2011
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
After heading down the wrong road for years, at least you are doing something to tackle what she actually has. But all that time has taken a lot of energy, and no wonder you are feeling tired.
It does take a long time to treat when a person has been sick for years. Hope that orals will do it for her. Some people need IV, but it is expensive and is a lot more medical. Hope this is a combination of pills, not just one antibiotic. What is her coinfection status?
There is a support group listed in CO. Maybe they have meetings?
Here is the thread that has a lot of success stories:
posted
Or perhaps she needs some IV to get her down the road faster??
Print out the success stories and read them to her everyday!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Dogsandcats
Frequent Contributor (1K+ posts)
Member # 28544
posted
The worst part about Lyme is it doesn't go away quickly once it has found a home in our body. I understand your frustration, I lived it and can't imagine watching my child experience it. And it is harder with two girls leading such different lives.I went from a great group of friends down to three faithfuls. I was hurt, but now would keep those three over all the friends in the world. Maybe she could seek out to find just one or two, thru school , to find friendship with. It is hard when you don't feel good, but maybe between classes just ask someone for coffee. Also, there are people willing to help, we have to ask. I had to learn that. I know this all sounds like blah, blah....but I feel for her, so I am trying!
As TuTu said, she may need the boost of IV's. BTW, I applaud her for being able to go to school...I had to drop out...course I am in my 50++'s....
You sound like a great, loving mom.....sending you a hug!
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
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posted
While my kids are younger, it is hard to see them hurting. Both my girls are battling "some" infection.
My oldest one started last February and my youngest one started getting symptomatic in March.
They seem resilient mostly complaining at night when things settle down but I can tell in their eyes that things are not well.
I work at not worrying and trusting that God loves them more than I could ever imagine.
We want so much for our kids...not sickness ever.
There is a christian devotional written by a mother and daughter. The daughter had lyme disease and treated for five years before she fully recovered. There is hope....
Posts: 538 | From kentucky | Registered: Nov 2011
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