posted
I have noticed through reading that a lot of the Dr's who treat Lyme charge roughly $400.00 to $500.00 for the consult. What do patients do when they are unable to afford this? Is there a Lymes organization set up where they can help with medical costs? Just curious... I feel like this is a place I will be stuck in for a while. This disorder has left me working part time and has already put us in a hole financially. If only money grew on trees
-------------------- *~Candi~* Posts: 24 | From Ellenton, FL | Registered: Aug 2012
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Indeed, it's a rough situation.
If at all possible, find the very best care you can - the most educated and experienced LL doctor with the best track record.
If you can't see the best LL doctor(s), READ, READ, READ all they write and try to find a way to incorporate their advice that might apply to you.
We call only do the best we can with what we have and scout out other ways to approach it. Here are some suggestions for what can help:
Suggestions for When You Need Treatment and Funds Are Low
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While a Rife Machine may be a considerable purchase, in the long run, it can save a lot of money - if it's right for you. Best still to be guided by a LL ND, though (LLMDs cannot guide Rife).
posted
May I say...I have long wanted to see a foundation set up where people could donate funds for others' care.
There is quite a range in what donors could contribute - some people have a LOT of money, and have the means to endow a fund. I see big money thrown around all the time where I live.
For example, America's Cup is going on right now in SF - they're racing in the bay here - these are people with a lot of money. Investors and developers have a lot of money. Etc. Rich folks have a lot of money.
Other than the high rollers, it would be a foundation where people could give as they can, or on a monthly basis,
even via the concept of tithing - whatever you spend on Lyme care for yourself for the month, give a small percentage for others, like 1-5% into the fund, if you can afford to do so.
Children, I understand, have two funds set up for them - one, LymeAid 4 Kids, that the Lyme Disease Association administers. The other is the Lymelight Foundation in Atherton, CA that recently set up a funding source for I think age 25 or younger.
But there is no funding for ailing impoverished adults. Such a foundation has been long needed and no one has set it up.
If it were to be set up, I think the funds would need to go to the health provider, to make sure it went for care. Or to reimburse health expenses.
Yeah, I know - it's what insurance is supposed to be doing!!!
Posts: 13171 | From San Francisco | Registered: May 2006
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
I was in that place for a long time. I eventually had to quit working part-time and apply for disability.
When I finally won my case, the back pay helped, and now I have some money to use for treatment.
But, if it gets much more expensive, I won't be able to do it.
There are lots of herbal protocals that many swear by.
They are the Buhner protocal, www.buhnerhealinglyme.com, the Cowden, Byron White, and a chinese doctor protocal (can't think of his name, but you can link to him by going to Dr. Weil's website, put in Lyme Disease in the search. He mentions this doctor on the Lyme info he provides.)
Those struggling financially and the sick/disabled are always ignored. Sort of swept under the carpet.
Posts: 1358 | From Midwest | Registered: Apr 2009
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