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» LymeNet Flash » Questions and Discussion » General Support » recovery?

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Author Topic: recovery?
lovinglife62
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Is there anyone who actually recovered from this horrible disease? I have been on antibiotics for 5 months and no signs of recovery.
Posts: 14 | From Texas | Registered: Oct 2012  |  IP: Logged | Report this post to a Moderator
PatriotM
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Many people who get bitten by a tick and are immediately treated appropriately with antibiotics "recover". Far fewer people who have chronic lyme recover. There is no "cure" for chronic lyme, which is why you read of people on this forum trying any number of different treatments for this disease.
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Keebler
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It's quite possible to reach a good, strong and long remission. Many have but few are here, they are out living their lives.

I know five months is a long time, however, it can take a year, or 2 or 3. Be sure that you are doing plenty of support so that you'll have a better chance.

And be sure your LLMD considers the full lyme COMPLEX - it's not "just" lyme. While it's complex, it's quite possible to feel good again.

Hold onto that.

-----------------------------

To help you better tolerate treatment:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=030792;p=0

LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too.


To help with endurance:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/89790

Topic: NATURAL SLEEP & ADRENAL SUPPORT


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=015508;p=0

Diagnosing Lyme Disease (&/or whatever else is going on)

Other tick-borne infections and other chronic stealth infections - as well as certain conditions that can hold us back - are discussed here. Be sure to see TIMACA's THREAD.


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=013239;p=0

What ILADS is & WHY you need an ILADS "educated" or "minded" Lyme Literate doctor (whether MD or ND, or both) - starting with assessment / evaluation.


http://flash.lymenet.org/ubb/ultimatebb.php/topic/3/15820

PROGRESS & SUCCESS STORIES
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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Candida (systemic yeast infection) is common with antiobiotic use. That can have many symptoms and make anyone feel awful, too.

To help prevent, even before beginning antibiotics, (along with avoiding all simple carbohydrates and processed foods) it's good to include:


PROBIOTICS are also essential. Absolutely essential. Be sure to take a couple hours both directions of the clock away from Antibiotics.


OLE - or similar other anti-fungal herbal supplement to help prevent or manage candida.

Keep separate by a couple hours from each other:

Abx; Probiotics; Most Supplements


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=030549;p=0

OLIVE LEAF EXTRACT - LINKS
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[ 10-28-2012, 06:12 AM: Message edited by: Keebler ]

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
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Looking at your posting history, I see that you are working with a LLMD. I hope they are in the top tier and continually learning with ILADS, etc.

You post of also having come coinfections. Sorry those are on your plate but glad they've been identified.

Heavy Metals and Parasites are also matters that many LLMD address (though not all of them).

Be sure your LLMD at least is familiar with Burrascano's work (though most LLMDs do have their own methods with each patient's individualized plan).

The SELF-CARE detail and the SUPPLEMENT LIST below provide a good basic start. Take care.

----------------------------

http://www.lymepa.org/html/dr__j__burrascano_september_20_0.html

Burrascano's Powerpoint SLIDE presentation 9-20-08

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http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

Advanced Topics in Lyme Disease (Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses

Dr. Burrascano's Treatment Guidelines (2008) - 37 pages

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As important as any supplements, sections regarding self-care:

Go to page 27 for SUPPORTIVE THERAPY & the CERTAIN ABSOLUTE RULES

and also pages 31-32 for advice on a safe, non-aerobic exercise plan and physical rehabilitation.

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This is included in Burrascano's Guidelines, but you may want to be able to refer to it separately, too:

http://www.lymepa.org/Nutritional_Supplements.pdf

** Nutritional Supplements in Disseminated Lyme Disease **

J.J. Burrascano, Jr., MD (2008) - Four pages
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lovinglife62
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Thanks to all who responded.
I do have mycoplasma pneumonia, EBV, HHV6,and being tested for babesia and bart. (CD57: 17)
My body has rejected all supplements including B12 shots. However, I do take probiotics, sacch. boulardii, nystatin, whole food multivitamin, whole food vit. D, psyllium, plus current antibiotics. LLMD tried me on samento and banderol, but I had excrutiating migraines for three days......had to stop. I can't take antidepressants, nerve relaxers, or pain relievers. I can take aspirin and ibuprofen.
Honestly, I believe my LLMD is trying, but I do not feel he is experienced enough. I considered going to Envita in Arizona, but after many hours and days of research and speaking to others, decided against it. Not alot of positive reports and extremely expensive.
So, as most of you, I struggle daily. Many, many mornings I am surprised to actually be alive. I had to give up a job I loved and slowly my life is being stripped to nothing.
I really need a doctor who is top of the shelf experienced with treating the disease. So, if anyone out there has one, please email me.
Praying for all of us!

Posts: 14 | From Texas | Registered: Oct 2012  |  IP: Logged | Report this post to a Moderator
lovinglife62
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Anyone been to Dr J's clinic?

**edited name of LLMD**

[ 10-29-2012, 11:41 AM: Message edited by: Lymetoo ]

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Lymetoo
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SUCCESS STORIES:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/3/15820?

I beat Lyme and babesia. Another moderator here (sixgoofykids) is also recovered.

It took 18-24 months for me to turn the corner on the illnesses. Lyme is not easily conquered. Hang in there!!!

--------------------
--Lymetutu--
Opinions, not medical advice!

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lovinglife62
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How did you beat it?

Will you email me your LLMD or clinic you used?

I live in Texas, but will go anywhere for help.

My daughter has it too.

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lovinglife62
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How did you beat it??

Who treated you?

Please email me information. My daughter has it too and she is down to a 00. More and more food intolerances.

We need help asap.

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lpkayak
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it took me 3 yrs to get well enough to work take care of kids and feel like i was human. that was 15 yrs ago. not cured...but controlled enogut to be worth living

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Lyme? Its complicated. Educate yourself.

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lovinglife62
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I will be glad when I can get to the point in which I can live again.

I still need help in finding a good LLMD for myself and my daughter.

We will travel if needed, just want the best there is in U.S.

Posts: 14 | From Texas | Registered: Oct 2012  |  IP: Logged | Report this post to a Moderator
   

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