posted
Hubby was told yesterday by LLMD that he definitely has babs and lyme but unfortunately, probably has ALS overlap. So will treat aggressively with Coartem, then back on other drugs. Highly suggests that we head to India for stem cell treatment. Have to see neuro and pulmonary first. If tests come back badly, we're off to India. What is the alternative? Might as well do it
Posts: 305 | From United States | Registered: Nov 2011
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
I have heard that the way to treat ALS brought on by lyme is with low dose IV abx. It is a longterm treatment.
Some people think lyme bacteria can infect stem cells, so if he gets this treatment it will probably be necessary to continue the abx.
Posts: 2888 | From USA | Registered: Mar 2004
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posted
Dr H wants to eradicate as much of the bacteria before he has the treatment. Thanks poppy
Posts: 305 | From United States | Registered: Nov 2011
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posted
So sorry to hear this!! Prayers and blessings to both of you.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
My uncle died of ALS years ago before I knew what lyme even was. He was an atypical case of ALS, which always peeked my interest some.
ALS seems to run in our family. His brother,my other uncle died of MS several years previous.
Previous to that lost several members of the distant family on the other side branch of the family tree.
Anyway the point of this is,,,when I was first researching lyme came across this article re. lyme and ALS connection.
Typically people afflicted with lyme only test 50 % positive for lyme. ALS patients will test 100% positive for lyme every time.
Wish I could find that article again but dont know where to look
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
just don, I believe it was written by Dr K.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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posted
I have searched around and can't find it. If anyone finds it could you send please? Thanks
Posts: 305 | From United States | Registered: Nov 2011
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