posted
Wow- as a former anorexic in my 20's and now a 55 year old woman with Lyme and Bartonella, among other things, I am saddened by these posts. 3 years ago at the age of 52, my weight went down to 88 pds thru no fault of my own.
I had an unrelenting fever for over 3 months and constant nausea. Then a few months after that I developed pancreatitis. When I was admitted to the hospital for that- I weighed in at 87 pds. I am 5' 3".
Being at that weight for all those months took a SEVERE toll on my body. I cannot even begin to tell you HOW many different things began to go wrong.
To the author of this post- you sound very defensive and that worries me. It does nt MATTER WHY a person gets to that low of a body weight - Keebler is just trying to help you and personally I thank her for reaching out to you.
I know it is not your "doing" or your "fault" that you cannot eat.
It is your frame of mind that is worrisome. You need to stop defending yourself and ge some adequate nutritional counseling.
I am confused- because I thought you even said awhile back, that you probably were suffering from anorexia, but were afraid to admit it on this board. I apolgize if I am wrong.
I am now at a stable 102 pds. and even with my "anorexia past" - I still feel "fat" (yes I do)but I am in therapy- I don't deny my fears about weight issues and I instead try every single day to make sure my body gets what it NEEDS to fight these horrible disease, as best I can.
All this truly is said in Love.
-------------------- Corinne Posts: 529 | From Raleigh, NC | Registered: Jun 2006
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posted
Keebler I suggest you reread your comments...they were incredibly pessimistic, not empowering at all. Again I know your intentions are very good, but your posts did not encourage positivity. And based on other posts here by other members, I am clearly not alone in my assessment. Jess
Posts: 870 | From ct | Registered: Nov 2012
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posted
Corrine-I am not in denial about my weight. I was given a diagnosis of atypical anorexia and my llmd also disputes it. I am not defensive about my weight loss. I am upset over posts telling me to plan for my possible demise and comparing me to a willfully self destructive woman.
And I have never felt fat. I have never wanted to lose weight and I have always known how thin I am and have worked very hard to try to correct it. All this is said with respect, but you do not know my situation clearly. Thanks Jess
Posts: 870 | From ct | Registered: Nov 2012
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posted
ok- I was just worried about your weight and not sure everyone else who responded knows how serious your weight issues really are. I think it is a blessing to have poeple worry and care about us. At least I know I do. I won't chime in anymore. Take care of yourself.
-------------------- Corinne Posts: 529 | From Raleigh, NC | Registered: Jun 2006
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posted
Thanks corrine. Best wishes to you and you should be proud of your anorexia recovery. My best friend is a recovered anorexic and I commend you for your hard work. Jess
Posts: 870 | From ct | Registered: Nov 2012
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Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
I think perhaps the one thing you could do to reassure your dad is stick with the ton and even increase it. I didn't quite understand why you stopped when you did as to me that was certainly no enough time on it or enough weight gained to get you out of the danger zone. In order to fight this you need to have a few things on your side. Being at a good weight is definitely one of them,
I'm not judging you, just know if it was me I would want to do everything I could to get ,myself to a point that I am at a healthy weight. If tpn is the way to get there then so be it.
I could be off base here but sometimes we need to be shown the possibilities no matter how negative and depressing they may be to push us into action.
Posts: 1750 | From United States | Registered: Dec 2011
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Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
Also you frequently post about your visits with your doc and how they leave you depressed when he says things about you being so I'll, the sickest, not sure how to help you etc...I don't know how much of this you are sharing with your dad, but if you are that has got'to'be'worrying him as well.
Let's face it, if the doctor is at a loss at what to do then how comfortable could you or your father be with the treatment and how positive could either of you feel about things.
Posts: 1750 | From United States | Registered: Dec 2011
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posted
Ellen, I agree it is so hard for my dad but he and I had a talk last night and things are ok now. He is worried but he is reassured by all the proactive steps I am taking for my health. Jess
Posts: 870 | From ct | Registered: Nov 2012
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lax mom
Frequent Contributor (1K+ posts)
Member # 38743
posted
I'm glad things are ok now. Thankfully, you are not in denial about Lyme. You know what you are dealing with and are fighting this terrible disease head on.
You seem like a very strong, resilient person...you're dad must know deep down inside that this disease has met its match, and you aren't going down without a fight!
posted
Ok seriously people with the 'you may die comments' need to get off her back! It's just down right mean!
This girl is well aware that she is ill and needs to gain weight. She is living everyday the best she can.
Jessica, I was so upset when I read the first few replies to this post. It was a couple of days ago. I get back on here today and I'm like what the crap! I am so sorry. I'm pulling for you girl.
Lyme disease has really affected my ability to eat as well. I cannot seem to heal my gut as well but I am trying. People need to understand you are doing your best. Just because you are still ill does not mean you aren't doing your best and certainly doesn't mean you are in denial. Just because your being positive? Come on!
Boy your down about your illness and people are on you to be more upbeat then you try and be positive and they put you down. Come on!
Posts: 415 | From USA | Registered: Jun 2012
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