posted
Hello. I just wanted to share something that happened to me recently.
I have a family member in Japan and they were telling me about this documentary about Lyme Disease. They said they had no idea how controversial, unjust, and unbelievable Lyme was.
It was a real education and they saw Lyme and me in a whole different light. I appreciated them sharing this information with me and it was so nice to be "seen" and understood.
It was so shocking to think that this documentary is in Japan now. I just wanted to share this news that the word is getting out. Thanks for your time.
posted
J-Dog, is lyme as controversial there as it is here?
Posts: 482 | From Oregon | Registered: Feb 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Thanks for sharing that J-Dog.
In my state, Oregon, the PBS affiliates bowed to pressure from state IDSA cohorts who wanted it banned - not shown at all.
Still, not much of a compromise if you ask me but our PBS stations decided to air it ONLY at 3 a.m. ONE TIME (in Portland, anyway). So no one saw it.
I alerted some friends to record it overnight but that did not work, for some strange reason.
They had rights to run it anytime, as many times as they wanted - for free - for a full year and it only ran once in the middle of the night.
So, great to hear that outside of our country, it's being seen. It's an excellent documentary.
I've offered the DVD to all my family to view and not one has taken me up on that. Same with my friendship circle. Only TWO saw it. They were shocked, too, and it did give them a better respect for what I deal with. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
My mother saw the film.
She was really ****ed and finally had an understanding of why we had to self treat the disease. Luckily, it worked out well for my wife. My Mother made me watch it also. Thought that was kind of funny. Like I did not know all this already. I do think it helped my wife's understanding though.
Dan
Posts: 2924 | From Minnesota | Registered: Aug 2006
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
One sister has seen the film. She still doesn't ever ask how I am, even though she knows I have been on IV.
Gave it to my brother but I am presuming he has not watched it because he hasn't mentioned it.
You can lead a horse to water......
Posts: 2888 | From USA | Registered: Mar 2004
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posted
J-Dog, thx for letting us know. Maybe you could let Andy know at www.openeyepictures.com -
Posts: 13171 | From San Francisco | Registered: May 2006
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
I'm with Poppy (you can lead a horse to water). My family doesn't fully get it, even though they've seen it.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Just sharing my experience, I am not a doctor. Posts: 2682 | From Colorado | Registered: Oct 2009
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droid1226
Frequent Contributor (1K+ posts)
Member # 34930
posted
My Dr. just came back from Japan for a 2 week trip. He said they don't have an agenda driven entity like the IDSA but they also have less knowledge of this disease.
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