-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
No surprise there. That clinic is one big rip off.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
| IP: Logged |
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Early on, before I learned about the science of lyme and understood its complexity as well as all the other coinfections, I thought that if I could just get my body stronger that would be enough. It was not.
But I also had no access to a real LLMD at that time, 20 years ago with diagnosed with 3 tick-borne infections that had been with me for years before even testing (still don't).
I had hoped she would have been able to access to ILADS educated LLMD. I hoped she would have understood the importance of that - but maybe she did not have anyone tell her about a LLMD or LL ND and why just support never works if infections are ignored.
Maybe she doesn't know there are multiple support options and some alternative treatments that WILL target the infections while also supporting the body.
I'm so sorry to hear this for she seems like such a lovely person - and no one deserves to be ill with lyme. Especially since she could likely access a LLMD or LL ND, this is even more unfortunate. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
Who??? If it aint duck dynasty or swamp people then hey.....
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
posted
Just read she is going to Dr Rau's clinic in Switzerland tomorrow for a month of treatment.
Posts: 486 | From USA | Registered: Jan 2012
| IP: Logged |
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Hope they treat her for G.I. parasites and a possible Filaria Worm co infection that some of these ticks carry.
Seems to be the missing link for many. Otherwise she may just be spinning her wheels with another expensive clinic and spending more money.
Wish her luck and who knows, maybe they can help her. I hope so.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
| IP: Logged |
posted
She still hasn't figured out that she needs an LLMD. Oh my.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
This is sad (she's a good soul). It makes sense though. Stars/wealthy people have all the money in the world, so of course they go for what they think is the best, most advanced form of care: conventional medicine. It's definitely not though, especially for lyme and company.
There are other countries much more advanced in several areas of medicine. Some people just refuse to believe it though (brain washed). A big part of that mentality is due in part to the discovery of abx. Conventional medicine is convinced bacteria can be easily eradicated (not).
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
My fear is that she has not taken enough abx....but I don't know.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Alternative methods certainly have their place and important purposes but ONLY with experts who are thoroughly lyme / TBD literate and familiar with the research such as with ILADS.
If they don't understand the science of lyme in how they approach it / TBD, other ways to approach / all the support methods in the world won't work. These stealth infections are very complex and must be understood first. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
Guys, she had a pic line placed in her & was treated at one point for 3 months. She thought that it would take a few weeks, but it took longer.
Then she was feeling toxic & decided to remove the line. She says it did not do a whole lot for her. She was still sick & not completely well.
posted
She probably hasn't been treated for coinfections.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
I actually watch the show- for her. The new season started to televise, it was filmed much earlier this year.
First 2 episodes out, and she is vocal and honest, using the term 'chronic Lyme disease' saying: 'thank you for saying I
look well on the outside, I am struggling internally, neuro brain issues and memory issues from LYME DISEASE'
It is also portraying the impact on her husband and children, who are incredibly worried and scared for her.
Thank you Yolanda, Godspeed.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
| IP: Logged |
Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
Yes, thank you Yolanda! What a courageous thing she did to come out to the public like that. I just watched the show today for the first time & as a result searched this older thread.
It must be hard for her to come out like that, especially with the type of people and schedules she has to deal with.
I love how on the show she forgets something and then refers to it as her Lyme brain.
She reminds me of myself. I too had the Lyme brain & tiredness before anything. I pushed like hell to try to make everything normal, that is until it all caved in & I could not push anymore. It creeps up on you very slowly, stealthily, & cunningly.
Posts: 2094 | From NY | Registered: Oct 2011
| IP: Logged |
posted
I wrote to her on her Bravo blog telling her about Lymenet. Doubt she read recommendation.
I feel for her but was amazed on this week's show, she went into a clinic/hospital to have her picc line removed.
I've had the line in twice......and wasn't sedated for entry or removal.
I feel cheated! But then again, she has $$$ and doctors probably pamper celebs.
Also, when she said she had it removed in March...she thought she would be better. We all knew it wasn't going to be the case but how do you tell someone, it ain't gonna work?
We need a new drug (per Huey Lewis song) that works. That's why many of us are floundering.
We take all the steps, meds, vitamins, anti-parasite cleanses and such and for some they work. But for most of us, they don't.
At least for me, it's why I've been treating, suffering, losing more of my soul every day.
I TRULY BELIEVE WE NEED A CURE DEVELOPED AND I DON'T CARE IF IT'S PHARMA OR NATURAL BUT SOMETHING THAT SHOULD WORK FOR EVERYONE. LIKE ANTIBIOTICS DID FOR SIMPLE INFECTIONS YEARS AGO.
JMOHO of course.
Good luck Yolanda.......you have more supporters than you know here. And maybe YOU CAN make a difference. Godspeed!
Posts: 867 | From PA | Registered: Jan 2006
| IP: Logged |
lax mom
Frequent Contributor (1K+ posts)
Member # 38743
posted
quote:Originally posted by Lymedin2010: It creeps up on you very slowly, stealthily, & cunningly.
Mine came on slowly, then suddenly...if that makes sense.
posted
Healthywealthy.. No company is willing to put out big bucks to help us. They will only do it if it helps THEM. If they "cure us" they will not profit as they would like.
Sad, but so very true.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Pharmaceutical companies have stopped development of any new antibiotics. No profit in it for the bank accounts. They are not ashamed to say that.
FRONTLINE on PBS a month or two ago had a program about this. I don't know how I filed that link as the title of the program eludes me as I look now.
Probably the Frontline website would have it easy to find but I'm out of steam. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
In Buhner's revised book Herbal Antibiotics, he says the same thing about Pharma not looking into devloping new antibiotics.
Laxmom, I too, started out slow with fatigue and some brain fog, and then after a few years, suddenly hit bottom. And boy is it a shock when you realize it is possible to feel that bad.
I really wanted to see the Frontline documentary, but it was on too late - probably intentionally so we won't know the truth.
Now Big Pharma wants everyone on statins.
How about some natural alternatives, and reserve the statins for those who respond to nothing else?
Oh wait, that would hurt their profits. Can't have that? What am I thinking?
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Rivendell,
You can watch the full Frontline program at their website. It may be with PBS, or on their own. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
posted
I never heard of filaria parasites. How does one get rid of them?
-------------------- I'm not there yet but I'm closer than I was yesterday.---- Lyme Band 31,41,58. Being treated for Lyme and Bartonella. Posts: 149 | From Maine | Registered: Oct 2010
| IP: Logged |
Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
Here's the edited transcript for the Frontline segment on Antibiotic Resistance:
Gosh, this reminds me of the movie Idiocracy. In it, they talk about the future of pharmacology, saying "resources were focused on conquering hair loss and prolonging erections"
Posts: 2839 | From California | Registered: Jul 2012
| IP: Logged |
Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
Judie, thanks for the transcript.
I would love to watch it online, but I am on dial-up. Remember that ancient concept? But it saves me money.
posted
Merry Christmas to all of my lymenet peeps....or at this time of year, should I say ~~ lymenet elves!??
Yolanda writes a blog for her Bravo show and mentioned she is participating in a trial that is said to have a 70% success rate. This seems like her newest approach.
I wish we knew what it was....she did say she would keep her lyme friends informed on her progress. Probably wants to see what happens b/f reporting on what protocol it is.
This is why I love her...she actually said she feels compelled to help find a cure for all afflicted and if she's asked to be a spokesperson for us, she will do it. We asked, she said "yes". Bravo! (and not the tv channel).
I just think she is beautiful and it pains me to see the TBD's effects you can SEE in her eyes...I have that same "vague/pained" look in mine f/years of TBD's.
She is extremely wealthy as is her husband. If anyone has the pockets to fight for her health back, it's them.
Me? I used all of my $$$$ up fighting this so hopefully, if she finds a cure or some relief for herself, it's something we can afford to do as well.
I wish her well and as personalities go, I'd love to be her friend. She just has so much grace and a beautiful soul it seems.
Best quote: Wealth means nothing without health. So true, but mine is more "LIFE IS NOTHING W/O HEALTH".
So our grandparents and parents who tried to teach us so young that if you have your health, you have everything were so right....as usual. Posts: 867 | From PA | Registered: Jan 2006
| IP: Logged |
Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
She looked like she was back sliding the last few episodes, but was trying to be professional and plow right through this.
Posts: 2094 | From NY | Registered: Oct 2011
| IP: Logged |
posted
Didn't/Don't we all? I did for 10 years until I crash landed.
Posts: 867 | From PA | Registered: Jan 2006
| IP: Logged |
Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
One would think that celebs can afford it all and can get the best of the best.
I see so many celebs stopping early & not continuing. Maybe they are misadvised or maybe they just know that right thing to do is to stop & work on improving immunity & health to combat this?
Posts: 2094 | From NY | Registered: Oct 2011
| IP: Logged |
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
At least she's treating. Look at Michael J. Fox. I hope Yolanda is able to consider more alternative treatments to help her. People don't give them enough credit. Even herbs are so important.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
lax mom
Frequent Contributor (1K+ posts)
Member # 38743
posted
I just read that she turned to some sort of electroshock therapy as part of some 'clinical trial' to help her neuro and brain fog symptoms... all I could think is: what the @#&*!
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Maybe it zapped/fried some of the bugs. This disease is just awful!
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
| IP: Logged |
map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I wondered what that machine was? I kept looking at it thinking it was some type of dental procedure????
I had no clue. I feel her pain. I hope she finds her tx soon. I'd hate for another victim to lose their career.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
| IP: Logged |
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
It probably fried some bugs in her brain. She might like rife.
She is such a lovely soul. I'm glad she is feeling better!
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
![[group hug]](graemlins/grouphug.gif)
![[kiss]](graemlins/kissing.gif)
![[bow]](graemlins/bow.gif)
Printer-friendly view of this topic