Annie C
Frequent Contributor (1K+ posts)
Member # 14
posted
I'm in a dark brain fog complicated with depression. Losing hope real fast. I've been been fighting a battle that so many Drs believe Lyme doesn't do what's happening to me. I'm getting weaker.
Except I now have 2 family members that want to help me. But I'm out of resources to move out west. If I didn't have all the people here for encouraging support I don't know what I would do. Each day gets harder to live. I'm lost in a sea of pain. brain fog, depression, loneliness, and fear that I will be alone forever.
I thought I'd have more family support. And I can't even get a Dr to support what I've lost. Things I've lost doesn't matter. And people are the most important when it comes to understanding.
I want to give up. I keep hoping I'm in a coma somewhere and all these 15 years of research has been a vain attempt to get better. But I keep getting worse. 3 more tic bites and now it's worse than before. Prayers are needed now more than ever before. Thank you for reading.
-------------------- May God Bless you every day. And Never say never and do not give up no matter what. We need you to help others. Posts: 1288 | From Tetons Wyoming | Registered: Oct 2000
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Annie,
So very sorry to hear this. I hesitate replying as I have no answers right now and far too tired to put on any kind of thinking cap and have it stick.
Just know that this can all change, somehow.
Forget those who don't understand all this, don't let them get you down. It does help to know the truth that, indeed, lyme and TBD CAN do all this.
As I've been stuck in a similar place for so many years without a LL doctor of any kind, some specific herbs have at least help me not get worse. And I see some hope with BERBERINE.
Berberine is a nice lift for mood. DARK CHOCOLATE is, too. Above 80% (very little sugar), one ounce a day is my best antidepressant. Fish oil and Magnesium, too, are essential to support neurological health (and that translates to mood).
Adrenal support is also a good mood support.
Back to Berberine, though - it helps in so many ways. Not the full answer, alone, but still very good for me - and others have reported some good effects. Maybe you can, too.
The most affordable brand is GlycoX, and they now have clear capsules (try to avoid any that have dye).
Best of luck, and sending what ever kind of good vibes that might have enough "oomph" to get to you! -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
LL Naturopathic links here, too, and links to articles and books for various alternative approaches. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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lax mom
Frequent Contributor (1K+ posts)
Member # 38743
posted
What about an anti-depressant? Even though the underlying cause is infection, it could help pull you out of this pit of despair.
Sounds like you need a life jacket. I know because I've been there.
posted
Annie .. accept help from wherever you can find it! Do you have a doctor you are consulting with? Please tell him how depressed you are.
Hang in there, my sweet Annie!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
Prayers sent for Annie.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- When I first replied, I assumed you have no way to obtain an ILADS educated LLMD or LL ND. Just want to say that if there is any way that is possible, I hope you can do so.
If not, still, some links above can be a life-line and lead to success, just in a different way.
Take care. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Annie C
Frequent Contributor (1K+ posts)
Member # 14
posted
Thank you all so much with so many of you who've been there tried that some actually work. I've not been able to think clearly for quite awhile.
Migraines have me living with sun glasses indoors. The body aches are everywhere including now my upper back.
The support here on this web site keeps getting better and better. Unfortunately most of us never want to give up hope that one day our lives will have as much love and care as this place has done for thousands of us.
So the Lesson here is we will always have each other helping each other getting through our darkest days. And celebrate with each other on our best days.
I will try the suggested herbals etc. I know we've all been where I am right now. I pray for those that haven't found this 30,000 people in pursuits to wellness. Some have actually succeeded.
United We Heal. Thank you again.
-------------------- May God Bless you every day. And Never say never and do not give up no matter what. We need you to help others. Posts: 1288 | From Tetons Wyoming | Registered: Oct 2000
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I would start with MAGNESIUM . . . helps with headaches, light sensitivity, pain, mood, etc. Then you can move on to figure out what's next.
Many with lyme are severely deficient in magnesium. [Berberine also helps to lessen pain for me tremendously]
posted
A homeopath doctor once suggested I try pulsatilla 12x tablets, and they worked - I woke up euphoric the next day after having put one under my tongue the nite before, and couldn't think why I was so happy!
It was weird, actually, being happy without a good reason for feeling such, but it broke the depression for me.
If you have two family members who want to help, do you think they could help get you to see a Lyme doctor?
And if so, have you made any attempts yet to find out where the closest ones are to you? You can always post on Seeking here if you don't know and people will let you know.
Posts: 13171 | From San Francisco | Registered: May 2006
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OptiMisTick
Frequent Contributor (1K+ posts)
Member # 399
posted
[ 09-20-2013, 02:04 AM: Message edited by: OptiMisTick ]
Posts: 1338 | From Above the Clouds | Registered: Nov 2000
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posted
I was in a brain-fog until after 5 months of IV. That being said my short-term memory and ability to multi-task is still horrible. While on IV, my LLMD had me on a lot of different abx.
Below is an interesting article which lists various abx ability to cross the BBB. Hopefully your fog isn't too bad to get through it. I remember being totally overwhelmed by just reading something. That has improved.
posted
The only thing I have found to help my brain fog/disassociation is Klonopin. Doesn't cure it, but it helps the buzzing feel enough that I can partially function.
Perhaps a chat with your doc for a trial of it (that's what I did....just 5 pills at a low dose to start saved me $ until I was convinced it helped.)
Not saying it's the answer for you, but it helps me. Good luck w/whatever course you choose.
Posts: 867 | From PA | Registered: Jan 2006
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Don't give up Annie.
It's hard, especially with migraines.
I am thinking of you and will ask god to lift you up and help you get out of the despair you're feeling.
Greta
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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posted
Btw, I was low thyroid - that's low T3, in bloodtesting. I went on Armour thyroid and my brain fog and dissociation ended.
It was slowed down metabolism, and the thyroid supplementation made body processes work better again.
Any doctor can test for TSH and T3 blood levels. My TSH was normal, T3 low.
Posts: 13171 | From San Francisco | Registered: May 2006
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
Be careful with benzos.
Klonopin just about killed me and it's very addictive.
Took me eight months tapering one drop at a time to wean off of it.
It causes more problems than it solves.
Not worth it.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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