GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
That is great news! Less stress, less anxiety, less trying to find papers and remember dates etc.
Wonderful news! Yay! Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I get a 2 page form from them every 3 years. Questions about dr visits, hospital visits, etc and dates. Did I work?
They have never investigated me further by sending for info from all my doctors. They just send me a letter stating my disability is continuing.
So munchin, continue to keep a file of doctors visits and paperwork going. You will need to refer to things in your lyme sucks file.
That's what I named my file.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
I know that is such a load off your shoulders. I had to go to a hearing. I cried when I won.
Pam, I'm glad to know that they don't investigate you further. I worry so much about that.
map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Yeah , Rivendell and it was for Lyme Disease, yes you read that right. State of KY granted on LD dx and threw in there, depression. You think????
Lyme & co will do that to you, and fighting the system.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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posted
Yay!!! Congrats!!! My SSDI was approved this spring. It is SUCH a relief.
-------------------- Untreated Lyme for 25+ years. Two kids, too much pain & fatigue, no hope of ever being able to treat. Posts: 310 | From Northeast | Registered: Mar 2010
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
munchin,
What they approved your disability for should be in your approval letter.
Pam,
I was awarded based on symptoms with the diagnosis of Chronic Fatigue Syndrome, othrostatic hypotension, and Depression.
Yes, this disease, abandonment from those who don't understand, and fighting the system - yep you get depressed. And the illness makes you depressed itself because of inflammation.
I was just figuring out that I had lyme when I filed for disability. My lyme test was negative, and I had been treating for years for CFS, so I just went with that when I filed.
My letter does not state my disability. Just dates amounts and review dates. Not one word about the reason for disability.
Posts: 137 | From New england | Registered: Aug 2012
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
I am so happy for you.
Posts: 4 | From Maine | Registered: Sep 2013
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
munchin,
Be sure to keep good medical records with the doctors stating exactly how well or poor you are doing, because they will review your case in a year to see if you have substantially improved.
map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
munchin, you should receive a complete documentation covering your case from the judge. Which will give you much more info on your case.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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lax mom
Frequent Contributor (1K+ posts)
Member # 38743
posted
I never found out why I was approved. I didn't get to the judge point, so my letter only said that I was approved and that was it.
map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
That's weird lax mom....why wouldn't they send more than just the approval cover letter? I would think you (everyone) would be entitled to the entire judgment/findings.
After all it does involve your case and their findings?????
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
Maybe that's why you didn't get all the info.
posted
Congratulations! I am in the process of getting the paperwork together.
I hope when the time comes I get approved too. Praying.
Posts: 167 | From Southeast Tennessee/Chattanooga/Atlanta | Registered: Oct 2012
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