posted
Doesn't work well for some of us. Some aren't that lucky with this disease and their good days and hope are long behind them.
Posts: 597 | From Massachusetts | Registered: Mar 2019
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hiker53
Frequent Contributor (5K+ posts)
Member # 6046
posted
I wouldn’t say that any of us are “lucky” with this disease.
But I am alive and kicking and I find joy in little things even if I can’t do everything I want to do physically.
Today I found a pair of tennis shoes that fit. Seems silly but that brought me joy.
And just sitting outside and watching the birds reminds me that God is in control of all things.
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8879 | From Illinois | Registered: Aug 2004
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posted
I didn't mean it like that. I meant some of us won't see better days or the "joy" in things anymore while sick. Those days are long gone for me.
Posts: 597 | From Massachusetts | Registered: Mar 2019
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
You’ve been sick for so long, you’ve forgotten what it feels like to not be sick.
You can most definitely get better, please believe me, I’ve done it twice!
After my 8th or 9th month of treatment, I feel so GOOD that I quit my LLMD and go off of all meds. (Money is always part of the equation)
I start living my life and I don’t think about stupid Lyme disease for one second. Why should I ? It’s not part of my world.
But around the 6th month mark of freedom from this horrific disease, I go crawling back to LLMD with the same symptoms creeping back up. Relapses are heartbreaking!
This time around I’m planning on staying on maintenance doses.for life as I have an immune deficiency.
Posts: 2977 | From Florida | Registered: Nov 2016
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posted
I'll never be the same anymore. Trust me when I say all my joy, hopes and dreams are behind me.
Posts: 597 | From Massachusetts | Registered: Mar 2019
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I've been treating 3 yrs now no relief. Sicker and sicker
I been sick for 23 years.
A MAJORITY OF MY LIFE HAS BEEN SICK AND IN PAIN. HARDSHIP AFTER HARDSHIP.
I'll never know what normal feels like.
Posts: 597 | From Massachusetts | Registered: Mar 2019
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Mountainsky,
I know what you mean, to quite an extent. I once stated,I have never known what it is to be healthy. I look for joy and good in things, and in life in general .
I also chose not to hover inside always,afraid of getting bit by one thing or another.I cannot change what has happened,but I am working at being the best me I can. Sometimes I lose it for a bit,and can't find 'me'. It is then that I am glad I have the Lord to talk to.
Not everyone believes the same things,I know, but my beliefs help me get thru all the stuff in life.
And I have been sick since I was about 10 yrs old,maybe before that. I gave it to God, and for me, I stay on what herbal meds I can afford,and live as best I can.
I don't know what normal is supposed to feel like,but my hubby always says 'Normal hasn't been established yet...'. I do hope tommorrow is a bit better than today for all of us!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
My life will never be the same anymore. All my best days, hopes and dreams are long behind me.
Some people are meant to suffer no matter how much they pray and work hard to make their lives and health better. It'll always be 1 step forward 5 steps back.
I was never worth it. I struggled with everything a majority of my life and failed at treatment.
Spending so much $$ on treatment just to see if there will be that .001% chance Ill be a "success"
Posts: 597 | From Massachusetts | Registered: Mar 2019
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