LymeNet Flash: Appeal after Appeal & NO IV Lyme Treatment

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»	LymeNet Flash » Questions and Discussion » General Support » Appeal after Appeal & NO IV Lyme Treatment

Author

Topic: Appeal after Appeal & NO IV Lyme Treatment

baboosh44
Member
Member # 36329

posted

I am so frustrated with BCBS Insurance. I've had a chronic Lyme 13 yrs (2 yrs diagnosed) went through a couple protocols of oral antibiotics for about 2 yrs.

My Dr. suggested IV antibiotics in order to break the blood brain barrier and we both were prepared that BCBS had been good about coverage of long time IV treatment in the past and maybe will for me.

I had a PICC Line surgically placed and only received 4 weeks of treatment, which felt like it was really helping. Then BCBS said no more IV.

I think I should be cured according to CDC and other resources. I've had probably done five appeals now and have been denied each one.

My Husband and I maintain my PICC line ourselves with flushes and bandage changes and buying these supplies.

I'm at the point I guess where I need to have the PICC line removed but don't want too, don't want to give up.

I risk infection or a clot in my line and furthermore my heart having this picc line placed. I don't know what to do

Posts: 36 | From Arkansas | Registered: Feb 2012 | IP: Logged |

poppy
Frequent Contributor (1K+ posts)
Member # 5355

posted

People in your situation, if they want to continue IV, will pay for it themselves. You can buy the meds and supplies. There are a number of sources. PM me if you want one name of a place to get them. But there are others. Bea can suggest ways too, I am sure. It can be done a lot less expensively than thru a home health company.

Posts: 2888 | From USA | Registered: Mar 2004 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

quote:
Originally posted by baboosh44:

I think I should be cured according to CDC and other resources. I've had probably done five appeals now and have been denied each one.

-
Did you intend to say "They think..?"

There are ways to get the supplies and scripts you need at reduced cost, but it's still very expensive to do it yourself.

I'll move this to Medical Questions so you can get more input and perhaps a solution or two!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

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