May 16, 2014- 4:15 PM- Dr. Jones just called. He asked if I had a "list" of people in the Lyme community, and if so would I let people know he will be closing his office on Wednesday, May 21, 2014.
I was so very sad hearing this news. When I asked why he told me it is due to the inability to pay his rent, suppliers, etc.
As you may know, Dr. Jones has had several surgeries recently, one on his eye just yesterday. These necessary time outs have prevented him from keeping his regular office hours (which use to be 7 days a week, 10 or more hours per day).
He said, with a heavy heart, things are starting to smooth out, but he isn't going to be able to stay open due to these financial concerns unless something changes immediately.
As one of Dr. Jones biggest fans, I can't sit by and let him go out like this. I'm sure you will agree, Dr. Jones should retire when he is ready (and he isn't).
He should not be forced out because he took some time off for his own health care needs, and not because the opposition has been costing him a fortune and dragging him through the mud for the horrible crime of helping our children get better. This just isn't right.
I asked Dr. Jones what I could do to help him. He said as of right now he is still $45,000 short and would need more donations to help him cover the office related expenses by next Wednesday, May 21, 2014.
Some of our Lyme doctors have been generously supporting Dr. Jones throughout the legal battles, as have many others in the community, bless all their hearts! Dr. Jones strong will, dedication, his love for the children and the kindness of others is what has kept him going through the roughest of times, but, there is still a financial shortfall that needs to be addressed.
I am asking that everyone please take a look back at Dr. Jones decades of service to our children and our entire community, and send a donation to his office ASAP so a crisis like this can be avoided.
Dr. Jones has the desire to keep going and although he is absolutely amazing in so many ways, he can't do it all- treat the sickest of children- handle the witch-hunts and legal battles- educate doctors and the public- raise funds- and take care of himself all at the same time. Who could?
Please, if you will, send a donation now to the address below so he can keep treating the children.
** Special Note- Pay Pal now available- see post below.**
Dr. Charles Ray Jones 111 Park Street Ground Floor New Haven, CT 06511
To keep the accounting/bills straight, please write the word "gift" in the memo field of your check. [When I told him what I was going to do he made sure to tell me about the "gift" notation. My guess is he has been chewed out by his lovely ladies in the office for making their work a lot harder when trying to sort the incoming mail.] ~smile ~
Thank you so much for sharing and for caring! We can do this! I will send out updates as I learn more news, and hopefully, with your help, it will be GOOD news!
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Update- A Pay Pal DONATE Button has been added to the front page of the website (look underneath Dr. J's picture) to make donating easier and faster.
t9im
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Member # 25489
posted
Sadly I now know why we didn't get a new appointment card with last weeks appointment.
This is tragic on many levels.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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2roads
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Member # 4409
posted
Tincup thanks so much.
I am mailing a check out and have called the office regarding that. Can we turn this around though? My son really needs to see him atleast one more time.
Please help if u can family
Thanks
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
t9- Yes, this can't happen! We aren't going to sit by and do nothing. Lymenet members alone should be able to raise a good portion of the funds if everyone gave just a little. I hope they do!
2Roads- Many thanks for donating. I have to believe we can make this right. Too many children need him, and to be honest, he needs them too.
Please reach out to everyone you know and ask them to help. A personal call, an email, a facebook thingy, etc. They can all make a difference.
We can't quit on him or the kids. So let's rock and roll!
From midnight Saturday, May 17, 2014, until midnight on Wednesday, May 21, 2014, we need to raise approximately $500.00 per hour to meet the $45,000.00 goal for Dr. Jones.
As crazy as that sounds, I think we can do it!
To donate right now, please click on this link: www.DrJonesKids.com Scroll down underneath the picture of Dr. Jones till you see the "Donate" button.
Just think- If 2,000 people donated $25.00 each, we would have $50,000.00 (minus Pay Pal fees/tax). If 3,000 people donated $15.00 each, we could do it!
If 4,000 people donated $12.00 each, we'd exceed our goal! So ALL amounts, big and small, do help immensely!
Now, let's keep Pay Pal and the postal service busy! Please keep "bugging" people on your contact lists and share this information with all you know!
No child should have to suffer, and Dr. Jones should have no worries to contend with at this point in time. Thank you so much for caring!!!
Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
I just donated $5 I really don't have the ability to afford, because of all the benefit Dr. Jones has done for all the kids out there with Lyme.
Please, everyone needs to step up on this and give, even if only $5.
Thanks,
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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beaches
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posted
Thanks TC for keeping us all posted. This man is a HERO. Just donated $50 bucks and wish I could donate more.
But please everyone, donate whatever you can...$1, $5, $10, $20, $25...it all adds up. Every little bit makes a difference.
WE CAN DO THIS!
Here's what I wrote on my FB page:
Here's to all the courageous parents who continually fight the medical establishment, the insurance companies and the school districts on behalf of their sick children.
Here's to one VERY courageous doctor who fought the CT legislature on behalf of our sick children and continues to fight for them despite being in his 80's.
#DrCharlesRayJones
We don't encounter real heroes often in our lifetimes. Dr. Jones is a hero to children afflicted with tick-borne diseases.
I am honored and humbled to have met this great man. God bless him.
Posts: 1885 | From here | Registered: Jul 2012
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Razzled- I'm dazzled! That donation made my night! Your donation shows we don't just give money till it hurts, we are giving our love. If I'm lucky I may be able to match your donation, which will double "our" amount! Thanks very much.
And please know, we can all see over 3,000 more acts of kindness and giving relating directly to you! (Posts: 3556)
Beautiful you!
Beaches- Now stop! It's late, I'm exhausted and you are making me cry! Stop being so dag-gum sweet! Really now, you've touched my heart. Thank you for your efforts and your kind donation. Many thanks.
Now give me a kleenex, a hug good night (or a kick in the rump) and send me on my way.
PS... Since you are both in the giving mood, a bowl of chocolate ice cream would be nice too.
beaches
Frequent Contributor (1K+ posts)
Member # 38251
posted
Here's to one VERY courageous doctor who fought the CT legislature on behalf of our sick children and continues to fight for them despite being in his 80's.
#DrCharlesRayJones
We don't encounter real heroes often in our lifetimes. Dr. Jones is a hero to children afflicted with tick-borne diseases.
I am honored and humbled to have met this great man. God bless him.
Dr. Jones treated my son years ago. He is a wonderful man and I am very grateful for him. I really hope he is able to continue treating kids!!!
Posts: 116 | From Upstate NY | Registered: Apr 2014
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Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Yes, I agree, Dr. Jones is a wonderful man!!
Hope the goal can be met!! Off to paypal to make a donation!!
Thanks Tincup!! Posts: 1357 | From Massachusetts | Registered: Jun 2008
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Beaches, you are pause, pause, pause.... wonderful. Fill in the blank, my words are still sleeping, but my heart is with you! Thanks!
Good morning Pebbles! My brain is saying pebbles, beaches, pebbles, beaches, is that a sign? Pack the sunscreen, towels and cooler and let's go! ~smile~
I am so happy to hear Dr. Jones was able to help your son. He's been there for soooooo many kids it is unreal!
I believe I've said it a million times to parents who have children with Lyme- "If this were my child I'd walk, crawl or even sprout wings to do whatever is needed to go to CT and see Dr. J."
He never let me down. Even on Sundays when the office was closed he'd answer the phone and tell people to come on by- much to the chagrin of his office ladies (lovely ladies) who were trying to reduce his work load, not increase it!
Thank you so much for donating and giving back! Your kindness is appreciated!
posted
Plagiarized parts of your posts to post this to the Wisconsin and Illinois Lyme Friends facebook page:
Here's to all the courageous parents who continually fight the medical establishment, the insurance companies and the school districts on behalf of their sick children.
Here's to one VERY courageous doctor who fought the CT legislature on behalf of our sick children and continues to fight for them despite being in his 80's
We don't encounter real heroes often in our lifetimes. Dr. Jones is a hero to children afflicted with tick-borne diseases.
posted
Just sent this out on facebook and asked my hundreds of friends to pass it on!!
Posts: 13171 | From San Francisco | Registered: May 2006
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Tincup
Honored Contributor (10K+ posts)
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posted
Pointer- great work! Steal it all! We love it! HA! And thank you!
Skies- Hope you know every donation helps. We have $1.00 donations and up, and they all are important. Thanks for caring and taking action.
Robin- Thank you for sharing this on face book. It will help reach many that I can't reach on my own! And with your educational efforts in your area I know folks will be informed already about Lyme.
beaches
Frequent Contributor (1K+ posts)
Member # 38251
posted
Have to agree with TC.
Given the dire situation Dr. J. faces YET again, this post needs to stay in "Medical" where more people can see it, and can hopefully DONATE to this very important cause.
Posts: 1885 | From here | Registered: Jul 2012
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beaches
Frequent Contributor (1K+ posts)
Member # 38251
posted
pointermom and any others, plagiarize away!
If the words I wrote can raise awareness or help raise funds for Dr. J. I'd be thrilled.
Posts: 1885 | From here | Registered: Jul 2012
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beaches
Frequent Contributor (1K+ posts)
Member # 38251
posted
Oh and TC, yes! pebbles, beaches, pebbles, beaches...it's a sign that we need to pack the sunscreen, towels and cooler and take off to a seaside location!
You know, parents with sick kids have done the impossible to get to this doctor.
He is nothing short of a saint. His "office ladies" as you refer to them, are just wonderful. They "get" what he is doing. And they are dedicated to him and the practice.
God Bless Dr. J. and his amazing staff. Please everyone, give a donation, however small, so that this great man can continue to help very sick children.
posted
Hi TC/all - the post was moved to General since it is about support for him and kids and is not a medical question.
However, I just looked at the recent visitor history, and saw 80/20 looking at Medical/Support, so it is true that more folks are looking at Medical.
Given that we have a 3-day deadline for saving him, I just made a thread announcement in Medical to come see this thread in General and help support him. That way, I hope we will cover all our bases! Thanks all for caring!
Posts: 13171 | From San Francisco | Registered: May 2006
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beaches
Frequent Contributor (1K+ posts)
Member # 38251
posted
Of course more folks are looking at Medical!
Don't even get me started on the BS that's on Medical and trying to justify why this post about saving Dr. J. should be moved to General.
Posts: 1885 | From here | Registered: Jul 2012
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susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
Can we donate with a Visa card?
I can't remember my PP stuff. Some folks don't even have PP.
Not sure how he will get the money - in time - and the amounts can be totalled if not using PP.
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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posted
Yes. If you go to the site, it says Don't have a paypal account? And then there you can continue and use your card.
Posts: 13171 | From San Francisco | Registered: May 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Beaches- I shouldn't refer to them as office ladies or just lovely ladies, how crude is that?
I should tell it like it is- they are little angels! And that seashore location sounds SO good right about now. I wish!
Robin2905783265- Thanks for the help here. Very much appreciated!!!
Susank and others- if anyone has used their cards (credit) rather than Pay Pal- would you please let me know if it works or any details about it so I can tell others?
I am not allowed to donate to myself, and don't have a card, so I can't test it. Thanks!
I am hoping to speak with Dr. J this evening and will send out an update afterward with totals and any other important info that I gather.
This super-short notice (deadline) is really tough! Hoping to see if partial payments can be applied on Wednesday, or whatever, so we have more time.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Tincup
Honored Contributor (10K+ posts)
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posted
2Roads, You better watch out! I'm not in a good mood after seeing this post moved to the General Section, so I might just have to punch YOU in the nose!
JUST KIDDING!!!
Please, please, please, don't feel badly or whatever if you can only donate a small amount!!!! It is a rare day when I can donate anything, so I certainly understand.
Any donation, and the "ping" noise rings in my email box. What joy that brings!!!
I'm just as thrilled to see $1.00 as any other amount. The fact someone cares enough about Dr. J and our children to donate anything is what matters. And I happen to know you do care, very much so.
So thanks 2roads for your donation and thanks too for the prayers!
My 10 year old son just started seeing him last October.
Now we know why his office didn't return our call last week. They always returned our calls...I felt that something was wrong.
My husband has been unemployed for over a year and we found out from my bank last month that we could re-finance my paid off SUV.
Thank the good Lord! And I was surprised to find out the other day that I had a MINUS... yes a negative balance of almost $200 on one of my credit cards.
I believe this is all God's perfect timing. So, I just paid some money on my credit card to my Paypal account for Dr. Jones! Our whole family was so happy that we were able to use our credit card.
Our boys were so happy to dump out their piggy banks and help Dr. Jones. My son said, "He takes care of all of us, we have to take care of him".
He then said, "I can help by making him PB & J's and giving him a glass of milk and telling him to rest, and that he doesn't need to work so hard. He has to take care of himself for a change...or just rest and let us and others take care of him."
I thought that he was right on the money....ba da da! da!
I hope all of our "Hail Mary Passes" can even beat the money needed. For those of you who aren't familiar with football, it would be too hard for my Lyme brain to explain..please Google it.
Keep the race going everyone!!!! I will sent out emails with links to help Dr. Jones!!! WE can do this!!
We have to for this amazing man. He helped the children of this world when no one would, we all have to be there for him now and I hope Dr. Jones knows that it is our pleasure and privilege to be able to help him whenever he needs help.
I hope Dr. Jones can rest and take care of himself..and know that we all love him and are here for him.
Thank you Lymenet Community! You have been our family's saving grace.
2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
Thanks Tutu.
Heck, I'll take that punch in the nose. I was just sayin' to somebody the other day that a friend of mine said "if there were no such thing as bad luck, I'd have no luck at all". Hmmmmm..........
Hey Anissa, atleast your checking account aint negative.
Hugs Family-
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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posted
Wrote a check over the weekend and he should get it by Wed. In my note I said: "Words can't describe and funds could never repay you for the loving concern and successful treatment you gave my grandson.....May God continue to bless you and your wonderful staff for all you do."
I keep checking to see how much money has been donated. When it's all done, I'd like to know the total (pay pal and checks mailed), but it would also be interesting to know how many people have given. Hopefully, it will be so many people that no one involved will have enough time to count them.
Blessings to all who have made this possible.
Posts: 4638 | From South Carolina | Registered: Mar 2001
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If it wasn't for being able to re-finance my car...I never knew I could use it as collateral...my checking would be "negative"...
Just like so many of you have said...if everyone we can reach can just donate $5, $10, $25, and so on, we can make this happen!
Every little bit counts!
Thank you everyone for helping Dr. Jones. And a special thank you to those of you who have never met Dr. Jones and are donating, so he can continue to do what he loves best.
Every little bit makes a dent! Thank you all!
Posts: 168 | From Southeast Tennessee/Chattanooga/Atlanta | Registered: Oct 2012
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Anissahope4healing- Your story alone is inspiring. Your donation and caring about Dr. J, incredible! Many thanks! many, many!
cbb- good for you! And in tonight's update you, especially you, will want to see the "Remember When" section I'm adding, as will others here. Thanks so much!!!
BTW- I am updating the amounts from Pay Pal tonight and hope to keep sharing them on a fairly regular basis. Once checks arrive at the office I'll add those totals too and make a report to everyone.
Yeah TuTu!!!! Many thanks! I just heard another ping in my box, so it must be you!!!
- Reminds me of a song, TC! "It's gotta be you..."
Hey gang... I don't have much money and I don't have kids, but that won't keep me from giving SOMETHING! Please join in for all the KIDS! (Their parents will thank you.)
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
I just sent a donation - I hope. No kids either but love the man.
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
Thanks so much to those giving who don't have kids.
On behalf of all those that do, thank you so much from the bottom of our hearts. Sending hugs from our kiddos as well.
Bless you-
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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posted
Plus what adds insult to injury, is that Dr. Jones has always helped children. And for the greedy lawyers and the non-lyme educated people,
they have taken so so much of Dr. Jones' time, energy, finances, ability to care for more children because he has to keep dealing with having to fight the legal system, to save children's lives. And he was the bravest and still is the bravest one to do it!
They just didn't give Dr. Jones any breaks. And now in CT, the gov. says treat first. I wish the Governor of CT would do the right thing and let Dr. Jones' be "grandfathered" in, and rule over the CT judges and prosecutors, who continue relentlessly to not let Dr. Jones live in peace.
It just gets me so angry, that with all the time and money these legal people have, they need to spend their time where it is really needed, and NOT on an incredible man, who has literally saved thousands of children's' lives, helped so many families who were completely lost and abandoned by the medical system, and so much more.
God Bless You Dr. Jones.
And to any IDSA or CDC people who may be reading this...now is the time to reach out to Dr. Jones. It's never too late to learn and science is constant learning and changing.
Be brave and who cares what some of your colleagues may think. You would have more respect for yourself for having the courage and so would your patients.
Reach out to Dr. Jones- you all can learn so much from him. And you know what? He is the type of man, that would be more than happy to teach you everything he knows, because he truly cares of children and medicine.
One day you will want to reach out to him, and it may be too late...one of your children may become very ill, and you would have wished to God you had met Dr. Jones and learned from him and "thought outside of the box" to see how all of these infections ARE possible.
We need to come together to continue to find ways to battle this cruel disease.
Posts: 168 | From Southeast Tennessee/Chattanooga/Atlanta | Registered: Oct 2012
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posted
Tincup, Will be watching for the Update tonight. Hoping the gifts will be huge and wondering what you've put on "Remember When." One things for sure - it'll be interesting.
Posts: 4638 | From South Carolina | Registered: Mar 2001
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posted
Anissahope4healing, Bravo!! Well said!! You've stated beautifully what I've thought so many times. It's so sad to think of all the children who were not able to see him because of all the legal problems they've piled on him. I hope those that have fought him will read what you said and have a change of heart!!!
Posts: 4638 | From South Carolina | Registered: Mar 2001
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