LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
Hi, I am sorry, but I am having a terrible week and today was the pits. My tinnitus is so bad now- louder than ever and starting to miss what people are saying. plus, hormones getting the best of me and this never helps.
I went into a tailspin when I got the following email tonight from a person at my church. I sing with a group of people and have been MIA for months because of all this Lyme crap and no one knows what is going on even though I have (was) contacting the person in charge.
I thought she was relaying my status (via rehearsals) but she was not aparrently. not totally a big deal, but out of about 70 people, 2 have sent cards and one person has offered to help me in my home in the last 10 months.
I am not looking to them or any of you here (of course) to throw me a pity party, but when someone you know is sick to the point of not being able to work or take a walk around the block, you'd think word would spread....
it does... for cancer. not lyme.
I had a party recently for my daughter's graduation and invited mostly family since we have a lot of those and figured they are more understanding of how our lives have been uprooted and wouldn't hopefully be as criticizing as outsiders may be of a slightly messy house or unorganizedness.
turned out my brother and another person at a point in the night were poking fun at me for "talking" publicly so much about lyme and my new purpose in life to educate others about it's ugliness.
they actually laughed at me and my brother said, "everyone has to die of something".
this makes me so sad, but what threw me over the edge today was the following email:
"Hi everyone,
"I wanted to send an update on ______ since I’ve had so many inquiries. She has started her radiation treatments and has about 25 more to go. She is in good spirits and has appreciated all the love and support she has received from you all. She pretty much has transportation covered but thanks you for your offers.
"If you are wondering if there’s anything you can do besides pray I know her and ____ would appreciate a meal every now and then. She’s too tired to cook and ____’s busy as well. She recently told me acidic and spicy foods are a little tough for her, but anything would be greatly appreciated. Here’s her number to contact her first prior to just stopping by **********. She’s not up to tons of company yet so please play that by ear.
"Thanks as always for all your prayers and love you have shown not only Connie but all our other members.
"PS Her address is ****************** "
Ok. I don't have cancer. I realize that. and I never have. and those that had may tell me it is worse than lyme & co, or they may not, but my feelings are so confused .....
We lymies can't get around like we used to, or take walks, or cook food or pay bills or work, or all the same stuff cancer people have to deal with too.
are we really that alone???????
I have been thinking what is life worth living for lately. really. can someone please tell me?
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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beaches
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Member # 38251
posted
LIFE is worth living for you and YOUR family!
And yes, we are really that alone. Very few get what LD does to families.
Yet, all around us we see this and that fundraiser for cancer research (how many more $ have to be put into that..that's a new topic).
And we see everyone rallying for cancer victims...cooking meals, doing errands, chores, etc.
Do yourself a favor and remove yourself from that church. It doesn't seem like it's a healthy option for you.
Posts: 1885 | From here | Registered: Jul 2012
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LisaK
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posted
beaches, I am in tears over that fact- to leave my church..... I have considered that for months now and I am so sad that may be what God is telling me to do. It's all I know!
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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beaches
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posted
Lisa, we have to do what we have to do.
I personally wouldn't continue to let a church community (or anything/anyone) hurt me as much as you've been hurt.
Sometimes moving on is the best medicine.
Posts: 1885 | From here | Registered: Jul 2012
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posted
People have no clue how much we suffer with Lyme disease.
It breaks my heart to read your post!! I'm so sorry your going through this, Lisa.
I suffered for years. No known tickbite, no rash, the decline, three young kids, etc. Then the treatment!!
My s-i-l got ovarian cancer less than a year ago. (no kids, less physical demands on her life - just sayin') It was devastating, I'm not saying it wasn't. She was a strong fighter, the family was supportive.
I have to say, I resented it. All in all they were not that supportive of my daily suffering, even after I had a diagnosis.
Now her treatments are finished. She definitely appreciates that I went through a tough illness and equates it with her chemo. Others in the family do, too.
But there are those that just don't get it. I'm so sorry. Don't let it poison you.
Posts: 797 | From New York | Registered: Feb 2008
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
We went through something similar at our last church.
I couldn't breathe in the main sanctuary which has a mold problem, so we decided to move on.
No one understood and I got a snide comment from the pastor on my way out.
As for family, mine have all passed away except a brother who has been chronically ill himself, so he is pretty understanding.
My in-laws are the worst. I can't tell you how many times I pushed through the fatigue and pain of lyme to meet their expectations.
But they still hate me. I guess I never could do enough to satisfy them. I wish I hadn't forced myself to do so much over the years.
It just wasn't worth it.
I hope you find the help and support you need and deserve. Maybe a different church is the answer.
Take care and keep us posted.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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momindeep
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posted
LisaK...it is a bummer and I understand exactly what you are saying...but the reason I understand is because I have lived in that situation for years through my daughter who was VERY ill for a decade...fighting for her life took all we had to give as her parents...very little support from the outside world...draining in all aspects of the situation as everyone well knows...in it by ourselves and it is a lonely situation.
But, we all understand here because we have or are living it...can't that be said for most everything in life though?
People will always let you down whether they mean to or not. I choose to believe that it isn't intentional...think about that for a moment...your church family is letting you down...is it intentionally?
I will ask the Lord to help you carry this disappointment...also, that He will lift you up and help you to not feel abandoned...a prayer just for you.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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LisaK
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posted
but all the sick people out there..... don't they all get it after they are sick? that we ALL need support- not just cancer patients? (generalizing here)
this disease has made ME aware that I need to reach out more. I can't be the only person ( I know I am not, but they seem to be few outside of you here, etc.) that was ever sick that sees this human need. I guess I am expecting too much too fast as usual. I am trying to learn to wait, and that things take time, but it is so hard
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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momindeep
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posted
Yup...it IS hard...and sometimes it doesn't EVER come from even those who are supposed to have your back...but the Lord ALWAYS has your back when others fail.
I hope that you don't think I trivializing your emotions...I understand 100% what you are saying...it just plain isn't fair...simple as that...and we expect more from others because we expect that from ourselves...so maybe this isn't about others...perhaps you can look at yourself and see the compassion that has been infused into you because of being ill...maybe THAT is what it is about right now?...it changed you and maybe that is the whole enchilada.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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LisaK
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posted
momindeep, yes, you are right- it has changed me, but now what? I have always hat too high of expectations of everyone including myself.
I am still healing and I have trouble waiting for that too.
I'm so down on myself lately. I am so glad I have all of you here.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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lpkayak
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Member # 5230
posted
Ok. Here i am. The one with lyme and cancer
Also the one who has lost and been mentally abused by family members over lyme
And the one who had to leave a church cuz of mold ... i cant believe that embarrassed me...as if it was my fault
We get so messed up living with a disease/ condition that is not validated
But lisa what i need you to hear is something i have said before on here
I have been strugling with llyme and all that comes with it for thirty plus years
I just had my one yr anniversary of getting breast cancer
All you say is correct. Ppl write you off when it is a lyme priblem but are full of sympathy and offers to help when it is a cancer problem
And for me-with a small, deep invasive cancer that needed to come out there was a lot of uncimfortable procedures and a lot if cutting...and that means pain healing...and inability to use an arm for quite awhile,...
But compared to what lyme did to my life...and my kids lives???
The cancer was nothing. A blip. Compared to living with lyme. Hiding pain and disability from family and friends and employers
So your feelings are right on lisa...and as you know you are at the right place to find others who "get" what you are going thru
Its not right but it is our reality and we have each other and need to lean on and help each other
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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LisaK
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posted
yes, I needed to hear that , thanks so much
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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momindeep
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posted
Well said kayak...well said.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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posted
I have both lyme and cancer (breast). I hear what you are saying. When a mom on the basketball team was diagnosed with cancer (hers is way worse than mine), rides to chemo were organized, fundraisers started, takethemameal started etc. Everyone was always asking how she was. However they don't know I have cancer but they do know I have lyme and I am never asked how I am doing.
When I entered the breast cancer world I was astounded at the amount of free support available. There were counselors/facilitators at every doctor's office I went to.
One of them wanted to evaluate me. In the evaluation I made it totally clear that lyme has far more devastated me and my family than cancer. As lkayak said cancer is a blip in my health compared to lyme. Counselor was very surprised to hear this and had expected taht my family was melting down over my cancer. We didn't really need her services. although I will say the breast cancer machine certainly has a lot of free things (yoga, taichi, life coach etc) that I may take advantage of.
Personally I think we need to find a treatment that causes our hair to fall out. Then people might give us some sympathy.
[ 06-29-2014, 04:14 PM: Message edited by: terv ]
Posts: 854 | From Somewhere | Registered: Nov 2010
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posted
I don't see any point in changing churches. No one "gets lyme" or what it does to us. Nope.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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LisaK
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Member # 41384
posted
quote:Originally posted by terv: Personally I think we need to find a treatment that causes our hair to fall out. Then people might give us some sympathy.
yeah, you may be on to something!
thanks everyone for the support. without you here I would be in a much darker place.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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posted
LisaK, I once preached a sermon, "If my church isn't perfect, should I leave?" My verses were almost the entirety of I and II Corinthians.
In the first book Paul outlined the sins that were in the camp. Everything from gluttony to incest, yet nowhere in either book did Paul encourage the faithful to move.
He didn't tell them "Hey! Go to Ephesus, it's a better church!" or "I know the pastor at Philippi -he's great!"
No, what he told them was stop sinning! And if someone was walking in sin, to confront them. Now it is remarkable that the young man who was living with his step mother in a sexual relationship repented and Paul in the second letter told the church, "Hey! He repented! Let him back in the fold!"
Until God tells you to leave, don't. And if He does tell you to leave - (this is important) don't leave until you have left! Talk to your pastor and the leadership about your concerns - face to face.
As far as people not understanding Lyme, I believe if Lyme Disease had the extensive press, media, printed media coverage, talk shows that cancer does, it would be a different matter.
There is an extreme lack of information in the general public and because the treatment is so varied and no one single thing helps everyone with the disease the medical community cannot handle it because they can't cure it. The public doesn't understand it and the media continually refuses to give it the headlines that it deserves.
We are fighting the same battle that people, especially women, fought with regards to MS. Then came AIDS, CFIDS, and FM. It will take a massive effort to inform the general public by the media before they accept the effects of this disease and the devastating consequences on families and the infected.
All we can do is keep spreading the word - and yes, it become an annoyance to family/friends who shrug their shoulders (what difference does it make to me?) or become sarcastic.
The Lyme community is beginning to find their voice and all we can do is keep talking when people ask sincerely "How are you doing?" and for us not to dance around the issue or minimize.
People with a short time to live usually don't minimize their illness - nor do their doctors.
-------------------- I have a good time wherever I go! Posts: 665 | From Lost Wages, NV | Registered: May 2006
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lpkayak
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WowTx...tht is good for all of us to hear. Thank you
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Ellen101
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posted
Well, as someone that had cancer at a young age and has had lyme I get what you are saying but at the same time I can't compare the two.
For me having cancer at 18 was devastating. College plans were put on hold, painful surgeries and horrific chemotherapy. Back then they did not have the drugs they have today to help control the side effects. My parents would bring me for chemo and on the ride home the effects would begin. Once the vomiting began it continued for every 15 minutes for over 24 hrs. Through the night, it was horrible. The clothes that I would wear on Fri to my appt would no longer fit me on Mon due to the amount of weight I would lose from the constant vomiting. Support groups? Back then cancer wasn't talked about. As far as losing your hair please don't ever wish for that as it was devastating. When it first began even though we were told to expect it the blow was hard. Picking out wigs made it all so real and difficult to accept. Attending my high school graduation with a wig on with what felt like the windiest day of the year was frightening. As a young girl the loss of my hair as well as my eyebrows made me feel ugly and unattractive. The toll it all took on my family was enormous.
Yes, I do wish there was more support for lyme sufferers out there it definitely is not looked upon the same way but in the future that may change just like it did for cancer. But for me even with all the pain, confusing treatment, lack of understanding etc I would have to say this is an easier route to handle.
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LisaK
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posted
I guess it (any illness) is different for each of us.
Ellen, sorry you had to endure that at that tender age. my three kids all have tick disease and my oldest- 20 yrs- has it bad, and I can relate - a little- to what you were possibly feeling as far as the interruption of life and physical-ness of it and the psychological aspect for her, particularly with social interactions.
She is in treatment and I hope and pray that when she goes back to college it will be smooth sailing for her to continue on the path to wellness.
as a mom, this is all so stressful and heartbreaking and I am sure your family felt as helpless as I feel, as all parents get overwhelmed when their kids are really sick.
I want to make sure that no one thinks I am comparing cancer to lyme because I have not had cancer and the different types of cancer AND lyme(Tick) disease out there would make it probably pretty impossible to truly make that comparison as everyone is so individualized.
the real issue for me is how anyone with any kind of debilitating illness is treated by the general public- including friends, relatives, etc..
my cousin had lymphatic cancer and although she had chemo and lost all her hair she never once ever complained about a thing or asked anyone for anything. I am not sure how she did that, but she is like a saint that gives and gives and seems to never think of herself.
I wish I had more of that in ME! I seem to whine internally incessantly to myself. I know most people really don't want to hear how I am feeling probably.
but, the truth is I wish I could go around and tell everyone I meet how much pain I have or how hard this time has been for me on every level.
maybe that is what bothers me . the fact that people in general just don't know about tick disease and are SLEEPING about it. I want them all to WAKE UP!!!! and do something to help everyone, protect themselves, and fight for justice.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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LisaK
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posted
tx, your post intrigued me. On one level I can't help think of comparing today's churches and religions to what it was back then.
Were there actual churches then? werent churches sprung through Christianity? and if so, wouldn't they all be pretty much practice the same religion back then in a 'church'?
today we have so many choices. I happen to be Catholic, but there are all types of Christian religions now.
When I posted this originally, I was refering to my church,my parish I guess.
while I try and follow the Catholic laws, I find they seem to be changing from place to place. One parish will say we are all going to heaven, and another will say no.- just to give an example.
The religion that once had me so safely bound has become frazzled and left me feeling out on a string in space not knowing where to turn for true comfort and spiritual family.
What got to me at my parish (church) since I have been sick is the realization, for me, that the priests and parishioners seem to be caught up in stuff and not focusing on the most important thing- PEOPLE.
I personally know our pastor- He has helped my husband and I through a lot the last several years- mostly
with financial problems caused by my husband's job loss a few years ago.
this was great help and greatly appreciated of course.
But, about a year ago, my name was added to the parish prayer list for sick people. it is a list of about 50 people right now and this number goes up and down over time.
I was thinking recently that it is kind of strange that no one ever called me from church about that . just to see how I am or what exactly was ailing me.
I know they are busy people, and I realize that priests are dwindling in nuumbers. but, shouldn't this be soemthing important? isn't ministry what it is all about?
Maybe some Catholic churches have a certain group that handles sick people of the parish? IDK.
Maybe I am just sick of the formality of my religion, or just sick of sheeple that go through the motions but don't really care,
or maybe I am just sick. maybe this lyme stuff has just taken a giant toll on me and made me overly sensative.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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LisaK
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Member # 41384
posted
quote:Originally posted by TxCoord: All we can do is keep spreading the word - and yes, it become an annoyance to family/friends who shrug their shoulders (what difference does it make to me?) or become sarcastic.
The Lyme community is beginning to find their voice and all we can do is keep talking when people ask sincerely "How are you doing?" and for us not to dance around the issue or minimize.
People with a short time to live usually don't minimize their illness - nor do their doctors.
yes. this is right.
I def have a problem with how to direct my point or share my feelings, fears, pains, sufferings to the general population.
I find myself feeling guilty if I want to let others know what's going on with me.
and the fact no one really asks me makes that insecurity all worse.
some days I don't even care what people think and I get so charged up to spill it all out there since this disease has taught me that life is worth living more than I ever thought it was before, and
that when you feel like you are dying and can't eat or sleep or stop feeling pain for one second, that yes, you will do anything it takes to stay alive!
at least that is how I felt, and I do still feel that way for the most part, but I have such bad days that I also go the other end and think and say what is worth living for.
what is the meaning of all this suffering. all this neglect. all this ignorance. all this isolation.
thanks to all of you for letting me share my voice here and those that take time to read or respond. it really helps to know there are people out there that give a damn.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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Lisa - not many people on here know that I have a Bach of Sci in Pastoral Ministries and was/is in the ministry (Pastor, Teacher, Worship Leader, Youth Leader) since the middle 70's.
Yes, church has changed and not to the better in many cases. Churches (broad term) are caught up in "programs" that worked for someone else and without checking to see if that was the Lord's will charged in whole hog. Often to the downfall of the church.
As far as the early church - remember that the Apostle Paul was writing to "churches" (not necessarily buildings, but people with a common experience of salvation - individual acknowledgment that Jesus is the only Savior and that there is no other way to Heaven but by Him [His words, not mine]) and correcting them to keep them on the same path.
Ephesus,Philippi,Corinth,Colossea,Galatia, and the letters to early church leaders, Titus, and Timothy, were all written with the same themes, salvation in/through Christ, love of the brothers, church discipline, repentance from sin, confronting sin, letting the Spirit live through us and leading people to Christ.
(not every person in this world are "Children of God" as Jesus told us that only those that "do the will of the Father" and those that believe in Him are the true Children of God. Every human is a creation of God, but there is no universal "Brotherhood of Man and Fatherhood of God".)
"wouldn't they all be pretty much practice the same religion back then in a 'church'?" Paul, Peter, and John were faced with "wolves in sheep's clothing" who attempted to water down the Gospel (even some denying that Jesus had come in the flesh and Him rising from the dead).
Apostasy was rearing its ugly head even in the first century church. Pantheism (bringing in other gods) worshiping idols, and just plain leading people away from God - even to preventing marriages, bringing the entirety of the Law into church ruling.
The early church fathers fought hard the for the original faith as was taught by Jesus and then His disciples/apostles.
Many churches (broad term) do focus on programs rather than people. They would rather have a worship team perform all of the music while the congregations sits like an audience judging the quality of the music.
That is not what God intended or what the Apostles taught (Eph 5:19 "Speaking to yourselves in psalms and hymns and spiritual songs, singing and making melody in your heart to the Lord;" and Col 3:16 "Let the word of Christ dwell in you richly in all wisdom; teaching and admonishing one another in psalms and hymns and spiritual songs, singing with grace in your hearts to the Lord.")
There is to be corporate worship! (Singing and praising the Lord)
I know that the Catholic Church tries to fulfill the needs of a particular body with lay ministers, but all too often people are so busy with their own lives and survival they don't have time to minister to those that are hurting.
My mother used to tell the story of a widow in her church (Baptist down in Ala) who would get dressed up on Thursdays, make a nice pot of coffee and little goodies for the visitation teams. WHO NEVER SHOWED.
This distressed my mother so much she called the deacons on the carpet (pastors have enough responsibilities - that's why the disciples in the Book of Acts had the congregation in Jerusalem pick out 7 men to minister to the physical needs of the church) and they all had their head hung in shame!
Our church has a prayer team and when you put in a prayer request (either calling one of the team or on the church website or filling out a card at service) the first person who sees your request is our pastor.
After he prays over it, he passes it on to the team and on Wednesday nights before service, they pray for each individual request and then they fill out a card mailed to the person telling them IN WRITING that their request has been heard and prayer for.
Silver and I have several cards adorning our fridge with thoughts of healing and blessing from our brothers and sisters in the church. And this is a church with over 300 adults attending.
Didn't mean to write a sermon! But, and now I'm speaking as a Christian who believes in the Eternal Christ - let your heart be at peace. I pray that the Holy Spirit, He who is The Comforter, would come and surround you, your family and your household, with His Spirit of love.
May the Father God make His presence known to you that you will understand that He is Omnipresent - everywhere, Omniscient - knows everything, and Omnipotent - all powerful and He loves you with an everlasting love.
I pray that Jesus the Christ, the Only Begotten of the Father, would come and dwell in your heart. He who suffered cruelties and indignities beyond our imagination or comprehension, knows exactly how you feel. And He, Jesus, is our High Priest. Make known to Him your desires, your hurts, your dreams.
Hope this helps.
-------------------- I have a good time wherever I go! Posts: 665 | From Lost Wages, NV | Registered: May 2006
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That's a very nice idea about sending cards to those being prayed for. What about those who are on a long term prayer list? Do you send another card each month or something?
Many that we pray for at our church do not have addresses attached to them, but I guess we could round them up somehow. Many are friends and family of church members.
Lisa... Not all churches call those who are ill. Our pastor visits those who are in the hospital and those who ask him to come by. Other than that, no visits. I'm sure if you call the priest, they will send someone out to pray with you. Perhaps the priest himself would come? I don't know.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Dogsandcats
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posted
I was called by a friend who asked if I wanted somebody from the church to pray with me- once.
The church is huge, so I kind of understand. But I was somewhat taken aback with one time.
My sisters church has visitation, meals, everything set up. Yet so few people volunteer, she is either fixing meals herself or calling around begging.
The church is not perfect, but then neither are the people in it
I really do understand what you are saying. I came around to trying to figure out what I learned from Lyme, what I will do differently, and accepting it is a lonely disease. Focusing on God, not people helped. God is faithful- people are people- sinners one and all.....
Hugs
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
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LisaK
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posted
yes, our neighboring church is much bigger and has time to do all kinds of things due to the fact that there are way more people willing to volunteer over there. I just don't like the new agey Catholic way there. or the music. or the pastor. or the way I don't really FEEL Jesus there when I am inside.
I think Jesus is trying to get me to really understand that He is the only one to ever totally rely on.
I am working on it.
The fact that these tick diseases have me so self focused does not help. I used to live a day of like 90% prayer- no lie. now I am lucky if I remember to say thanks to God once or twice a day. My brain is just wired so differently now. I hate it.
I will perservere
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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Dogsandcats
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posted
God knows where you are and he hears your cries for help.
Rest in that....
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
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LisaK
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posted
so to give an update.....
I was tested for cancer during thanksgiving time. isn't that funny? I found it pretty funny. I think God was letting me know that I could NOT have handled cancer , not right now anyway, and also that I shouldn't go around making statements like I did when I started this thread.
sorry if I offended anyone .
I still think having cancer gets people more involved in with the sick person, as I saw that in just my short few weeks of (non) cancer hell.
but..... I really must give a special applause to anyone having lyme AND cancer intheir lives. wow, what a combo and I send all my blessings to you.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
There are some old threads titled something like
What has lyme taught me ...or given me...something like thst
The experience sure does change you...huh?
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
well, yes Kayak. I feel the most this experience has given me is the ability to feel more patience for people that have lower brain function and alzheimer people, etc.
when I could barely function it was so strange becasue my brain still knew what I once had but it did not care . it was so pleasant being not so smart, haha. ignorance is bliss they say, right?
it has also taught me that nothing else matters in this world besides the people in it and how we love them.
on the other hand, the cancer scare taught me that I can only handle so much and I sure hope this is it for a looooooong time!
I am glad to have made friends here.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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