kam
Honored Contributor (10K+ posts)
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posted
Need prayers again.
Tried excedrin, ice packs, putting feet in hot water, peppermint on temples, etc.
Prayers to know what causes this and that it will go away.
Thanks
Hate this
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Jane2904
Frequent Contributor (1K+ posts)
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posted
Sorry Kam that you are feeling so badly.
Do you think it could be the full moon this time?
Hope it goes away quickly.
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GretaM
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posted
Praying for some relief for you Kam.
The brain pain and inflame is super tough on one's will. I am praying it gets better soon!
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susank
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posted
My head hurts.
Researching - my head mess could be from Doxycycline.
Are you taking Doxy? Ever taken Doxy?
It's not as "innocent" as I had thought.
Headaches - mental stuff etc.
Reading patients reports.
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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kam
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posted
Just took 2 more excedrin.
5:15 here..3 more hours and then I can take the stuff to help me sleep.
praying I sleep and wake up without it in the am
Gut is blaoting too...can't recall but seems gut and brain inflaamtion usually happen at same time.
Vision is off so typing thsi with eyes closed.
Thanks for ht prayers...thought it was going away but flared back up
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momindeep
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Prayers for you Kam.
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kam
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posted
one more hour I think. Breath in. Breath out.
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Dekrator48
Frequent Contributor (5K+ posts)
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posted
Praying for you, kam.
Hope you are feeling better this morning.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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kam
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I think it has broke. Wishing and hoping and praying. Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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kam
Honored Contributor (10K+ posts)
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posted
4:45 am Woke with the head suttf. Just took 2 excedrin. Prayers it goes away.
Ove rheated too but too out of it righ tnow to do anything about it. Bouncing off of walls.
When able, need to get up and close windows and turn on air contiditiong.
Hate this.
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LisaK
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posted
praying!
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kam
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posted
I think I am OK. Laying low...need to get back up and put my ice on the brain and the spray and the ppermint when I think I can move without making things worse.
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kam
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posted
it hasn't broke yet. Might take a couple more excedrin.
One of those days when a peaceful death sounds more do able than fighting this.
But, I knwo from past experience that once this lifts I will get the fight back
Thankfu for Rosie.
Looking forward to when I see the LLMD and can ask him or her about this.
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momindeep
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posted
Thinking about you and asking the Lord to help you.
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kam
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posted
Doing better. Got out of the house in the car.....storm clouds came in and cooled thing sdown...
a few rain drops..
but brain inflamation went down...nice...hope it is ok the rest of the night now that I am back in the house..
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kam
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posted
need prayers again. Wondering if supplements can trigger this??
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kam
Honored Contributor (10K+ posts)
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posted
doing b etter. i think it has lifted.
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kam
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posted
Woke at 3 am with the head stuff although it was rough day the day before but not as bad as 3 am
Still struggling...wearing the depends but so far able to make it to the bathroom thankfully
but hard on the system..not tossing my cooies yet but close
Need prayers again...thanks
Using ice packs
excedrin
intense muscle spray
dark room..trying to watch a movie but that isn't working too well..making brain hurt more
typing with eyse closed
medical examer is coming at 1 ish today for the eval to get long term care aproved
i have been thru this beofre and have been denyed several times
superviors of caregivers keeps putting me in to be evaluated
it would be a good thing to get aprpvoed but the process makes my health wworse.
told person i can' do a verbl interview...she said that is the way it has to be
i will protect my health and put my earp protection muffs on when she si here
gong to see if maybe it can be rscheudeld as i am just too sick and don't want to get to the point where i think being dead is a good idea
the intervie will make me worse.
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GretaM
Frequent Contributor (1K+ posts)
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posted
Prayinf for you Kam.
Hope interview goes good- maybe them seeing you vomiting will help convince them.
Praying for good interview also.
XOXO
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kam
Honored Contributor (10K+ posts)
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posted
almost 11 am. just checking in. i thought i was doing better.
i thought i might be able to do something in the kitchen
but first had to go to the bathroom.
that did me in..brain flare dup again and i am back own...need to get back up and get ice for the brain in a bit.
the past two days i am reminded that if i were a dog they woudl have put me ut of my sufereing by now
i know that i will have the will to fight the good fight once this breaks
i just need to wait this out
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kam
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posted
Got an email from the supervisors of the caregiver organization. She said she spoke to the person with long term care and I scored a 20 last time.
I need a 60 to get in the system so they will not be coming out today. Finally some answers.
I do think I need the lyme doc to help me get that medical need up.
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kam
Honored Contributor (10K+ posts)
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posted
It is a relief to know I don't ahve to deal with them today.
But, brain inflamation still needs to come down.
Getting up to get some more ice now
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randibear
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posted
there is a product called migrainerelief. I may have misspelled it but it worked wonders for me.
jus checked. its called migrelief. I believe it's on Amazon
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kam
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posted
thx i'll give it a try
i jus ttoook a couple more excedrin and sprayied my head with atht intense muscle spray. Need to get up and see about more ice .
2:20 pm. 6 mor ehours until I take the sleepin gmed combo and hopefully get some relief and wake up with out this pressure stuff.
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kam
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For some reason I thought I had put the this stuff behind me.
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kam
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posted
3:20 pm. Difficult to know if the excedrin helpe dor not. I am not getting any relief but at laeast it is not getting worse I hope.
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Jane2904
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posted
Hope this passes soon for you Kam. So sorry you are in pain.
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kam
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posted
Thx Jane
one more hour to go
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kam
Honored Contributor (10K+ posts)
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posted
Woke in th emiddle of the night without the inflamation in my brain.
But, it started to increase
Not as bad as yesterday
Just took 2 excedrin and hoping it will go away.
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GretaM
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posted
Kam-is it very hot where you are?
Does cold towels on your neck help?
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kam
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posted
Yes that helps.
One more hour to go then I will take the sleeping pill and gabapetin.
Hoping they help me fall asleep and I wake up without this.
Took 2 more excedrin at 5:30 pm but I don't think it helped much.
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kam
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thanks fro the preayers. it lifted last around 8 pm after i had taken the sleeping med and gabapetin
i considered getting up to see if i might be able to take a shower or do some dishes but decided not to rock the ooat.
i am doing ok this am
hoping it doesn't start back up again
again, considering taking a shower and or doing a few dishes
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kam
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posted
Need prayers again. The brain inflamation has yet to let up this am.
Thx 11:30 am now.
Laing on ice pack
When able, I will get up and use the intense muscle spray..the spray part of it broke so need to come up with plan b for getting it on the brain or skull
MIght need to takae a couple more excedrin too..but hope not.
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LisaK
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posted
prayers for you!
I hate head stuff!!!!!
can you take some red wine?
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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kam
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posted
thx lisa. i have the gut thing too..next time i see a yme sepcailist i am going to ask them for suggestions on the bloated gut as if i were pregannat and the inflamed brain combo...
it seems to go hand and hand although i get the bloated gut thing by itself too
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kam
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posted
i think the sugar in the wine would make things worse for me...i haven't had any wine, alchol in years and years
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momindeep
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posted
Hope you are feeling better.
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kam
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posted
thx momindeep...doing better. i was in and out of sleep for ? hours.
I think if I just continue to lay low I should be fine now until bedtime.
Tomorrow is new day
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posted
The bloating is usually candida/yeast, kam. And it does indeed affect the brain.
Hope it lets up very soon.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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kam
Honored Contributor (10K+ posts)
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posted
NO blaotin gthis am but I do have the inflamed brain thing. Laying on ice now.
Took 2 excedrin at 5 am.
8 am now.
Praying ti lets up soon.
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kam
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posted
10:45 am. I hve been in and out of conscouness.
Several trips to the komad...lot of BMs'
not sure why but it seems to go with the head stuff.
Typing with eyes closed.
Just put some intense muscle spray on.
Still using ice pack
Nt sure what to do next to help...mabye the feet in the hot water thing next but any movement at this point makes me feel worse. And I reallly am ot stron geough righ tnow to try and sit on the handicap bench in the shower to pput my feet in a plastic tub
I will lay here a bit and then maybe try..bowels are stil acting up..I still have dpeends on but so far have't had to use them thankfully.
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kam
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posted
Took a couple of exceedrin.
I think soakeed feet for 10 min...nt sure but couldn't sit upright for any longer
Forgot to put ic e pack on hed while soaking feet in hot water
At first water was too hot...then put feet in again and couldn't feel anything..excedrin must have kicked in??
Back down now...going to see if I can handle watching a slow moving mvoe.
11:33 am. Need to get up and get another ice pack but fo rnow..moving is not a good idea
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kam
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posted
had another BM...i hve lost count on how many I have had this am..it always amazes me how full of it I am. Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
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posted
I think it is pain that cuases me to keep havin gto go to the bathroom. I
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posted
Kam .. any chance you can keep a food diary?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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momindeep
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posted
Asking the Lord to help you.
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kam
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posted
I was trying to figure out how to do that as I usually can't go bck and red what i wrote.
Maybe on here and others might be able to see a pattern.
I just had half of a almond butter and strawberry (fruit only) gf sandwhich...still trying to take a few more bites.
So weak
And took the tramadol and gabapetin
A couple of things I wonder are about the gf pancakes with pure maple syrup
and the gf chicken tenders
I'll start a food diary soon on here
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kam
Honored Contributor (10K+ posts)
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posted
Food is tricky as I can eat some tings and be fine and maybe have a reaction aontoher time.
I also know that not getting food in me can cause problems too with brain pain
So, it will help just ot keep the food diary to make sure I am eating. I know I odn't eat enough each day but do the best I can
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