posted
Hi everyone, I hope you are all doing well at this time and getting better hopefully.
I have not seen an LLMD yet, but I am currently taking Doxy 200mg a day that I have along with some other supplements such as COQ10, magnesium, fish oil, B12 vitamin, zinc, ester-c, Multi vitamins, and triple probiotics(spread out between abx of course) and I also plan on taking zithromax soon most likely, I am starting out with small doses for now to get used to the abx. That is until I can afford an LLMD and some better treatment.
Since I have been taking these, I have been feeling a bit better in this month of August, not great, barely decent, but def better than I was in may, june, and july. Like I said what I am taking is not much at all by any means, but I have to start somewhere while money is tight with me right now and I cannot afford much, but at least it is something I guess.
On Friday I was able to get out in the heat and do some work on my yard for two hours, pulling weeds and such and I did not really have any problems at all aside from taking a few breaks due to the intense heat we had here, so that is a big stepping stone for me, compared to being in bed most of the time in the previous months.
Although August was somewhat of a mild improvement month for me, My anxiety and odd body feelings came back the day after on Saturday. Not as bad as they were in the previous months, but enough for me to notice a bit of a downward spiral.
Even though i feel like i'm in a constant daze or dream weird like feeling, I was able to just push through this month and feel kind of decent while doing it. But recently with the anxiety and all coming back a couple of days ago, I am starting to think my mono might be back again on top of Lyme symptoms.
I apologize for sounding like an idiot, but i am just so scared that maybe I have something else horrible on top of Lyme and EBV, I feel like I am slowly fading away and deteriorating, I even had a good cry tonight because of everything that has been going on the past few months.
I have to keep re-assuring myself that I will get through this, or at least be able to stay alive even if it is with alot of symptoms. I am also scared that maybe I have more illnesses on top of Lyme+co and EBV and that they are just going to destroy me eventually.
I am just looking for some support right now that there is hope and maybe I will be ok, I am in fear everyday because I do not know the current state of my health, and even thought most of the August month i felt somewhat decent, the passed three days have been anxiety ridden and im fatigued and feeling weird again. Hopefully soon things pick back up to where i feel somewhat confident about my health, because right now I do not at all.
Thank you all for reading my venting, I apologize for it, I just get into dark places sometimes and the passed few days havent been so great because I have been worrying about the state of my health, if I have more things wrong on top of what I said, or if this is all just going to destroy me. But I will at least try to keep a positive attitude and keep on trying.
Once again I hope you are all hanging in there and doing well, take care and thanks for listening.
Posts: 24 | From atlanta | Registered: Jul 2014
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Can't read beyond the subject line this am. Just stopping in to give you a group hug.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
I am confused by your post. Did you diagnose Lyme disease for yourself? Who prescribed those antibiotics? Please see a doctor soon.
Here is the excellent website of the GA support group - located in Atlanta. Contact people there. I am sure people will be glad to help you find a good doc, too. http://www.georgialymedisease.org
posted
Thanks everyone, I basically am taking matters into my own hands for the time being since I cant get to an LLMD, and being all my anxiety and symptoms started two months after a tick bite, I cant relate these symptoms to anything else really.
Posts: 24 | From atlanta | Registered: Jul 2014
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Doxy - sunburn alert.
You mentioned doing yard work in the heat. Now, that may have been in the shade or with protection.
Or you may have gotten away with some sun exposure. If so, you may not be so lucky the next time. Some who did okay once, found themselves with major sunburn from other times.
Be careful. Glad you were able to do something in the heat. It may be helpful to know that heat often really makes those with lyme much worse and heat tolerance goes WAY down. Again, as with just about any symptom or feather, some are not affected (or may be at a later time).
Still, just be aware that if you feel the heat is too much - almost BEFORE you even start to sense that - get out of the heat. Regardless, always take precautions as to help your body better manage heat.
When so many organs / function can be a bit topsy turvy , heat can be a very serious matter for many reasons, the myelin sheath (coating of the nerve fibers), adrenal stress, heart, etc.
I can't "do" anything much over about 75 degrees. And I can feel even one degree rise, it seems. Humidity factor also weighs heavily for most of us. Better with low humidity.
Enjoy what you can of summer, of course, just know that you have "permission to pamper" in regard to safety that for you may well differ from past summers or what those around may need. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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lymie_in_md
Frequent Contributor (1K+ posts)
Member # 14197
posted
Chaz -- I recently gotten bitten and I did the following, I wrote about in the link below:
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/