Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
Did anyone else read this one?
I will see if I can get the whole article. It deserves a lot of comment. All about a patient being put through hoops while his Lyme disease gets worse!
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I'm afraid to look. The NYT has been so terrible - and so wrong - and so determined to crush all ideas of persistent lyme that I'm not sure I can read another article from them unless I know it's by someone on the outside who writes with reason.
It should be easy to find via link. I can do that much but I cannot bring myself to read until someone tells me it's honest and they don't further shame those with lyme.
If you read it online, just copy & paste the link.
If you have the actual magazine, can you type the title, exactly as it appears, and the author. That will help in a search. -
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Keebler
Honored Contributor (25K+ posts)
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posted
- Is this it? It is hard to tell by the bizarre lay-out on the page. Looks like various article but clicking onto the "neck" title goes nowhere so I assume that's just the sidebar and all that to the right is the actual article?
If so, I refuse to read another word / article by Lisa Sanders. She is the NYT lyme denier, the worst time and again.
Please tell me she has changed. But now way will I subject myself to her until I have assurances.
A PAIN IN THE NECK - By Lisa Sanders, MD -
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Ann-OH
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Member # 2020
posted
It IS there! It is part of the series they call "Diagnosis". The first one under Columns.
It is a recurring game: They put out a case study with all the symptoms on Friday and then publish the correct diagnosis on Sunday, after letting people guess.
This one is called "A Pain in the Neck"
Here is the final part:
"When the last test results arrived, Senatore was relieved to find the diagnosis confirmed: It was Lyme disease. Senatore called the patient at home to let him know. The man was glad to hear that he was getting the right treatment, but he was worried because he was still weak and in pain.
“When will I be better?” he asked the young doctor. Senatore had to admit that he wasn’t sure. He had assumed that the patient would get better once the treatment began. Because he hadn’t, they kept testing him — and treating him — for other possible causes. Senatore kept in touch with the patient. Over the next few weeks, the man did finally recover, though it took months for his strength to fully return.
We expect tests to provide answers. In this case, many of those answers were confusing rather than illuminating. The patient had pain that suggested a pinched nerve, and an M.R.I. showed he had spinal stenosis — but that wasn’t the problem. He had a fever, and a chest X-ray suggested a lung infection — but that wasn’t the problem either. Lyme disease is an infection that can take many forms. Perhaps it, too, should be known, like its cousin syphilis, as “the great imitator.” "
Oh my, what an original idea! Lyme disease has only been called the "Great Imitator" for about 30 years! And the doctor was so confused that the patient didn't immediately recover!
Arrrgggghhhh! I hope they get lots of letters. I plan to send one.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Thanks for they synopsis, Ann.
they do not care about comments. In fact, they seem to have team of dozens of "reply to the reply" commenters who will counter attack and demean and discredit every educated lyme comment in any article in any edition.
I have lost all faith in any degree of true journalism regarding lyme ever coming out of the halls of the NYT. They are an IDSA mouthpiece, through and through.
Any tidbit like this that may seem to declare they do admit to lyme, even that it's "tricky" but they do treat it
("Take that, you protesters! - See, the guy got treatment, his fault he SAYS he's not all better!" -- or "See, she says she is better" but they don't really detail that "better" is qualified or not lasting -
- [or that the poor patient HAS to finally say that even if not true because it's just expected of them. We've all done it, told a doctor we are better just because they give up and we see that "loonie toon" look in their eyes and we don't want them to think that about us.
At least we might have done so before we really knew all the whys and wherefores.]--
Sanders' approach here is true to form and serves as an IDSA propaganda piece.
See, most will read and think the patient is just too picky or not too eager to move on and be well. Most will not read this and see that that treatment given is not likely adequate -- or the other complexities / coinfections, etc.
As a former journalist and former journalism instructor, [and don't just my writing style as I've lost so much of that]
I do hold the NYT in high esteem -- for most topics, most reporters. But they fail here consistency. They've heard this and they do not care.
It serves to make us go further into a cave, as friends or family who read NYT' SANDERS' trash and then further decide that those in their lives with lyme must just be complainers to not get better with the typical treatment, especially when we have relatives and typical approach.
It's very damaging in many ways. They do not care. If fact, I think they are out with a purpose to just further beat down those who are ill with tick borne disease and to discourage others from learning more. And that goes beyond bad journalism. It's morally reprehensive.
The recent protest in front of the NYT building did nothing to open doors. -
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- If you send a letter, best to find out who really is open to receiving such. Someone at the top, I would hope. But find out first or it will go in the trash. If online, it will be reputed. -
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droid1226
Frequent Contributor (1K+ posts)
Member # 34930
posted
It is a very weird constructed article in the sense that you must go to the bottom to "Find the Answer"
But the facts exist that the NY Times put the article out there, it was written by an MD who works at Yale university who agrees this is a dangerous disease that is chronic and takes many forms, and it was found to be lyme disease by an internist/neurologist in the ER.
That's not a bad thing. Good for her for writing the article. I wish it was in the title, not hidden in the article.
Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
I found that this challenge was originally published on the doctor's web blog on October 3rd. If you go here you can see more materials on the case. Then go to the solution and you will see that there were more than 200 responses, most of them dating to early October. Some of those are very good.
So if the doctor had read those, she would have been more educated than was revealed in the Sunday Mag. article.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Ann,
Thanks for that direct link. I wondered where all the comments were. Glad to hear there were some good & thoughtful replies, I look forward to reading those.
NYT' comments are just too hard to read now that they've changed the format and make them into a sidebar -- so hard on the eyes not being able to make them a full normal view.
Came back after scanning about 25 of the 200. Not very impressed with the readership but at least someone posted a couple hours ago about how lyme is so commonly dismissed.
Another poster: "Is there ever a medical puzzle in which there are not those who don't say it's Lyme?" (paraphrased)
good that someone replied something like: "because so often it IS - but it's missed and discounted by doctors." (paraphrased)
Still, the matter is not resolved. The man probably did not get combination treatment that was directed at all forms of lyme for long enough, probably no assessment of coinfections.
They still left this seeming with a simple answer that -- okay, at least they are now admitting it can be a puzzle and it should be considered -- but then they think the basic, one Rx approach for a couple weeks should FIX it?
No clue to the complexity of this even once it's diagnosed. I hope the patient found a LLMD for proper care. -
[ 10-28-2014, 05:48 PM: Message edited by: Keebler ]
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