posted
Here I am, almost 6 years after infection, treated for three years non stop and what do I have to show for it? Tinnitus caused by high-dose, long term zithromax (thanks, doc), and daily, unrelenting orbital pain and headaches. My Lyme treatment is done. I no longer have Lyme but these two parting gifts will stay with me forever. They're worse than Lyme ever was.
So, newcomers, as far as your ears go, if you don't want to hear a constant ringing in your head for the rest of your life, DO NOT let your doctor keep you on any macrolide without a break. They should be pulsing these meds. My oh-so highly regarded doc should've known better.
As for me, it hurts to see and when I close my eyes I just hear screaming. It's no way to live and I've had enough.I'll be taking my leave soon. Good luck to you all.
Posts: 181 | From Midwest girl gone home | Registered: Oct 2011
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lpkayak
Honored Contributor (10K+ posts)
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posted
A lot of people here have had a lot of tx. I took 1000 zith for for two yrs and other high dose abx. I did not get er or eye problems. I got well enough to work 20 yrs and raise my family
You have come to the right place. Please keep checking this thread. Someone who solved the tinnitus problem should come along
My life is not perfect...i have been in sime bad places...hang in and wait for answers
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Thabks, but I've been here enough. Not looking for solutions anymore. What's done is done. Just hope someone else can avoid zithromax -caused tinnitus.
Posts: 181 | From Midwest girl gone home | Registered: Oct 2011
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lpkayak
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posted
Im not sure it always causes tinnitus in evetyone. It saved me and i am searching tinnitus on here and finding many have it and are figuring out how to calm it down
I have read triggers can be foods with hhistamines esp pickles,vinegar and emfs
I had trouble with emfs causinf restless legs and neuropathy and by making one room emf free i got a huge amount of relief
Also someone said many rock stars deal with it...so i wouldnt jump to conclusion it was caused by zith and not be fixed
Statins messed up my tendons so much i was ina walker. Docs coyldnt figure it out for 3 months and i gave up on them...then thru a lot of reading i figured out mitochondria support supplements would help and the did
I know you hurt real bad right now but hopefully others with same problem will come aling and guve you the key
Do u know how to use search at top of page? I put in in tinnitus and there is a lot to read.
I ll keep looking but i am limited in ability to read and type
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
sideways, I wasnt' on zithro and I have tinnitus. I am getting checked fo rheavy metals at this moment- still waitng for labs.
I know how you feel. I had a non stop scream for about 2 weeks and it drove me mad. I thought of killing myself, but that is not the answer.
mine comes and goes in intensity for the last several years. but it never leaves. it is 24/7. this is probably what you have too.
waking up in the middle of the night with that noise is terrible.
I don't know what is causing it. were you ever checked for heavy metals? I am hopeful that is cause . then maybe I can treat.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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lpkayak
Honored Contributor (10K+ posts)
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posted
Keebler knows a lot and says berberine helps
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Sideways, I am so sorry to hear this. Abx can cause tinnitus, but so do EMFS (not well known). I would try reducing them. It has made a big difference for both me and my husband (we have both done abx). Protecting yourself from them can reduce the load you are hearing.
You might benefit from seeing a naturopath as well. They are great for supporting our bodies. Also, ondamed is great for finding problem areas and repairing them (doesn't have to be lyme). It's PEMF technology is gentle enough for me, and I feel better after I get treated.
Also recommend eav, asyra or zyto for finding things your body is missing.
Hang in there so you can find peace. Just push forward for help and answers. We are all pulling for you.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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lpkayak
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posted
Sideways...where are you from. I have lyme friends in missouri and kansas
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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lpkayak
Honored Contributor (10K+ posts)
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posted
I also know someone in delaware with a lot of experiece but cant reach her yet
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Sideways .. I did find out when I got hives that foods high in histamine made tinnitus really bad. It is much better now that I avoid those foods.
I hope you can find something that helps!!
Moving to Medical Questions for more help.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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