Interesting article! He actually comes to some fairly good conclusions, though he insists the NY bill opens the door to lots of shady medicine. Ann - OH
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I thought he really missed the boat in understanding much about lyme, though. This was very thin - and really the language used about patients is often rather negative in that they "claim" or they "believe"--
he never talks about the cystic form or how combination treatment is essential, etc. He apparently did not research persistence, etc.
He merely gave a slight breath to coinfections; he did not convey how persistence some of these can be & that they also require complex combination approaches / rotation of treatment methods.
This is merely his opinion. I see no sign he has done his homework on this matter. Not even close.
Now, he likely did spend hours but it shows that he is unaware that this can take a very long to come to a proper understanding. It's very clear he has not read Pamela Weintraub or Lorraine Johnson's works, nor that of ILADS' researchers.
And, why, oh - why - do they think everything outside of the traditional medicine the way insurance companies now dictate -- or in the CDC / IDSA approach - why is that so fast to be called - or feared to be - witchcraft?
He could have looked at ILADS - apparently he just never did -- and then see that, hey, look - here is a group of dedicated doctors that have worked so hard to pull together a new set of guidelines and have conferences and training and all that.
He could have explained how some nutritional approach help to protect the body, etc. He could have really take a much better look and tried harder to understand.
Or so I would like to think.
But he stopped short to leave that group out as witchdoctors to be feared. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
I stopped reading when he talked about bullseye rash. Enough. The govt screws up and gives it to us then blames us for mucking up the medical system
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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droid1226
Frequent Contributor (1K+ posts)
Member # 34930
posted
Thought it was fairly neutral and somewhat accurate until the last paragraph.
Insinuating that Dr's who treat lyme are witch dr's. Then saying that witch dr's benefit no one. Well, you can't say there's validity to treating with long term antibiotics, then say it benefits no one.
poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
You all need to send these comments to the magazine that printed this story. I don't even bother to read the New Yorker on lyme anymore. And my opinion of that mag has declined significantly since they started printing lyme stories.
Posts: 2888 | From USA | Registered: Mar 2004
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
This comment/article did not appear in the magazine; it is from their web site.
Speaking of stories, several years ago, they did print a good short story that featured a woman on IV for Lyme disease .
At least the author of the article I posted here spoke of the need, above, all for accurate tests:
"I have an instinctive loathing for the middle ground, but that area, somewhere between the medical establishment and the activists, is exactly where I find myself.
"One would have to ignore emerging scientific data to argue that Lyme disease is a settled problem, and that all those people have simply turned to a Lyme diagnosis because they don’t know what is wrong with them.
"There are too many people who have been infected and too much that is unknown about the epidemiology of the disease.
"We need better tests, so that there is no doubt about who is, and who is not, infected, and better treatments for those who are."
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