kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
i come here from time to time to check in on people and see what others are talking about. I just thought since I was here, I would post an update on my "kid."
After almost five years of treatment and four different doctors, I am happy to report that DD is doing well. She if still in treatment, but she is attending college and working a part time job(actually several part time jobs.)
For those of you who are wanting to give up...DON'T!! It took us finding that right doctor to treat DD for all co-infections even though her tests for them were negative. 18 months of IV abx didn't do as much good as oral abx for all infections plus Mepron and herbs. Keep up the good fight. We will win!!
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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posted
THanks for letting everyone know - it's important for us to hear success stories - it can be done!
There's a Success Stories stickie just above here - perhaps you could describe your daughter's recovery there too.
Posts: 13116 | From San Francisco | Registered: May 2006
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Thank you! Wow! Incredible hard work.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
When she is off of all abx I plan to write our whole story. We still have lots of healing left to do. I just feel like we are finally on the right path and she actually has a life now.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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posted
Good job, Mom!! My hat's off to both of you!
It's just fantastic!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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beaches
Frequent Contributor (1K+ posts)
Member # 38251
posted
Wonderful news!!! So happy to hear this!
I have a similar situation. I am always waiting for the "other shoe to drop" as I'm sure you are. And that makes me hesitant to post a "success story" --- but one day I will! Isn't it wonderful seeing them get some semblance of their lives back?
Mothers of sick kids are not to be reckoned with. We keep doing what needs to be done to get our kids well.
Great job! I KNOW the hard work that went into what you did. Wishing you continued healing and blessings to your family!
Posts: 1885 | From here | Registered: Jul 2012
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Excellent! I can relate. And i know it really helps thise dealing with sick kids. They are so scared
Ty for sharing
Beaches...success is success. With this disease none of us can.really say it will never come back cuz we dint get immune and stress can bring it back
The time they are well enough to participate in life is a success. And success builds more success
You did good...and we all have to face the future together
No real way of knowing what will happen...storms, wackos, this disease...well any disease
Enjoy this happy time
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
glad to hear
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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posted
My children are with their abusive father who used dcf to take them due to lyme. They both have issues one daughter has severe anxiety and depression and is on psych meds also has urinary problems and horrible menses. My other child has stomach problems and both have pain and fatigue. They of course have no treatment as I cant even get a lawyer to help me get visits. Any ideas on how I can be able to get help for my family? I have written to everyone even pam weintraub. Let me know if anyone knows how to help
Posts: 61 | From wilton | Registered: Mar 2010
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
__
this is so great! yay!
__
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Good news.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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