posted
After lyme was dormant for many years, I retested at Igenex last year and came up positive after I had no explanation for muscle pain.
I am in the hands of a great LLMD -- one of the best -- and am currently on two antibiotics (Doxy and Cedax), Interfase Plus, Chlorella, Cholestyramine, Niacin and several probiotics.
For the last several months, I've had pretty consistent muscle achiness in legs and sometimes back. Occasional lightheadedness but few other symptoms.
For the last 3-4 days, I've gotten bad back pain and now it's hard to even walk. Feeling really frustrated and anxious.
I'm doing everything right. Taking my meds, exercising, sitting in the sauna, and my LLMD says we're killing spirochetes but I'm not feeling any relief.
Just reaching out for support and reassurance that I'm going to be OK!!! Any kind words are appreciated!
Thanks!
Posts: 160 | From Los Angeles, CA | Registered: May 2002
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Bruce- you are going to be ok. I know this to be true. Hang in there. And always remember, you are not alone.
Let`s look at what the current problems could be from, cause if you know what they are that can help you handle it. At least it does good for me and others I know.
How long have you been on the cholestrymine (sp?) and were you on it before?
Were you re-bitten?
Were you checked for Babesia and Bartonella?
How hot is that sauna?
Are you hydrated?
You taking any magnesium and calcium?
Do you have a good chiropractor?
That ought to get you thinking. Maybe we can pinpoint the kicks you are getting and fix them!
Been on the cholestrymine for about 4 months. Started with 2 packets a day, now 1 a day.
Definitely not rebitten.
Not likely bart or babesia per my LLMD. Also took Babesia drops when I started meds last year, just in case.
Sauna is about 170 degrees. I sit in there for 15 minutes 3-4 times. My LLMD really likes that. Says it's great for detox and also kills spirochetes.
Yes, drink lots of water everyday. Have to with all the meds I'm taking.
I try to take magnesium glycenate everyday but in actuality probably 2-3 days a week. Don't take calcium.
Not a fan of chiropractors. Scare me. I've done acupuncture in the past.
Posts: 160 | From Los Angeles, CA | Registered: May 2002
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Tincup
Honored Contributor (10K+ posts)
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posted
Quick note- on my way back outside.
Could the cholestrymine be sucking up your nutrients (normal and additional supplements)? It has a tendency to do that even when taken hours away from other meds.
I shouldn`t have asked about the sauna- it freaks me out to hear how hot some folks have it- worries me. So, let`s just say this...
How is your possum, --- darn auto spell check- it is suppose to be potassium, salt and other minerals?
It is possible you twisted or leaned and slipped something in your back, which would/could affect your legs. Could have been ify for a while and finally gave out.
I don't know if acupuncture would help- thinking it might? Might be a place to start as most symptoms focus around the back (joint muscle) problems.
Will think more while outside- got to make hay while the sun shines, you know....
Weird part is my legs have been achy for a long time during the past year while back and other muscles were OK. Thinking I have a few spirochetes in the legs that like it in there and don't want to leave!
Will check potassium levels.
Enjoy the sunshine!
Posts: 160 | From Los Angeles, CA | Registered: May 2002
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Tincup asks:
"Could the cholestrymine be sucking up your nutrients"
Yes, it could. Either for that or some other reason, I could not tolerate it AT ALL, even with a lot to good tries. You might try stopping that to see if it makes a difference.
There are other ways to achieve the same thing without robbing your body of nutrients. Chlorella is excellent.
Some do very well cholestyramine, though. But if you are one who does not, it's just good to consider if that might be the case.
Also be sure there are no additives in it, especially aspartame (that's a neurotoxin). -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Keebler has a good point- as usual. The fact you are taking 2 suck `em up meds, cholestryamine and chlorella, could be too much. ??
I am not a doctor, but if it were me I would, knowing only what you`ve told us, back off the cholestryamine to see how I do.
Like Keebler, the stuff messed me up really badly!!! Took over a year to get me back to my normal crummy self. But, I`ve seen others take it with little to no problems.
It could be some rowdy spirochetes, but my thought is you've had slight problems in legs and back (weakened) and have recently slipped something to have that pain appear that suddenly. Sounds more like an injury than a disease process when it suddenly escalates like that.
I would try eating some bananas and potatoes (potassium) and/or some gator aid, maybe take some calcium/ magnesium, try a good all around mineral product to replace those that could have been zapped, and watch down the road for bartonella.
I`d also mention to your doc what is going on. He/she would know your history much better than we do and may want to change your meds or add something to them. If you`ve got a good one- use them up!
In the meantime, I`d try addressing the back/leg pain so you can get out of pain, no matter the cause.
In other words, when your back is in a lot of pain, you don't need to rush out and get a haircut.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
One more note- I was scared to death of a chiropractor. I was trained in the medical field and was told they would kill me so never go to one. I never questioned it.
When I got to the point I knew I was going to die anyway, literally crawling from the bed to the bathroom a few feet away and bed bound for years and in extreme pain all the time, I made up my mind I was going to try it, even if it killed me. I don`t think anyone could have been more scared. I`d bet the farm on it.
Wow, was I wrong. They not only took away the pain, I could walk, talk, think and do everything better. They taught me leaky gut info- when no one knew anything about it- which I then shared with LLMD`s.
They picked up on a lot of things, and most amazing, once I finally said something about depression (embarrassed to say something), they fixed me instantly. I had cried all the way to the appointment that day (again), and when I left I had the radio blaring and was singing. If someone told me that stupid story I probably wouldn't believe them, but tis true.
Keep in mind they got a bad rap, just like, or even worse than our LLMD`s. It stemmed from ONE woman`s case which was blown up so much it is sickening.
She was feeling bad and went to the chiropractor, who adjusted her and she was better. Later that night she had a stroke. The medical docs jumped at the chance and blamed the stroke on the adjustment. It had nothing to do with it.
But, just like the IDSA ducks blame our LLMD`s for causing us to be worse, they got stuck with that one case and are still paying for it.
Go or not, I am not pushing you at all. Just don`t wait in pain with no relief till you get so bad there isn`t much anyone can do for you. OK?
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
TuTu, that is only if calcium in the body is in excessive amounts, right?
Having little to no calcium and supplementing with it shouldn't deplete the magnesium levels, from what I understand. But, then I don't always understand, do I? HA!
If you know different, please let me know more. Anxious always to learn!!!!
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You say that you " drink lots of water everyday"
Too much can be as dangerous as too little, though. You don't say how much "lots" is.
Something around 3 qts. a day may be fine - spread out, though, no glugging down large amounts all at once -- strain on kidneys. And no ice water, a shock to the system.
but I'd call your doctor and just find out what the amount is they suggest.
With cholestyramine, lots of water is required - certainly more than usual and certainly a good glass with the powder - and that should be well defined as to the exact amount. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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