posted
Dr. C, “Guidelines author says new study shows Lyme disease does not lead to chronic illness nor does it negatively affect a patient's quality of life. A deeper look into the study reveals the message is somewhat misleading. I discuss the study limitations in my latest blog on All Things Lyme.”
NEW STUDY BY GUIDELINES AUTHOR DISMISSES RISK OF CHRONIC LYME DISEASE
There is a growing body of evidence demonstrating the existence of chronic manifestations of Lyme disease. These studies have found that the Borrelia burgdorferi (Bb) infection can cause chronic illness, even when the standard 14- to 21-day antibiotic treatment regime is initiated in the early stages of the disease. [1,2] Additional research has also found that these patients have a high risk of an impaired quality of life. [3,4] by Dr. C, MD, MPH
Physicians use various terms when referring to chronic manifestations of Lyme disease ─ Lyme encephalopathy, Chronic Lyme disease (CLD), Post-Lyme disease syndrome (PLDS), or Post-treatment Lyme disease (PTLD).
The National Institute of Health (NIH) conducted four separate trials, which validated the existence, severity [5,6] and duration [5,6] of chronic manifestations of Lyme disease. A 2001 study by Klempner and colleagues found, “the deficits in physical health status … were equivalent to those observed in patients with congestive heart failure or osteoarthritis.” [4]
Another study by Dr. F, published in Neurology found, “reports of pain were similar to those of post-surgery patients, fatigue was similar to that of patients with multiple sclerosis (MS), and limitations in physical functioning were comparable with those of patients with congestive heart failure.” [3] . . .
-------------------- KarlaL Posts: 694 | From New Lebanon, NY | Registered: Dec 2010
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droid1226
Frequent Contributor (1K+ posts)
Member # 34930
posted
Dr. C should reframe this article on his site because it almost looks as if he supports these ridiculous claims by the very tiring & out of touch ID drs Wormser & Auwaerter.
This sentence is ridiculous lol:
“This study should help suppress concerns that the effects of early Lyme disease are likely to cause lifelong debilitation.” – Dr. Paul Auwaerter
-----This sentence is just like saying "Early brain cancer patients are very unlikely to be negatively affected by the tumor growing in your brain"--------Ok. You are leaving out a MASSIVE segment of the population who did not detect lyme early & encouraging people to not catch something early when it can be more easily treated.
I read this a couple days ago & immediately emailed Wormser. Here's his new email address if anyone wants to send him a message. I, of course, received zero response.
posted
I think we ought to add to these guidelines:
You can only get Lime disease from limes, which are good for you and thus you won't suffer an impaired life.
If you like lemons better, it's your own fault, but you can't get sick from lemons either so your life will not be impaired.
If you like lemon-lime drinks, we assure you you won't get chronic Lemon-Lime, as shown by four studies of various age groups drinking lemon-lime juice and then tested to see if they got chronic Lime, chronic Lemon or chronic Lemon-Lime. They didn't. Relax - what's the problem?
Posts: 13116 | From San Francisco | Registered: May 2006
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droid1226
Frequent Contributor (1K+ posts)
Member # 34930
posted
Yes. Drink Sprite. That's the answer.
It's just amazing that even the fraudulent CDC admits a subset of lyme patients(10-20%) have long term issues. Although they are extremely low on that number, it still goes against what these 2 troll dr's are saying. It's like they are so irrelevant in their own lives/practice, they need to illicit a response of any kind to legitimize their existence.
Why the $%#& are they given a platform in the first place?
posted
And what you do is say that now in doctor offices - do not let them get away with the BS anymore - let them know we know. AND then talk to their staff after the doctor leaves the room in a huff!
It's called Act-Up, just like people did when they were advocating for their lives done in by AIDS. In SF, there were two Act-Up groups. They participated in a rally on the steps of the US capitol, spilling the blood of AIDS patients on the steps. It's time, folks, to say enough.
I do find it helpful to make it personal, when speaking with the doctor, as in saying you, your family, your pets, your friends - everyone can get this. Time to know about it, time to protect - so the message isn't only an angry one that they hear, but also a concerned one that says this is not good for anyone or any animal.
Because that's really how I feel, when I look at my feelings - I don't want to have to be at war with others - I want humanity to figure out how to get through this, like what ground sprays to develop to use to combat the tick problem, etc.
Posts: 13116 | From San Francisco | Registered: May 2006
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