LymeNet Flash: ILADS - anyone with connections?

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»	LymeNet Flash » Questions and Discussion » General Support » ILADS - anyone with connections?

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Topic: ILADS - anyone with connections?

Marz
Frequent Contributor (1K+ posts)
Member # 3446

posted

I saw a new primary care today who I liked and will keep I think as PCP.

She "wanted me to know" that chronic lyme is controversial and I told her that I knew all about that.

She was sympathetic and very thorough--did lots of tests and I see her in two weeks.

So, I was thinking I would bring the ILADS home page printout with me. I've been on their site before, but only for info for me.

So when I got home I checked and I didn't find the page very helpful as something that would draw a skeptical M.D. in.

Maybe I'm missing something that's there. It seems as an MD, you'd have to already have to be a believer to take the time to go for training.

I don't really know what kind of notice, article, image that would be, but maybe someone might be able to suggest this to them?

In the meantime, what would be something I could bring with me to get her thinking?

Posts: 1297 | From USA | Registered: Dec 2002 | IP: Logged |

Notti
LymeNet Contributor
Member # 43843

posted

What about the 'Lyme Disease Basics'?

http://www.ilads.org/lyme/about-lyme.php

That may spike your new doctor's interest.

Notti

Posts: 109 | From The Netherlands | Registered: May 2014 | IP: Logged |

droid1226
Frequent Contributor (1K+ posts)
Member # 34930

posted

I think you should be honest and tell her that people mistake long term lyme so often because they are feeling awful after the initial infection or they had positive antibodies. Sometimes it may be long term lyme and sometimes lyme sets off a series of autoimmune problems in the body which can lead to anything.

I've definitely found the more I push, the less the dr's want to buy in. It's better to plant the seed and let the Dr come to her own conclusions.

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http://www.youtube.com/user/droid1226/videos?view=0&flow=grid

Posts: 1181 | From ohio | Registered: Nov 2011 | IP: Logged |

TNT
Frequent Contributor (1K+ posts)
Member # 42349

posted

It seems like the only ones that are truly open or sympathetic are the ones who've had it themselves.

Maybe infect her with some of your blood on the sly [Big Grin]

Posts: 1308 | From Eastern USA | Registered: Oct 2013 | IP: Logged |

Marz
Frequent Contributor (1K+ posts)
Member # 3446

posted

You know, I just looked at the ILADS site again and the President's message right up there in plain site is excellent!

If it was there yesterday and I'm sure it was, I totally missed it. I was distraught over my PCP visit so I'll blame it on that and my partially functioning brain.

I'm printing it out and hope I have the courage to bring with me next time.

Posts: 1297 | From USA | Registered: Dec 2002 | IP: Logged |

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