LymeNet Flash: LYMEPOLICYWONK: My Speech at Stanford MedX: Patient Powered Research and Lyme

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Topic: LYMEPOLICYWONK: My Speech at Stanford MedX: Patient Powered Research and Lyme

KarlaL
LymeNet Contributor
Member # 29631

posted

LYMEPOLICYWONK: My Speech at Stanford MedX: Patient Powered Research and Lyme

Lorraine Johnson, JD, MBA

https://www.lymedisease.org/lymepolicywonk-my-speech-at-stanford-medx/

Next week, I will be honored to speak at the Stanford MedX conference on Patient Powered Research and Big Data.

http://medicinex.stanford.edu/conf/conference/speaker/520

You can watch it streaming live if you tune in at around 10:30 am PST on Saturday the 26th. Patient powered research and big data are very important for patients with Lyme disease. Patient powered research is research that is conceived by patients, run by patients, and designed to improve patients lives. This type of research has only recently become possible with the rise of big data and the ability of patients to pool their health care data to determine which treatments are most effective and why treatments work for some patients but not others. It is part of the democratization of science. Sign up to register for the streaming live presentation. Follow my tweets using #MedXlyme.

http://medxlive.stanford.edu/medicine-x-global-access-2015/

The LYME POLICY WONK blog is written by Lorraine Johnson, JD, MBA, who is the Chief Executive Officer of LymeDisease.org. You can contact her at [email protected]. On Twitter, follow her @lymepolicywonk.

--------------------
KarlaL

Posts: 694 | From New Lebanon, NY | Registered: Dec 2010 | IP: Logged |

poppy
Frequent Contributor (1K+ posts)
Member # 5355

posted

Yes, patient powered research has got to be big in lyme since the NIH isn't giving us much help in that direction.

Posts: 2888 | From USA | Registered: Mar 2004 | IP: Logged |

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