posted
I very much hope he is going to take on board someone from ILADS to accompany him on his media spree to present robust science in a scientific way, because that is what the powers that be want to see and hear. A lot of other stuff is emotional, anecdotal stories and hear say and that, as much as it might be touching, doesn't change laws and policies and can backfire.
That might sound harsh. But, in my opinion and experience, that's how it is.
This is not the first time we have had 'amazing' news, been on the cusp of progress, only to find it didn't really go anywhere.
I believe JC can help for sure and I am glad he's outspoken, got the money and the 'power' and passion to do so. And I'm sorry for his family. But, I am only concerned that if he doesn't get an expert ILADS medical advisor/chief executive, this can turn into a bull in a china shop scenario.
Posts: 5 | From Lyme Regis, UK | Registered: Aug 2015
| IP: Logged |
Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
I see many videos on Lyme. His interview is the only one that I have forwarded to friends that don't have Lyme.
I think it's a great summary of what can happen to people with Lyme disease. He also offers some good ideas of what can be done. The clip is very brief and to the point.
One of the problems with Lyme is that people don't really know what the solution is. AIDs patients finally made progress when they knew the specific medicine that they wanted, they went to the pharmaceutical company and said "this is what we want".
Posts: 2232 | From USA | Registered: Aug 2009
| IP: Logged |
quote:Originally posted by Haley: One of the problems with Lyme is that people don't really know what the solution is.
True - I think our situation is much more complex than AIDS, which has a known viral cause.
In our case, besides dealing with the illness entities, we usually need to investigate various parameters of health and see where we're at with them.
Like genetic ability to detox, heavy metal load, mold exposure, diet and microbiome status, thyroid status, etc. We benefit from seeing doctors who are comprehensive in their thinking and knowledge.
And if our physiology goes down in so many ways from being sick, like lowered oxygen levels, lowered electromagnetic energy, etc, then we may respond well to various treatment modalities to boost our health again. That may include more stem cell injections in time, to boost the body's immune system.
Someone recently described her trip to Peru and the herbs she took and the frog poison too, to get her health back - it was wild. Also some people are doing bee venom treatment.
I think we're living in a very creative time in the health field as people explore healing options.
Posts: 13171 | From San Francisco | Registered: May 2006
| IP: Logged |
posted
This is a great interview. Lyme is pretty new to my life...well I should say me knowing that I have Lyme is new in my life...I think I have actually had it for years.
It is so scary what we have to go through and all of the contradicting information we are given from various doctors.
And his video makes a very good point that I have been mentioning to everyone. We are certainly not well off, but will do what we need to to get my treatment...what about all of the people who cannot afford even one visit to an LLMD??
Something really needs to be done, hopefully this guy will get somewhere
Posts: 66 | From New York | Registered: Sep 2015
| IP: Logged |
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Lymetoo >>>>>,
Wow,I just watched Mr. Caudwell's interview! Both my paternal grandparents were DX'ed w/ "Parkinson's Disease", which isn't contagious. I've been suspicious for years now, that it was likely Lyme disease.
Grandpa was born in Mareham le fen Lincolnshire England.
Hope that They can finally get recognition and help for Lyme and the various co-infections in Britain now!
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic