posted
We just got back our son's results from the iSpot test and he still has "significant" Lyme, even after nine years of treatment!! Unbelievable, after all the things he has tried! What a horrible nightmare this all is!
Asking for prayers that new treatment will turn the corner and take away his chronic pain, irregular sleep patterns, chronic fatigue and memory problems.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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me
Frequent Contributor (1K+ posts)
Member # 45475
posted
Your son and your family will be in my prayers. I'm so terribly sorry to hear this.
Posts: 1431 | From USA | Registered: Mar 2015
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hiker53
Frequent Contributor (5K+ posts)
Member # 6046
posted
Praying the treatment works and praying for you and your husband that you take one day at a time and find joy in each day.
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8879 | From Illinois | Registered: Aug 2004
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Ann-Ohio
Frequent Contributor (1K+ posts)
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posted
Sending all my best thoughts and wishes….
-------------------- Ann-OH Posts: 1584 | From Ohio | Registered: Aug 2014
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Thank you all so much. Prayers are very much appreciated as we are all very weary and tired of all of this. God is our Anchor and He will continue to see us through this.
"For where two or three gather in My Name, there am I with them." Matthew 18:20
Posts: 8981 | From Illinois | Registered: May 2006
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Prayers for your son's healing and your family!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Thanks, sickofthepain, the treatment application was approved (thank you, dear Lord!) and now we will start on the next treatment as soon as we receive the protocol.
"By His stripes we are healed." Isaiah 53:5
Posts: 8981 | From Illinois | Registered: May 2006
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We got the Cowden Protocol the other day - I just need to re-read all the instructions before starting him on it. I have to figure out where to fit all his supplements in and there are only 24 hours in a day as we all know!
I know this protocol has helped may. Each patient is different, however, so what works for one doesn't necessarily mean it will work for another.
We have wanted to try this for a long time now. Heaven knows we've tried a zillion other things !!
I'm concerned because our son has allergies, so I don't know how he will react, if at all. Praying for no allergic response whatsoever!!
Posts: 8981 | From Illinois | Registered: May 2006
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
It is very difficult to be in the trenches for so long...weary doesn't begin to describe the extent of emotions that can be sapped from a loving parent.
So, I ask the Lord to show you that you can relieve yourself a bit and give the reigns to Him...remember He knows your son's molecular makeup and He knows the beginning into forever and ever. Praying for an amazing outcome and the strength to endure till that amazing outcome materializes.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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Your kind words really touched my heart. My children are my life, my treasure.
Yes, these many years of struggling to find help and trying so many things have taken a tremendous toll on our family. So many things have been lost which will never be re-gained, i.e. childhood, young adulthood, dreams, experiences, etc. It's absolutely heartbreaking!
In the beginning, no one would believe us. It took SIX YEARS just to get a correct diagnosis!! It has all been a learning process, because there was no one to tell us what to do.
Yes, I have given these heavy burdens to the Lord many, many times and continue to ask for strength and healing for my son. I want to hug him so badly - it's been many, many years since I've been able to do this properly because of his chronic pain.
So now we await that "amazing outcome" and continue holding on to the Lord. I believe in miracles, because I am the recipient of one myself!
"Therefore I tell you, whatever you ask for in prayer, believe that you have received it, and it will be yours." Mark 11:24
“Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light.” Matthew 11:28-30
Posts: 8981 | From Illinois | Registered: May 2006
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posted
Prayers for your son and that this will bring him healing. We moms never give up hope for our children. I admire your faith and may God provide all that you need. Take care.
Posts: 194 | From Pa | Registered: Mar 2004
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
Prayers sent for your son
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Lord, I pray for lyme away for all of us and better health and days ahead. Especially for hoping and praying's son. AMEN
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
Very much appreciate the thoughts and prayers, patty7, linky123 and kam. Amen to each and every one of them!
I pray every day for all those ill with Lyme (and any other disease, for that matter!) that God would have mercy and heal everyone.
Posts: 8981 | From Illinois | Registered: May 2006
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posted
My prayers. Have you tried anti-parasitics and anti-wormers. Also herbs like crypto and artemisinin. Garlic, probiotics, infrared sauna.
Posts: 697 | From CA | Registered: Dec 2011
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posted
Thanks mlg. He's taken Artemisinin for Babesiosis along with Mepron (not Cryptolepsis) and has tested negative twice in the past for Babs after treatment. Also has done garlic and infrared sauna (continues to take very good probiotics).
Have looked into anti-parasitics/anti-wormers. Has not used them.
Son will be starting Cowden Protocol. He's had a bad cold, so we are waiting until it subsides.
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