droid1226
Frequent Contributor (1K+ posts)
Member # 34930
posted
A new center opened & takes insurance & also has free counseling specifically for lyme patients.
I know they say "post" and "lingering" as if lyme isn't chronic. For some lyme patients, it's worth it to bite the bullet & call it "post" if insurance pays.
The intention of this center seems good & hopefully sets a precedent for continuing patient-centered care.
dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
Yes, droid. This is a wonderful center. I have been going here while also still seeing my LLMD. It is because of the additional testing they have done that we learned I am making antibodies for borellia miyamotoi.
It has been a very positive move for me in my treatment and care. I have found communication between doctor and patient to be excellent. While totally understanding that Lyme can become chronic, they will also refer you to well respected doctors who are Lyme friendly, to rule out other medical conditions. They also recommend and make referrals for many supportive therapies.
With your permission, they will also communicate with your LLMD and this has benefited me greatly. I was initially afraid of this, but it has turned out to benefit everyone involved. My LLMD has told me that he appreciates the opportunity to discuss care strategies with another lyme literate doctor who knows his patient.
The founder of this clinic has struggled with chronic Lyme herself and she has worked very hard to improve treatment for those of us struggling... I believe that all of the staff here understand the damage that Lyme can cause.
posted
Once these centers realize that taking care of patients should be the number one priority, then more of them will consider helping us!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
dpei. it is a rehab center, what sort of treatments do you get from them? and in what ways have you been helped?
Posts: 1728 | From USA | Registered: May 2011
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
They are very supportive, providing referrals for neuro-psych testing, free supportive counseling, physical therapy, vestibular therapy, and prescriptions to help with sleep and other disturbances caused by Lyme disease.
Patients may be invited to take part in a study being done with transcranial direct current stimulation to determine if it will reduce symptoms of chronic lyme, such as pain, fatigue and memory problems.
They will refer you to specialists to help you rule out other conditions as well. They communicate with your LLMD's if you permit. This has been very helpful to me. Also, I learned that I test positive for borellia miyamotoi as a result of their testing.
Posts: 2386 | From New England | Registered: Aug 2011
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Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
That sounds terrific. Thank you for sharing your experience.
Posts: 1728 | From USA | Registered: May 2011
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
This sounds awesome. I'd seen the article but did not know anyone who had been. I wonder if it would be worth me trying it out.... my main issue now is MG and Lyme and co's have been primarily in remission as far as I can tell for 3 years but some of the symptoms overlap, so that may just be my wishful thinking.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
Wow. I would LOVE to go somewhere like that.
Posts: 1737 | From Virginia | Registered: Aug 2011
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Thanks for sharing. If you need rehab, and most do, and can't travel to this location, you can find a speech therapist and occupational therapist near you that can be very helpful. Usually they take insurance too.
Also, a chiropractic neurologist. Can make a world of difference. Here is a link to their website- doctor locator.
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