I have posted a few times lately but i just don't have much emotional support. I fell sick about 2 years ago after a miscarriage. I put my weird feelings down to hormones after losing the baby, but the symptoms never went away and just progressed over 2 years. I have symptoms now i didn't have 2 months ago, and after many doctors not working out for numerous reasons, i finally have found a new doctor.
I tested positive on igenex for lyme disease, and i also know i have the Homozygous MTHFR mutation. Most of my symptoms are neurological. I am feeling so down at the moment and my health anxiety seems to be getting worse and worse.
My new doctor prescribed me minocycline and azithro together, but i kept getting head pressure with the minocycline so she told me to stop and just do the azithro for now until we speak again in 4 weeks time. For the past week or so i have been getting burning sensations above my lip, crawling sensations on my face, numbness in my face, my face feeling tight, crawling sensation in my hair, tingling in the back of my head and face. It really scares me and i am terrified of what this disease could do to me.
I have gone without treatment now for 2 years and i am worried i will only go downhill. My doctor thinks i have: lyme, bartonella and babesia. Lab tests also show possibilities of mycoplasma and reactivated EBV. I have never gone to a neurologist as i don't have the money for it. I know some say it is a bad idea but i just wanted to go for piece of mind about a few things. I have seen a lot of what other diseases this disease is linked to, some very scary things too. New symptoms always worry me as i don't know what to pinpoint it down to and if it is temporary, or the start of a different much bigger problem.
I also know that with the MTHFR i have it is incredibly hard for my body to detox, and it is also linked to many other diseases. Sometimes i just feel like i am never going to heal, or i will end up with severe cognitive disabilities, or disabled. I know no one can really say much to change my situation, i guess i am just venting.
Posts: 4 | From United States | Registered: Oct 2015
| IP: Logged |
Ann-Ohio
Frequent Contributor (1K+ posts)
Member # 44364
posted
Hope you are doing something about MTHFR - I don;t know a lot about it, but understand that you need to get b vitamins and minerals in balance.
As for the neurologic symptoms, I went through lot of the same ones. Be sure your doctor knows that is happening.
It is a healthy thing to vent, especially here. Lots of good people to help out.
Ann-OH
-------------------- Ann-OH Posts: 1746 | From Ohio | Registered: Aug 2014
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic