posted
I have been fighting chronic lyme for 3 years with my LLMD ILADS Dr-- i questioned my Dr when i began treatment how long till i got better he said lyme is like a marathon hopefully within 2 years.
My siblings think since 3 years have come and gone I should be well and back to work and think I'm milking my pain and brain fog.
Desperatly need to be back at work due to finances-
Extremely frustrated and don't know what to do Sick and tired of being sick and tired
Posts: 22 | From Massachusetts | Registered: Sep 2012
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- LLMD "said lyme is like a marathon hopefully within 2 years."
Not sure what part of "hopefully" your family does not understand.
It seems that many may not want to but do end up judging. And it can be hard to come to terms with reality.
It's quite a task to become properly educated about lyme.
They may not understand ways they might be of help to you [it this is within their character make-up or even within their grasp practically speaking - - not everyone can "be there" for others so keep that in mind - some really can't "do" any of this]
as you determine if your LLMD is the best choice and if there are any parts to your treatment (protocol and self-care, food plan) that need adjusting.
It can take several years, though, or longer. Even then, not everyone automatically has a perfect body.
It occurs to me that your family may not want to be of non-judgmental help. Not sure if you rely on them for finances, lodging, practical matters and, if so, that can be hard.
Try to find other ways to get what you need, where at all possible. And don't lay yourself open for their criticism. A LL therapist / counselor may be best to help you come to terms with your own disappointment, courage for the road ahead
and also work with you on communication skills so that co-dependency issues don't overtake your relationship with family. They need to start seeing you as an intelligent human being.
When we are ill or need help, it can bring up all kinds of off kilter dynamics. But how to stand our ground without pulling the rug out from underneath others? Tricky. A good LL counselor has skills to teach in that regard. -
[ 11-13-2015, 06:16 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
[Especially see Pamela Weintraub's THREE posts here . . . and she also overcame a serious case, herself, so there is hope.]
and, for some who did not do well with antibiotics, even with other Rx in combinations, a rife machine has been very helpful in their getting their lives back:
One reviewer writes: " . . . This is probably one of the best books that explains how to use this theory in improving all kinds of personal relationships. . . ." -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Could you get them to watch the film, "Under Our Skin"? I think it's available for free viewing at www.hulu.com.Posts: 13171 | From San Francisco | Registered: May 2006
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me
Frequent Contributor (1K+ posts)
Member # 45475
posted
I am so sorry you are going through this. I was in the same position for about 8 years, and my family thought u was making everything up.
It took 2 another two years to convince my family I have Lyme, and they believed many "top docs" who said I didn't have Lyme in the meantime.
It wasn't until I started making progress with Lyme treatment that they started to believe that this whole Lyme thing is real. Although I've made progress, I have a long road ahead of me.
I know how painful it is when your family doesn't believe you. If you want to PM me and vent or get your feelings out, I'm here for you.
I agree that "Under Our Skin" is a great resource. I could never get my family to watch it (to this day), but I hope your family will. Fortunately, my family came around. I hope your family does too.
Posts: 1431 | From USA | Registered: Mar 2015
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
So sorry - you are not alone.
My parents came to "help" me once with Lyme/childcare when my husband was out of town and my mom kept yelling at me to get off of the couch and go for a walk!
I definitely agree to give them some articles or movies. I think it can be more convincing to hear it from a neutral source.
Posts: 1737 | From Virginia | Registered: Aug 2011
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
yes, I feel for you. I'm in similar situation with all the people I live with.
"you don't get it til you get it"
sad sorry reality.
I have given up putting a time frame on anything. that seems to help. and if anyone asks I tell them the long end , not the short end of the estimate, just to be on the safe side.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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