Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Idiots just wrote another doozy, just in time to be included in their new guidelines.
TWO weeks of Doxy it is because it cures Lyme disease.
And in 27 YEARS they claim they NEVER saw a case of Lyme encephalopathy or Lyme neuropathy in their Lyme Disease Clinic.
And no “convincing cases” of encephalitis or myelitis either.
Wien Klin Wochenschr. 2016 Jan 14. [Epub ahead of print]
Management approaches for suspected and established Lyme disease used at the Lyme disease diagnostic center.
Wormser GP1, McKenna D2, Nowakowski J3. Author information
1Division of Infectious Diseases, New York Medical College, 40 Sunshine Cottage Road, Skyline Office #2N-C20, 10595, Valhalla, NY, USA. [email protected]. 2Division of Infectious Diseases, New York Medical College, 40 Sunshine Cottage Road, Skyline Office #2N-C20, 10595, Valhalla, NY, USA. [email protected]. 3Division of Infectious Diseases, New York Medical College, 40 Sunshine Cottage Road, Skyline Office #2N-C20, 10595, Valhalla, NY, USA. [email protected].
Abstract
2015 marks the 27th year that the Lyme Disease Diagnostic Center, located in New York State in the United States, has provided care for patients with suspected or established deer tick-transmitted infections.
There are five deer tick-transmitted infectious in this geographic area of which Lyme disease is the most common.
For patients with erythema migrans, we do not obtain any laboratory testing.
However, if the patient is febrile at the time of the visit or reports rigors and high-grade fevers, we consider the possibility of a co-infection and order pertinent laboratory tests.
Our preferred management for Lyme disease-related facial palsy and/or radiculopathy is a 2-week course of doxycycline.
Patients who are hospitalized for Lyme meningitis are usually treated at least initially with ceftriaxone.
We have not seen convincing cases of encephalitis or myelitis solely due to Borrelia burgdorferi infection in the absence of laboratory evidence of concomitant deer tick virus infection (Powassan virus).
We have also never seen Lyme encephalopathy or a diffuse axonal peripheral neuropathy and suggest that these entities are either very rare or nonexistent.
We have found that Lyme disease rarely presents with fever without other objective clinical manifestations.
Prior cases attributed to Lyme disease may have overlooked an asymptomatic erythema migrans skin lesion or the diagnosis may have been based on nonspecific IgM seroreactivity.
More research is needed on the appropriate management and significance of IgG seropositivity in asymptomatic patients who have no history of Lyme disease.
posted
I have difficulty with this claim of never encountering Lyme encephalopathy.
I am 2T positive. I am C6 positive, with significantly elevated C6 values. In fact, more often than not over the last three years, my C6 values have actually risen.
I satisfy the IDSA Guidelines definition of Lyme encephalopathy.
For instance, I have cognitive deficits verified by professional cognitive testing. My serology is consistently positive. I have brain MRI's that demonstrate abnormalities - repeatedly.
I also had a lumber puncture - performed by famous IDSA supporter - where my ELISA registered high-equivocal, but the doctor failed to order a WB or C6 for my spinal tap. They did an AI instead, whose value came in negative (no surprise).
So, even though I satisfy IDSA criteria for NB, I could not get diagnosed by this famous IDSA-type as such.
Accordingly, when I am told that cases of Lyme enceph are non-existent or exceedingly rare, I take it with a grain of salt.
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