posted
If I die in my sleep. I would like an autopsy done of my brain and heart. It will not help me but it might help others get the treatment that is denied to us.
I also assume the brain needs to go to someone who knows what they are looking for like Alan McDonald.
Has anyone looked into what is needed legally to have this done?
I do not have the funds to pay a lawyer so would like to just be able to type it out and sign it.
Posts: 559 | From Lyme Land | Registered: Oct 2015
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
As I understand it, needs to be OK with your family, since they will carry this out presumably. And there is probably a time limit on how quick the arrangements are done. There is more to this than just writing this out and signing it.
They do collect material to analyze at Columbia lyme center, but no apparent hurry about doing it. Not a full autopsy, material collected from the body.
Sorry, that is all I know. You might check with the larger lyme organizations to get their advice. This question gets asked quite a lot.
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
This may help. Thank you for considering a donation. And Poppy is right about having to have your entire family on board with your decision. VERY important.
Even with a declaration to donate hospitals will obey the survivors wishes and if any are different than what you proposed and put in writing, they will honor the other persons wishes. Thought being the survivors can sue them, you can't.
Yes, so much for "honoring your wishes". More explained here and forms to assist you.
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
its hard to do it and expensive unless someone wants it so much they will pick up costs but all has to be done ahead of time organs must be harvested (sorry) quickly a special way and unless your family is very close it will be out of their control if you write out wishes including who and where it goes with lawyer there is a better chance of it happening i tried really hard to get it done on my mom cuz i thought it would help all of us plus grand kids but one brother stopped it if he didnt someone else would have if you happen to be in hospital or nursing home they need to have paperwork i talked to paul duray about this at length and really tried part of the problem is no one has funding for the long haul so if you set up with one and they lose funding it may not happen...maybe by now they are aware of the problem and have a plan i think talking to alan is the best idea but maybe tincups stuff is better i need to do this too but am having too much trouble day to day to get it done if you find an easy way please let me know...let us all know!
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
Noticing on the Columbia info provided by tincup that a positive lyme test is required. That will prevent a lot of people from doing this.
And is that one positive during what might have been a very long illness? As we know, you could have a + but be told that symptoms subsequent to any treatment are now post lyme. In other words, a recent positive, or any positive?
Posts: 2888 | From USA | Registered: Mar 2004
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i feel it should not matter. i just want them to look for the spirochetes to prove that they were not gone.
Posts: 559 | From Lyme Land | Registered: Oct 2015
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Betty Gordon asked that I share this with you all. It concerns her husband and his recent autopsy.
Bless her heart she has pushed hard to get this done so we'd have more information to help all of us along. A great sacrifice and love of those who suffer.
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