-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Thats a good one but still dont know what to do about it i havent had pos test in a long time but my vision gets worse and worse
. I am more and more debulitated by it one eye doc who is not lyme l iterate. Gave me 100 mg doxy. My eyes were immediatly better.
I took it for a yr but when ever i stopped eyes went back to getting worse. After a yr i noticed i was getting more of my lyme sx back in other parts of my body. That scared me so i stopped the doxy
. I cannot find any eye doc that believes its lyme or knows how to help. This is the secind most debilitating sx i have now. Has anyone cured it?
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Jordana
Frequent Contributor (1K+ posts)
Member # 45305
posted
Have you tried abx just right on your eye?
Posts: 2057 | From Florida | Registered: Feb 2015
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
No
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Kayak said... "Has anyone cured it?"
I had a lot of damage done to both eyes before getting treated- almost completely blinded. IV Rocephin halted the deterioration process and improved my vision somewhat.
I am not "cured" of course, and have to take antibiotics (orals- not doxy) when my eye symptoms start getting worse (usually along with other symptoms), but when I do the eye symptoms clear up.
Kayak said... "I cannot find any eye doc that believes its lyme or knows how to help."
A good Lyme eye doc is more rare than a 3-headed seagull.
A regular neuro ophthalmologist will at least run tests where they then may see some problems. They often take Medicare too.
But, and don't think I am comparing you to a dog, but since a dog can't tell us how they feel (unless we have a severe case of Bartonella and think the dog is talking to us), we kind of need to treat the dog and watch for improvements to get answers.
My point- and I had to do this recently while waiting for a neuro eye doc appointment after seeing a total idiot regular eye doc- is you may need to go ahead and treat and then watch for improvements.
That's the bottom line. We may not know what causes our symptoms sometimes, which you know more than most, so we just end up trying to get rid of it.
At least a neuro eye doc can give you basic answers and say "yes, today I can't see any infections in your eyes". And they can treat if they do suspect Lyme and/or other infections.
I am not sure where you are located right now, but I do know an eye doc that may be of assistance if you are still in my area. Email me if you want the name and contact info.
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
TuTu, just read the article you shared. Thank you! Good one! Seems I have all of the symptoms and more, and they did a good job describing them.
IF I get some energy and time I want to provide some tips and solutions for each of the symptoms, in other words, things eye doctors don't know and by experimenting and working with others I've learned.
posted
I definitely had a lot of the issues the article mentions. Light sensitivity, height instability - and image delay was probably the most disturbing.
After I got my wisdom teeth out in my early 20s (tick bite when I was in my early teens) I started getting visual afterimages behind moving objects. It was extremely distressing but the neurologists had no clue what was causing it.
This was one symptom that I managed to get rid of completely after two years of essential oils. I'd apply them, herx, and notice week by week that the trails behind objects got ever so shorter. This was my motivation to continue. Eventually the trails vanished and are no longer noticeable. My light sensitivity and strange depth perception issues went away too.
I think it was more of a visual part of the brain issue than a result of Lyme infecting the eyes directly though. The MRIs done did show brain lesions.
Posts: 131 | From CO | Registered: Jul 2015
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posted
Just to go on record in this eye thread, I did see a neuro-opthalmologist who could find nothing wrong with my eyes even though he had to anesthetize my eyes for me to be able to look at light.
Then my chiropractor suggested the next day that I try drinking mangosteen juice, an anti-inflammatory juice with 43 xanthone compounds that neutralize all the free radicals produced by the illness inflammation.
It worked in 24 hours time - no more floaters, light sensitivity, eye muscle pain and beginning blurriness.
I still drink an ounce a day. I like the Mango-Xan version as it's a tart juice mixture. Found in health food stores and online.
We're all different and respond differently to everything. This works for me.
Posts: 13171 | From San Francisco | Registered: May 2006
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MADDOG
Frequent Contributor (1K+ posts)
Member # 18
posted
I have trifocals,with prisims I was close to legally blind one time ABX helped a lot.
Up close i just have a terrible time of it.
I use sometimes 2 pares of glasses ,one in front of the other good thing i have a big nose.
MADDOG Anyone seen my fire hydrant???
Posts: 4084 | From Ohio | Registered: Oct 2000
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