-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
Hello, I hope it is the place to post this here....
I have had some reactions to my chiropractic adjustments. not al lthe same in intensity, but similar symptoms for sure.
BP up and down, dizzy, confusion... feeling "bad", etc.
once went to ER after prodding from my gp and others concerned- Nothing was found after CT and other tests...
the last one was pretty bad and lasted an hour then went away.
I just had apt. with my MCAS specialist and he thinks these are MCAS attacks and taking extra H1, H2 will help during the attack.
I am not 100% sold on that, but I do know for fact that I do get mast cell attacks from changing positions in bed or on sofa, etc.
This speicalst is tryin gto get my 3 positive tests for MCAS before moving on to medication (besides the H1, H2 which I take )
Any opinions here on this???
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
Great info!
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6918 | From Columbus, GA | Registered: Jul 2004
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
that's crazy about the nicotine!
my son tried to quit smoking- he uses those vape types and he said he feels better from smoking. I wonder if it's the mast cell help!???
seems crazy, but I always try and realize we should never be surprised over anything any more, ha.
son was inutero when I got lyme. he does nothing to help himself, now almost 23. he says denial is the best medicine.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
TuTu do you mean mast cell issues run in families?
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6918 | From Columbus, GA | Registered: Jul 2004
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posted
Yes, it can. Have you read Dr Afrin's book? Never Bet Against Occam?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
just got mast cell test back- liver biopsy.
dr. hasn't called and im getting antsy since it s now the weekend and I hate sitting not knowing. can't find anything on line about this .
Concerning mast cells this is what biopsy says:
"Very rare CD117 positive cells are identified in portal tracts, which appear negative for CD25."
Anyone know if "very rare" means rare to be there, or rare as in amount of numbers?
my last mast CD117 biopsy they actually counted and told us the amount of mast cells they found in the area. is that because that older one was stomach and this is liver?
or does this mean something entirely different than what I am thinking?
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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and he said he feels better from smoking.
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