LymeNet Flash: Misdiagnosed ALS?

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

Topic Closed

This topic has been moved to Medical Questions.

»	LymeNet Flash » Questions and Discussion » General Support » Misdiagnosed ALS?

Author

Topic: Misdiagnosed ALS?

Oklast
Junior Member
Member # 48562

posted

Has anyone currently on this messageboard ever heard of someone being diagnosed with ALS by neurologists, to then seek out an LLMD, have the Igenex test done, and then be labeled with Lyme?

I was diagnosed with ALS in Aug 2013 & Lyme in March 2014 by an LLMD. Igenex test positive IGG bands 23 IND, 31 IND, 39 IND, 41+++, 58++
IGM Bands 18+, 23 IND, 31 IND, 39 IND, 41+, 56+, 83 IND

My Issues: Muscle tremors, fatigue, loss of some/most of my strength in my left shoulders/triceps, & hand. It is starting to progress to my left shoulder/triceps.

I'm still working & trying to figure this thing out and looking for answers,

I have had a picc line, done herbals, lots of antibiotics, HBOT, Colloidal Silver, Chelation, Vit C IV's, etc.

My LLMD left the practice and I'm back at square one.

Thoughts...

Antibiotics or no?

Herbals Only or no?

HBOT Hard or soft?

ALS or Lyme?

Curious and looking for input.

Thanks.

Oklast

Posts: 8 | From SWFLA | Registered: Aug 2016 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

For sure!! There's a retired LLMD who has this happen to him.

I'll move this to Medical Questions for you.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96223 | From Texas | Registered: Feb 2001 | IP: Logged |

Topic Closed

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/