TNT
Frequent Contributor (1K+ posts)
Member # 42349
posted
Great find, Jordana!
But, I find it criminal that they say this:
"...approximately 20% of them experienced side effects such as symptoms of fatigue, and pain/aches in the joints and/or muscles lasting up to even 6 months [Fallon et al. 2008; Johnson et al. 2014; Klempner et al. 2013; Theophilus et al. 2015]."
Yeah, of course! Your studies only lasted 6 months I'm sure! CONTINUE YOUR STUDIES!
20% of them experienced side effects....FOR THE REST OF THEIR LIVES! It's called a PERSISTENT RELAPSING INFECTION!
DUH!!!
Posts: 1308 | From Eastern USA | Registered: Oct 2013
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TNT
Frequent Contributor (1K+ posts)
Member # 42349
posted
Of course the criminals are the ones doing the "six-month studies" that this paper is referencing. Thankfully, the authors of this paper are looking at things more objectively.
"Although the mechanism associated with this condition in patients, which is referred to as ‘Post-Treatment Lyme Disease Syndrome (PTLDS)’ or ‘chronic Lyme disease’, is not well explained, it is suggested that one of the reasons is the failure of the host immune system to clear infection from either the persistent forms of Borrelia sp. or their antigens [Berndtson, 2013; Diterich et al. 2003; Theophilus et al. 2015]."
I emphasized the important phrase with bold lettering.
Posts: 1308 | From Eastern USA | Registered: Oct 2013
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posted
"Failure of the host immune system to clear infection..." that is insulting. I have never met anyone who got better from Lyme or any tick-bourne illness with just 3 weeks of antibiotics.
They should rephrase that to "inadequate treatment"
The approximately 20% has got to be wrong. There are so many of us who take the antibiotics for 3 weeks, expect to be better, get told it's all in our heads, and move on.
Posts: 49 | From CO | Registered: May 2016
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Jordana
Frequent Contributor (1K+ posts)
Member # 45305
posted
Ha ha it just occurred to me that a person in that reference is the LLMD that fired me.
I'm sure there are people who believe they got better in three weeks. A lot of suggestion and a lot of stonewalling from the doctors would get them into this state where they'd tell their friends - yeah i had lyme and it left me with this or that lingering problem.
But otherwise I thought it was pretty cool someone had a paper published in a ranked journal talking about grapefruit seed extract for Lyme. It bothers me though that they listed stevia since it can't get past the GI tract.
It's also kind of weird that there aren't more papers like this out there.
Posts: 2057 | From Florida | Registered: Feb 2015
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quote:Originally posted by TNT: [/b] or their antigens [Berndtson, 2013; Diterich et al. 2003; Theophilus et al. 2015]."
- Jordana? One of these was your LLMD?
To my knowledge none of them are LLMD's.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Jordana
Frequent Contributor (1K+ posts)
Member # 45305
posted
Yes one of them was my LLMD. Actually that was why I was so confident with him because he had published. But in our area there are a lot of people who left him since he's really more a researcher than a doc.
Posts: 2057 | From Florida | Registered: Feb 2015
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