posted
I am almost 50, I am as.bitten by a tick in second grade. I have had Lyme symptoms my whole life. I was diagnosed when I was 42. I was very ill by then. I have been seeing a doc in DC who saved my life. A year and a half ago I started to finally come out of it somewhat. After being bedridden for two and a half years I thought this is great. 8 months ago I decided to stop treatment. My doctor just found out this past November. Needless to say they were not happy. I have slowly been feeling more and more Lymie. I have been having a lot of days I need to do nothing but rest in bed. My spine feels like it is on fire. All my joints ache. Nothing seems to help the pain which is typical for Lyme right? Oh did I mention I have six kids at home? It's not so easy to drop off responsibilities. I feel very guilty that my family is doing without me again . I hate Lyme disease. I don't know if I have the strength to do this . I known I am not going all the way back to being bedridden but this sucks. I don't know what to do! I don't know what supplements to take. I feel lik my doc is just following a protocol and not looking at me personally. So I am reluctant to go back. I need some help, some answers and some support from people who understands. My husband is supportive but doesn't fully mean understand where I am at.
Posts: 41 | From Akron, Ohio | Registered: Jan 2010
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Breaking up the above post so all can read it:
I am almost 50, I am as.bitten by a tick in second grade. I have had Lyme symptoms my whole life. I was diagnosed when I was 42.
I was very ill by then. I have been seeing a doc in DC who saved my life. A year and a half ago I started to finally come out of it somewhat. After being bedridden for two and a half years I thought this is great.
8 months ago I decided to stop treatment. My doctor just found out this past November. Needless to say they were not happy.
I have slowly been feeling more and more Lymie. I have been having a lot of days I need to do nothing but rest in bed.
My spine feels like it is on fire. All my joints ache. Nothing seems to help the pain which is typical for Lyme right? Oh did I mention I have six kids at home?
It's not so easy to drop off responsibilities. I feel very guilty that my family is doing without me again .
I hate Lyme disease. I don't know if I have the strength to do this . I known I am not going all the way back to being bedridden but this sucks.
I don't know what to do! I don't know what supplements to take. I feel lik my doc is just following a protocol and not looking at me personally. So I am reluctant to go back.
I need some help, some answers and some support from people who understands. My husband is supportive but doesn't fully mean understand where I am at.
Posts: 9931 | From Maryland | Registered: Dec 2007
| IP: Logged |
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I'll bet I can guess what doctor you are seeing based on your statement about him. (I am local to D.C. and know all the lyme docs in the area.)
My suggestion is to switch to a lyme specialist who takes a different approach. The doc you are seeing has not been able to cure you.
The doc I suggest is not far from D.C. Let me know if you want the name and lots of info about him. He follows the Burrascano protocol when it comes to antibiotics. So, you will NOT be pulsing the antibiotics, and you will be on more than one at a time.
You can do telephone appointments after first in-person appointment, so you only have to travel to him once every 3 months.
People from Pittsburgh and Ohio come to see him as well as folks from Ontario, NY, Florida, Texas, New Mexico, etc. Everyone likes him.
You can get in quickly also.
If you stop treatment before you have conquered these diseases, you will just continue to regress. Don't want that to happen to you.
I got rid of lyme, babs, and bart nearly 12 years ago now. I stick around LymeNet just to help folks find the good doctors. The doc is the key to getting rid of this horrendous disease.
Posts: 9931 | From Maryland | Registered: Dec 2007
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