TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
It's been over 10 days and no posts from her. Her last post told us the agony she was in.
Bonnie, I am worried about you! Please write something!!! I can't even find the post that told what you were suffering. I wanted to answer it with some ideas that might help.
It seems that you feel so much better when you get an IVIG treatment. Is there any way you could get these every 2 weeks instead of once per month? I hope so!
I am thinking of you!
Posts: 9931 | From Maryland | Registered: Dec 2007
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Hey TF, I m here. So kind of you to check on me.
I have posted but I end up deleting after I reread it because I sound like a colossal whiner. Broken record.
Have had 2 good days out of the past 34. Good days meaning I wasn't an inconsolable, crying, pain riddled wreck.
2 recent tick bites lead to my demise.
I m not searching for a magic bullet. I know it's a multifaceted approach.
I want an infared biomat. I want oxygen therapy. I want use of mhbot. I want IV antibiotics. I want IV vitamin C, magnesium, and glutathione.
Lyme sufferers simply can not afford the best treatments available.
I m finishing up 7 months of orals. This last relapse was epic. Riding the storm out, hoping for better days.
Stay the course, keep treating. Wishing everyone good health !
Posts: 2968 | From Florida | Registered: Nov 2016
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I really like the idea of you getting IV antibiotics and IV vit C, mag, and glut. I think this would be just grand!
Is there anything standing in the way of this happening? funds? doctor? I'd like to know. Then, I will pray.
Posts: 9931 | From Maryland | Registered: Dec 2007
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Lyme is the Cadillac of disease.
I can't afford a Cadillac.
Posts: 2968 | From Florida | Registered: Nov 2016
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
HEY! No crawling off or hiding in a deep dark hole somewhere BbA.
We miss you and need you here!
And I am positive if you look closely, you'll see more wine here than just about anywhere else on the planet.
So go ahead and wine! It's good for you!
Heck, keep it up and my bet is someone will come along and offer you some cheese to go with it.
posted
I hope today is a better day for you Bonnie! No shame in sharing the truth of your situation and feelings, we all need to vent sometime and there's no better compassion and understanding than here on Lymenet.
Lyme is definitely a Cadillac with leather seats, and Morgellons is like an exotic Italian sports car with only two skilled mechanics in North America.
Sending warm hugs, if you ever need to talk send me a pm!
Jory
Posts: 289 | From Montreal, Canada | Registered: Mar 2017
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Thanks for all the well wishes from my human guardian angels. You know who are are !
Getting better
Posts: 2968 | From Florida | Registered: Nov 2016
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