posted
Well, after a long (6 year?) remission and break from treatment, I relapsed and I'm pretty severely ill again.
Maybe I'll get into the details in another post if folks are curious, but for now my question is: What's new? It doesn't seem like the overall landscape of the politics and mystery of this illness has changed much in the time that I've been away.
Some new things I've found:
- There was that lawsuit against the IDSA, which seems like a pretty big deal. (Although I can't find much in the way of updates on it.)
- Dr H (seriously, he published a book, why can't I write his full name...) published a new book containing some new treatment protocols, like using Dapsone for persister bacteria.
What else have I missed?
Posts: 340 | From san francisco, ca | Registered: Nov 2010
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hiker53
Frequent Contributor (5K+ posts)
Member # 6046
posted
Sorry you have relapsed. But welcome back.
I don't think a lot is new on treatments because each LLMD seems to have a different approach.
Brussels has some good alternative ideas she has posted and uses.
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8878 | From Illinois | Registered: Aug 2004
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
Welcome back! I'm out of the treatment loop since early 2007. Think that was the last time I was treated. Wish I could help out but I'm sure there's others here that have had recent treatment.
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6137 | From Columbus, GA | Registered: Jul 2004
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posted
There's a national TBI task force now that's been meeting in Wash DC to come up with some national parameters on dealing with Lyme.
Posts: 13116 | From San Francisco | Registered: May 2006
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