posted
Hello. I'm from Massachusetts. Went to a LLMD for the very first time yesterday with my boyfriend (who helped me get in, such an amazing man, he is on this forum as well)
Wont know any test results until my follow up on June 5, unfortunately. She redid my my agene cd57, ANA, mycoplasmic pneumonia, HH6, EBV, CMV, babesia, bartenella, Immunoblot.
I am currently on a strict no sugzr, no dairy and gluten free diet.
ALOT has gone on. It's overwhelming. I'm tired. I'm burnt out. I am 34 and a lot of this cooky stuff started around middle school in my early teen years. I will leave this intro to that.
Any questions, comments and or suggestions please feel free to reach out to me to discuss further, I appreciate and look forward it! Thank you
(breaking up the post for easier reading for many here)
posted
hey Kristyn glad you found the site welcome keep the faith and just remember you will have sugar withdrawals bet a no sugar approach to lyme disease is a great start
-------------------- LSG Scott Posts: 513 | From Boston, Cape Cod, Mass | Registered: Aug 2009
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Welcome to Lymenet Kristyn We are all in this together 💚
Tip; Please utilize lymenet's 'search' function located in the middle of the top page, under 'Create a Poll'. Such valuable info posted by fellow Lyme patient's own experiences dealing with this debilitating disease. And Lymenet is always open, we never close. (Insomnia is huge with this community)
Posts: 2977 | From Florida | Registered: Nov 2016
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posted
Hi - welcome to Lymenet, on this, our May Lyme Disease World Awareness Day!
I broke up your post - it's easier for many here to just read a couple lines at a time.
Glad you figured it out - we hear you on how tiring it's been to go from teen years to now.
The good news is, you'll have a chance with your LLMD to figure out how to treat, and then you'll gradually start to feel better.
In the meantime, I echo what Bonnie is saying here - you can look up any questions you have by typing a word or phrase into the Search function bar, and archived threads will come up. Just know we're all different re what we have and what works for us.
You can find your state support groups listed with Support Groups at the upper left. I strongly suggest you go to some group/groups. They can help you orient.
Posts: 13116 | From San Francisco | Registered: May 2006
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
Welcome to Lymenet Kristyn! Glad you found us here! This is a great place to start your journey back to good health and wellness!
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6138 | From Columbus, GA | Registered: Jul 2004
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posted
Hey Robin, ahh yes I noticed that thank you! I'll remember that for the next post.
Posts: 597 | From Massachusetts | Registered: Mar 2019
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Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.
Also read "Cure Unknown" by Pamela Weintraub. View "Under Our Skin" and "Under Our Skin2: Emergence" DVDs. Check your local library or buy them used online.
Posts: 8981 | From Illinois | Registered: May 2006
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