LymeNet Flash: Not an accurate measure of pain

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»	LymeNet Flash » Questions and Discussion » General Support » Not an accurate measure of pain

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Topic: Not an accurate measure of pain

Ann-Ohio
Frequent Contributor (1K+ posts)
Member # 44364

posted

I am always discouraged, disgusted, and pained when asked this at nearly every doctor's visit. Or shown the emojis !

At least this doc recognizes how difficult it is to rate pain this way.

https://www.lymedisease.org/exasperated-zero-to-10-pain-scale/

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Ann-OH

Posts: 1748 | From Ohio | Registered: Aug 2014 | IP: Logged |

hiker53
Moderator
Member # 6046

posted

I know when I was in physical therapy and the therapist would ask my pain level I had a hard time answering.

And some people tolerate pain well and others not so well.

But medicine is always evolving.

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

Posts: 10220 | From Illinois | Registered: Aug 2004 | IP: Logged |

daisys
LymeNet Contributor
Member # 11802

posted

This is most useful for me. I look back on what I have been doing the last few days, or week.

I feel it's pretty accurate, even when it's pain that is affecting my daily life.

If I know I'm going to be asked to gauge pain or fatigue, I intend to bring a copy of this.

Quality of Life Scale (measure of function)

0.Non-functioning
Stay in bed all day.
Feel helpless and hopeless about life.

1. Stay in bed at least half the day.
Have no contact with outside world.

2. Get out of bed but don't get dressed.
Stay home all day.

3. Get dressed in the morning.
Minimal activities at home.
Contact with friends via email and phone.

4. Struggle but fulfill daily home responsibilities.
No outside activities
Not able to work/volunteer

5. Do simple chores around the house.
Minimal activities outside of home 2 days a week.

6. Work/volunteer limited hours
take part in limited social activities on weekends

7. Work/volunteer for a few hours daily.
Can be active at least 5 hours a day.
Can make plans to do simple activities on weekends.

8. Work/volunteer for at least 6 hours daily.
Have energy to make plans for one evening social activity during the week
Active on weekends.

9.Work/volunteer/be active 8 hours daily
Take part in family life.
Outside social activities limited.

10. Go to work/volunteer each day.
Normal daily activities each day.
Have a normal social life outside of work.
Take an active part in family life.

Posts: 563 | From New Mexico, USA | Registered: May 2007 | IP: Logged |

Ann-Ohio
Frequent Contributor (1K+ posts)
Member # 44364

posted

That is great, diasys!
I am definitely going to print that out!

--------------------
Ann-OH

Posts: 1748 | From Ohio | Registered: Aug 2014 | IP: Logged |

mlg
LymeNet Contributor
Member # 35383

posted

Thanks Diasys!

Posts: 722 | From CA | Registered: Dec 2011 | IP: Logged |

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