I'm new here. Before I posted anything I wanted to read the posts from ya all and the the feel of it. Didn't expect I would have to learn a new lingo here. .
My question is how many off you recall being bitten by a tick and/or a rash?
I have soooooooo many of the symptoms but I don't recall every being bitten or a rash. Not to say I didn't see a rash, lets just say I was occupied in my 20's where I very well could have ignored it so to speak.
thx, D'Ann
[This message has been edited by DForbes (edited 15 July 2002).]
[This message has been edited by DForbes (edited 15 July 2002).]
posted
I remember both. Hubby removed the tick incorrectly. A week later I got the rash but had no idea what it was. It didn't hurt so I just ignored it. 3 weeks later I got sick, but the rash was gone by then so I don't think the doc believed me.
DT
Posts: 1044 | From Missouri, USA | Registered: Apr 2001
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PROV2001
Unregistered
posted
I don't know of having had a tick bite and I had no rash or flu-like symptoms.
But I do know that I started to have severe fatigue (which soon put me to bed for four and a half months...followed by years of illness)...within 36-48 hours after walking through some tall grass...wearing shorts and bare feet in sandals (this was 1988)...to watch deer grazing in a field. I went to see the deer and it was downhill from there.
Monica
Frequent Contributor (1K+ posts)
Member # 224
posted
Don't recall bite. Don't recall rash.
HOWEVER, since I was always in the garden and being bitten and breaking out in rashes I should just say I don't remember a deer tick bite nor a bulls eye rash.
Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000
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posted
Nope, unaware seeing any ticks on me to get a tick bite...my dog did, but not me..
Never saw a rash either...
Did get a flu like illness...but thought I had the flu...
Living in Chicago, I didn't really know about Lyme disease...actually thought at the time only dogs could possibly get it, not humans...Oh I was soooo wrong...
Unfortunatly...docs around here seem to also think Lyme doesn't exist and that's why it took so long to get diagnosed!!..especially without the "evidence" of a tick bite ot rash!!
Just as a side note...along with no tick bite or rash...I don't seem to be herxing with treatment either.but I still have lyme and responded to abx (at least the IV ones)
kira
Posts: 802 | From Chicago suburbs, Illinois | Registered: Jun 2002
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posted
Not initially. Had flu symptoms; body ache symptoms and depression on and off for more than a year THEN I got bit and almost immediately starting having balance problems (walking into walls) brain fog problems (I actually burned my house down) was able to confirm what apparently had been going on for some time. Unfortunately it was late stage at that time.
Posts: 101 | From Myrtle Beach South Carolina | Registered: Jul 2002
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rosesisland2000
Frequent Contributor (5K+ posts)
Member # 2001
posted
Maybe the better poll would be to ask for the people who do NOT remember being biten.
I've been had tick bites all my life, but never remember associating it with flu-like symptoms or a rash. I've had rashes and the "flu", but never associated it with a tick bite. Never even heard of Lyme Disease until the year 2000.
I would think that most people with recent bites and diagnosis would be the ones who remember the "rash". And, those who have tried to find out what was wrong with them for years, wouldn't remember.
[This message has been edited by rosesisland2000 (edited 15 July 2002).]
posted
Hi and welcome to lymenet. This is a great place for answers and support not to mention a lot of laughs!! I did not get a tick off, but I did have a bite and thought it was a brown recluse bite. I got very sick and the first doctor asked about a tick but decided it must be a spider bite when I said I didn't get a tick off. A week later, I had the bullseye and was treated for 2 weeks which now I know is not long enough. I have a call into a doctor right now that I think will work with a llmd.
------------------ Lyme Buddy
Posts: 287 | From Fairfield Bay, AR USA | Registered: Apr 2002
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posted
I did have a rash, on my calf. I was itching and looked down and 50-200 hard raised pimples very pink were present. I thugh it was poison ivy or something. It lasted for about two weeks, even kinda left a scar. Started feeling bad about that time and the pcr 1 year later was the proof.
quote:Originally posted by DForbes: Hello Everyone,
I'm new here. Before I posted anything I wanted to read the posts from ya all and the the feel of it. Didn't expect I would have to learn a new lingo here. .
My question is how many off you recall being bitten by a tick and/or a rash?
I have soooooooo many of the symptoms but I don't recall every being bitten or a rash. Not to say I didn't see a rash, lets just say I was occupied in my 20's where I very well could have ignored it so to speak.
thx, D'Ann
[This message has been edited by DForbes (edited 15 July 2002).]
[This message has been edited by DForbes (edited 15 July 2002).]
Posts: 327 | From Tampa.Florida,usa | Registered: Jun 2002
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ConnieMc
Frequent Contributor (1K+ posts)
Member # 191
posted
I had a rash, although it was small. Was at the doc's office about something totally unrelated, and asked about it. She said no Lyme in NC, but to be safe, prescribed 200 mg doxy for 3 weeks. Went on with life, felt fine, etc. But several months later went downhill slowly, and progressed to the point that I was finally almost bedridden with symptoms. Doc did bloodwork, contined doing poorly, mentioned the tick bites 3 TIMES (!!) but was told no Lyme in NC. My mistake was believing this and I did nothing further after my CFS diagnosis came. A full year after bites, someone said I should check out Lyme Disease. Well, I did, and had 2/3 of the symptoms on the list. And not only that, it took me 1 1/2 years more to find a doc to help. So being I went 2 1/2 years without proper treatment, who knows where this is headed. I tried heavy duty orals for over a year, and am now on IVs. I am committed to geting info out to anyone I can here in NC. What a pity docs here don't know the consequences to an undiagnosed, untreated person.
Sorry to elaborate - but just in one of my phases where I feel the need to get on my soapbox and vent a little!!!
Katydid
Frequent Contributor (1K+ posts)
Member # 1128
posted
I don't remember the tick bite OR the initial rash if I even had one.
A few months after I moved from a tick-infested and Lyme-endemic area to the desert, I developed bullseye rashes. Not just one, but several large bullseye rashes.
My LLMD had me go through numerous photos (and pick the one that most looked like mine. Just like a photo lineup for criminals! When I pointed to the "suspect", he told me that was the point when the disease disseminated throughout my system.
So, it is possible to not remember the bite because the ticks can be so tiny -- and you may never develop the "classic" rash. So many people don't. But you may develop a rash much later.
Posts: 1745 | From El Paso, Texas | Registered: May 2001
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posted
Hi D, Welcome to Lymenet. I don't remember a bite, rash, or flu symptoms. Like you I was probably so occupied I wouldn't have noticed anyway. In hindsight I've had this about 15 years.
I did get a perfect secondary EM rash when I started heavy abx.
If you have any questions feel free to ask. None are too simple. I'll be happy to help in whatever way I can.
posted
I had a huge red rash and thought it was a spider bite...couldn't afford the doc, didn't have insurance..biggest mistake of my life! That was in 94...
Posts: 364 | From Chicago, Il USA | Registered: Apr 2002
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ArtistDi
Frequent Contributor (1K+ posts)
Member # 2297
posted
hey D'Ann, so happy you logged on. I knew that you could find some answers here. I don't recall a tick bite and never had a bull's eye rash. I have strange pinpoint rashes, however, a year and a half after symptoms first started. --Diane
Posts: 1572 | From Hatfield, MA, USA | Registered: Mar 2002
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posted
Never saw the tick(s), but when 3 bug bite looking things started throwing off widening circles, and I had mildly flu-like symptoms, I decided to "look it up on-line". stumbled upon this very Lymenet (yay) and saw a picture of my condition.
I had just been visiting Maryland, a notoriuosly tick-lish state, hiking in deep woods. But now I know we have plenty enough Lyme to go around here in Texas. Nevertheless, because of the "bite sites" preceding the rashes, I believe I got it then and there.
Posts: 424 | From Houston TX | Registered: Jun 2002
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posted
I think I am one of the rare ones. I remember the bite, the rash and the flu like symptoms. Doc said it was an allergic reaction. Four years later, a lot of doctors and a chance test, I now know I have Lyme.
I remember the day...August 12, 2000. A tick attached to my leg, and I had it removed.
I didn't give the damm thing a chance to give me a ring of horror. I went on antibiotics right away. The lesson here though is that it wasn't a strong enough dose. (200 mg doxycycline)
PaintedRabbit
------------------
Posts: 937 | From Seattle, Washington | Registered: Mar 2002
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momtoeight
Frequent Contributor (1K+ posts)
Member # 2215
posted
I remember the bite(found the tick), the bullseye that followed a few days later, the flu symptoms, the paralyzed arm, and the rash(some two weeks later) that then covered most of my thighs and arms(and is still there), from the tick bite that I got June 22, 2001. I still have the bite scar!
I also remember many other bites through the years, includin this year, that I did not see or remember a rash or flu symptoms!
I am quite sure that I have had LD and coinfections for many years now!
Posts: 2344 | From middle of nowhere | Registered: Feb 2002
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DForbes
Unregistered
posted
WOW! I'm thrilled with all the replies to the poll. I wanted to thank you all for responding. It is nice to hear everybodies stories and have some answers. I don't feel so alone anymore. Thanks again.
D'Ann
[This message has been edited by DForbes (edited 16 July 2002).]
quote:Originally posted by ConnieMc: I had a rash, although it was small. Was at the doc's office about something totally unrelated, and asked about it. She said no Lyme in NC, but to be safe, prescribed 200 mg doxy for 3 weeks. Went on with life, felt fine, etc. But several months later went downhill slowly, and progressed to the point that I was finally almost bedridden with symptoms. Doc did bloodwork, contined doing poorly, mentioned the tick bites 3 TIMES (!!) but was told no Lyme in NC. My mistake was believing this and I did nothing further after my CFS diagnosis came. A full year after bites, someone said I should check out Lyme Disease. Well, I did, and had 2/3 of the symptoms on the list. And not only that, it took me 1 1/2 years more to find a doc to help. So being I went 2 1/2 years without proper treatment, who knows where this is headed. I tried heavy duty orals for over a year, and am now on IVs. I am committed to geting info out to anyone I can here in NC. What a pity docs here don't know the consequences to an undiagnosed, untreated person.
Sorry to elaborate - but just in one of my phases where I feel the need to get on my soapbox and vent a little!!!
Connie in NC
Hey Connie, Your story sounds alot like mine. Im In central NC. Got a tick off my arm Sunday July 7th. The bite appeared to get better. Later in the week I noticed a red patch around it. Just kinda brushed it off and ignored it. This past Sunday i notice the "bulls eye". Rushed to the doctor yesterday and was perscribed Doxy for 20 days. The doctor told me lyme disease wasnt common in NC but because of the "bulls eye" he just wanted to treat it as such. I have been very weak/tired. I seem to have memory loss which I forgot to mention to the doctor. Just forgetting simple things and having trouble figuring out things. Hands/feet tingling. Did have a fever but has gone away since starting the antibiotic. I am very concerned about long term complications. Hopefully this antibiotic takes care of it.
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
For new folks who MIGHT be interested.... Posts: 20353 | From The Moon | Registered: Jun 2004
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
I have been bitten probaly at least fifty times and 10 or so that I actually had to dig out. ps dont let wife do this they have a tendency to dig a pretty good size crator. hahahahaha oh and I have never gotten a rash or bullseye.
[This message has been edited by treepatrol (edited 02 July 2003).]
Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
HAHA TREEPATROL...WIVES DO HAVE A TENDENCY TO GET THEIR 'DIGS' IN OCCASIONALLY!! MY HUBBY WAS DX WITH ALS IN JANUARY AND AS OUR JOURNEY OVER THE PAST FEW MONTHS HAS BEEN SOMEWHAT HOPELESS WE RAN ACROSS SOME INFO REGARDING LYME. IT WASNT UNTIL THEN THAT WE REALIZED THAT THE RECURRING RASH HE GETS ON HIS 'BACKSIDE' (WHICH HE HAS HAD GOING ON 5 YEARS NOW) COULD VERY WELL BE SOMETHING WORTH LOOKING INTO. 2 WEEKS AGO HE HAD THE TESTING DONE (ELISA AND WESTERN BLOT) AND THEY CAME BACK POSITIVE. AGAIN, THINKING THIS WAS A LITTLE ODD WE WENT TO ANOTHER PLACE AND HAD THE TESTS RUN AGAIN AND AGAIN THEY WERE RETURNED POSITIVE. WE HAVE BEEN TOLD THAT LYME IS URBAN LEGEND AND TO GIVE UP THE NONSENSE AND THE FALSE HOPE THAT HE COULD HAVE BEEN MISDIAGNOSED BUT WE HAVE CHOSEN TO FOLLOW UP ON IT ANYWAY. GEESH, IF HE DOES HAVE ALS, HIS DAYS ARE NUMBERED ANYWAY, SO HE REALLY DOESNT HAVE ANYTHING TO LOSE BY TRYING THE LYME TREATMENT. WOULDNT IT BE GRAND TO PROVE EVERYONE WRONG AND SHOW THEM THAT LYME ACTUALLY DOES MIMIC OTHER DISEASES AND HE LIVES TO SEE HIS CHILDREN GROW UP!!! I DO HAVE A QUESTION IF YOU PROMISE NOT TO LAUGH....CAN LYME BE SEXUALLY TRANSMITTED? HE IS 'CUT OFF' UNTIL I FIND OUT.....LOL....POOR GUY!! THANKS FOR ALL THE WONDERFUL INFO SHARED HERE AND ALL THE WONDERFUL FRIENDS I HAVE MADE IN THE PAST FEW DAYS...YOU ARE ALL THE GREATEST!
Posts: 33 | From Ponte Vedra, Fl, USA | Registered: Jul 2003
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posted
I was bitten by a tick in the beginning of June, 2002. By the end of June, 2002 I had the flu and then the bullseye rash.
The doctor saw it and said it was LD. But later he changed his mind because my symptoms kept coming back after my antibiotics were gone.
I am thankful for finding this board and finding an LLMD that would treat me properly!!
Julie
Posts: 494 | From Michigan, USA | Registered: Jul 2002
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
You know you would think with all the money and time these Doctors spent you think they would catch on but noooooooooooooo good people keep getting no treatment at all! You think they would at least read up on the disease of lymes after its been here so long and its prevalence so strong. People going through this over and over it s**ks. People sick dying for a lack of knowledge its bulls**t.
Well both of you that replied get a good Lymes Doctor and get on antibiotics and stay on them until all symptoms are gone and if they come back get back on antibiotics till gone again. Dont give up !!
Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003
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Kara Tyson
Frequent Contributor (5K+ posts)
Member # 939
posted
Yes. I was bitten April 16, 1999 on Monte Sano Mountain in Huntsville, AL. I was on a hike. I went to the Dr but they said I had an allergic reaction to a wolf spider bite.
posted
Hey, Nabby....please don't use all caps....too many of us Lymies are visually challenged! THANKS!!! We want to be able to read what you've posted!
Posts: 96239 | From Texas | Registered: Feb 2001
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Marieelena
Unregistered
posted
I remember being biten several times and I remember the rash too.
it was awful big bull'e-eye it itched and if I scratched it it burned like fire.
The first was on my face, which I don't recall getting bit there, the others were on my back.
posted
I had the bullsye..big one on the back of my shouldr last year at this time.
The baby got it through nursing six weeks later.
My son never had a rash..but he was appahrently reinfected last spring..accordind to him, it was when he had a mosquito bite, and it blew up..size of a softball, raised. His joints hurt after thae..so..could be..if a mosquito goes from an infected animal to you..it could happen
Mo
[This message has been edited by Mo (edited 11 July 2003).]
Posts: 8337 | From the other shore | Registered: Jul 2002
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posted
I was dx'd May 2002, tests showed an old infection doc explained it probually hibernated and was reactivated by the tick I found on the back of my neck 3 years previous to dx.
I grew up in Rhode Island and ticks were as common as the sun coming up.
The symptons: flu/fever/arthritis/bell's Palsy/ I just wrote off as individual problems to deal with never suspected that if put all together that it might be lyme.
In looking back I remember a bull's eye type rash on my stomach, but I was young wild and free.....thought for a bit it was ringworm? but it went away and I went on with my life.
Until...............
oceangarden
Posts: 125 | From Burlington, VT USA | Registered: Apr 2003
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posted
July 2002 is when I found a tick on my knee area - don't know how long he was there. Couldn't get him out until I scraped and scraped the area (I know...wrong thing to do!). He came out in tiny pieces.
Several days later, I had a red/purple ring...about a week or two later had rashes all over my lower legs, severe neck pain, etc. etc.
From the silly docs, I was told to use an ointment on the rashes, and, sure enough, they eventually went away!!! Also told the red/purple ring looked fine...no lyme disease in this area...!
posted
April 1974, Went to Chgo Children's Memorial with spinal meningitis and encephalitis. After being in the hospital for approx. 12 days a fully engorged deer tick was found attached to the top of my head. A rash was never noticed to my knowledge. Of course, it would definitely have been difficult to spot one in my hair.
posted
I don't remember a specific bite. I was always a "tough one" and never really give much thought to any pain or itch that wouldn't go away in a couple of days.
BUT once I started with symptoms I got TONS of rashes (irregular in size and shape) - I use to get them EVERY DAY all over my body. Doctors thought I had allergies at first. And it wasn't until I was on IV Rocephin that I developed two bulls eye rashes. Wierd but true!
I had perfect bulls eye rashes TWICE while on medication for Chronic Lyme!
Posts: 712 | From Ottawa, ON, Canada | Registered: Sep 2002
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Lymetutu was popular down at the stables...
posted
I had a big round hot rash that lasted three weeks and kept getting bigger. Thought it was a spider bite and blew it off. This was after hiking in the woods and sleeping in a cave in my sleeping bag on a bed og leaves in the fall...duhhhh!
Gee ...only took me 7 years to figure it out
Posts: 90 | From nowhere, CA, USA | Registered: Jan 2004
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posted
Rash, no....bite, yes, but do not know which one or if it was even the tick on me that did it. My mom could have given it to me in utero. Who knows? The same way I feel certain that my 2 girls got lyme.
Posts: 688 | From SW Arkansas | Registered: Dec 2003
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lymiecanuck
Unregistered
posted
Had my rash in September 2001 on foot was small and lasted about a month. Was also bit by tics from cat several times about 17 years ago.
Had the rash in sept, but also remember being bitten by something in May that same year.
As a child played in woods alot and was no doubt bitten then too.
posted
A tick found me while on a field trip with my daughter's class to Plymouth, Mass. in May 2003. Tick was tested,("Tick did not feed", I was told) My blood tested a month later, and given the all-clear. A year later I could not move my neck, lost a good deal of use of my right arm, and had joint pain in just about every joint. 3 weeks of Doxy and amoxy have helped.
Posts: 2 | From Albany, New York | Registered: Aug 2004
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posted
I sure noticed the ticks- actually, my brother may have noticed the first one. One of the tick bites developed a ring shaped rash. Went to doc, was given 6 weeks doxy 200mg/day. Thought that was that. 2 months later, got really, really sick- 'Flu' in August. Went back to doc- another round of doxy, no effect for first couple weeks, then get sicker (herx, presumably). Then I gor a little better, but the abx ran out. Got worse and worse, but found lymenet and started learning, and found "LLMD" The rest is a sad, painful history. I eventually recovered, but whatt a struggle! So the "LIQ"'s (lyme-ignorant quacks) that make all that money at yale and certain other ...'higher learning'... institutions and dictate how people with lyme should be treated owe me a couple hundred thou, at least (peanuts, for them, no doubt..). Which I'll never see, of course, here in ...'amerika'...., land of the screwed, home of the corporate criminals..... DaveS Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000
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