Carol,
You said you believed that "MichelleP" who created a storm by insulting several veteran LymeNetters here was a real patient because she had posted a question about Lyme on another list.What you are not aware of is that the Steere camp regularly infiltrate our boards in order to hurt and disrupt the Lyme patients' movement, asking questions and posing as real patients. Asking on another board means nothing - a Steere camp provocateur would know that he/she would very soon be referred to a Lyme board, and that would help to give an air of legitimacy.
You say that "MichelleP" had never heard of Kathleen Dickson, nor even of Steere? Well, shortly after arriving at sci-med she was insulting Kathleen, and arguing against Kathleen's post in which Kathleen had said that the reliability of the C6 Elisa had been disproved.
Is it likely that someone who knows so little about Lyme that they have not even heard of Steere, would be in a position to have a complex debate about the sensitivity of the C6 Elisa?
She arrived at sci-med and immediately made friends with the known Steerites there such as "Charles05/chuck Adams", "Derdrittemann" and the phony "Iladsfan" who hates ILADS and has been trying to find out info to hurt Dr Lionetti.
These characters welcomed her and praised her looks, one of them even said that she was so beautiful that the "hypthyroid hippos" at LymeNet would be jealous. She accepted this praise and wrote this to her "new" friends about LymeNet:
"I just wanted to thank a few of you for being sane and seeing the
strangeness over there.
They are highly paranoid, delusional and only happy when they are
scaring new people into thinking they will be like Tiny Tim in two
weeks if they don't medicate up.
That discussion group should come with a set of rubber walls when you
join. "
You need to understand, Carol, that there are huge interests at stake here. There are insurance companies who are desperate to deny the existence of chronic Lyme as long-term treatment hits their enormous profits. There are big pharma companies like Glaxo SmithKline who lost millions when the vaccine they marketed was exposed (by Kathleen Dickson and others) as dangerous and ineffective. There are real estate and property barons who stand to lose mutli millions of dollars if it is acknowledged that their land is in a Lyme-endemic area/ and/or that Lyme is a serious and often chronicc disease. And there is also a military issue round Lyme and tick-borne disease.
With such huge and powerful interests at stake, it would not be surprising if they financed 100 full-timers to sit on the internet and create mayhem in the Lyme patient advocacy movement.
Here is Jopn, later proved in court to be the Steerite Dr John Nowakowski of NY Medical College, also claiming to be a Lyme patient and concerned parent:
JOPN Jun 30 1999, 3:00 am show options
Newsgroups: sci.med.diseases.lyme
From: [email protected] (JOPN) - Find messages by this author
Date: 1999/06/30
Subject: Hi
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I will not stop posting to this group. You call for for scientific discourse
yet you attack all others with differing views. I am not affiliated with Yale,
NIH, Stony Brook, NewYork Medical College, etc. - you cannot stop me from
posting what I believe is good advice to those who ask questions on this group.
I am a concerned parent who has had Lyme disease - and who's children have been
subjected to unproven medical therapy. I will not allow you to damage the lives
of others.I WILL NOT STOP
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JOPN Jul 2 1999, 3:00 am show options
Newsgroups: sci.med.diseases.lyme
From: [email protected] (JOPN) - Find messages by this author
Date: 1999/07/02
Subject: Re: Hi
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>EXCUSE ME~ (meant to shout), but do either of you to ignoramuses have
>lyme?
Yes you idiot I do
------------------------
I suggest you read several posts by this "MichelleP", and take special note of the attitude of the known Steerites towards her on sci-med, then ask yourself if she really sounds like a person who is desperately concerned about her child.
Lisa