posted
I gave my future husband the out option of marriage because I don't even know what to expect from having lyme's yet. He declined and said we would get through it. What does he really need to know? Posts: 8 | From jefferson county | Registered: Dec 2008
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
hmm, that some days you will NOT feel like doing anything.
lots of medical expenses and most people won't believe you're sick...
does he want kids?
i guess a lot depends on you getting treatment and how sick you are...
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
I guess, starting with "Where are you in the process?" - if you have read some books, share those. It's basically about sharing information - and honest concerns.
If you've seen a LLMD, share the prognosis. Many people who get treatment do well and go on to live good lives.
You can, too. However, it can be a rough road. With education, you both will be able to get through and still have good times and cherish what matters the most - the love you have for each other.
But, oh, being pragmatic here, do be sure he WANTS to learn and that he will understand. You deserve that. You need to see how the two of you do in this dance. That will tell you a great deal about how well you will do with other matters down the road.
posted
I'm 40 yrs. young with what used to be a fast paced go go life. As far as children I already have a 23 yr. old and a 11 month old grandson that I wish I could play with more but just don't feel up to it. I have just about finished my doxy of 28 days. diag in nov. been sick since jan. I'm very glad I found this site it has been very helpful but also a little scary in knowing that it definatly sounds like I have a long road ahead of me.
Posts: 8 | From jefferson county | Registered: Dec 2008
| IP: Logged |
bettyg
Unregistered
posted
dif, welcome!
i suggest buying the dvd UNDER OUR SKIN, you can find other posts to get all info to buy this.
this covers everything and will be an eye opener for both of you.
reading lyme books too, but watch DVD first and better yet in FAMILY setting so you can educate many in one setting.
good luck! fyi, hubby and i have been married 34 yrs! he has NEVER KNOWN ME HEALTHY, and he's in it for the LONG RUN!
IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
My intent is not to frighten or sadden you. So many of us here did not get adequate treatment and we want to prevent this becoming worse for others.
Some people do seem to do okay with a short course. But, it often returns and then it's harder to treat.
By your saying you are just about finished with your doxy of 28 days, I wonder, then what?
Are you seeing an LLMD who is a member of ILADS? Most lyme experts prescribe a combination treatment for longer than 4 weeks.
Have you been assessed for other infections - TBD (tick-borne disease)? That is important.
With apologies if you already know all this:
-
Here's a wonderful introductory article, too. This is also an excellent article to share with friends and family. It explains so much.
CONTROVERSY CONTINUES TO FUEL THE "LYME WAR" - By Virginia Savely, RN, FNP-C
As two medical societies battle over its diagnosis and treatment, Lyme disease remains a frequently missed illness. Here is how to spot and treat it.
Excerpts:
" . . .To treat Lyme disease for a comparable number of life cycles, treatment would need to last 30 weeks. . . ."
`` . . .Patients with Lyme disease almost always have negative results on standard blood screening tests and have no remarkable findings on physical exam, so they are frequently referred to mental-health professionals for evaluation.
"...If all cases were detected and treated in the early stages of Lyme disease, the debate over the diagnosis and treatment of late-stage disease would not be an issue, and devastating rheumatologic, neurologic, and cardiac complications could be avoided..."
. . . * Clinicians do not realize that the CDC has gone on record as saying the commercial Lyme tests are designed for epidemiologic rather than diagnostic purposes, and a diagnosis should be based on clinical presentation rather than serologic results.
- Full article at link above, containing MUCH more detailed information.
----
Co-infections (other tick-borne infections or TBD - tick-borne disease) are not discussed in the Savely article due to space limits. Still, any LLMD you would see would know how to assess/treat if others are present.
==========================
AFTER reading the Savely article above this will make more sense and, sadly, shows the state of treatment:
Attorney General Richard Blumenthal today announced that his antitrust investigation has uncovered serious flaws in the Infectious Diseases Society of America's (IDSA) process for writing its 2006 Lyme disease guidelines and the IDSA has agreed to reassess them with the assistance of an outside arbiter.
You should also be evaluated for coinfections. Not all tests are great in that regard, either, but a good LLMD can evaluate you and then guide you in testing. One of the top labs is:
The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases.
- 2/3 down the page, you can download Guidelines for the management of Lyme disease
posted
You will get through it! I hope you can manage to not let Lyme get in the way-- just be sure you get the proper treatment and stay connected with orhers who have it. Make it just a bump in the road- it's a big bump, but don't let it "do you in"- fight on every level for your health.
"I really think I'm on my way to being healthier than I was before lyme! At least, thats what I'm aiming for, and given what I learned going through Lyme it just might be possible!-- I appreciate what I have; how far I've come, at every moment"-- that's the kind of thought that I've managed to use, to make lyme chetes shrivel and slink into the corner! I know its hard to get that going, but grab onto every little victory! Yes, it's a long road, Best wishes.
Do make sure you're really getting the best medical treatment you can- you must be sure to have a doc who really knows Lyme. ("LLMD") DaveSPosts: 4567 | From ithaca, NY, usa | Registered: Nov 2000
| IP: Logged |
Yes, just make sure he sees Under Our Skin. That should tell him a lot. And it will also open communication lines about Lyme.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
As HaplyCarlessdave says, don't let this steal your life but, rather, see it a bump in the road.
With good treatment, you will get past this.
And, this will help you and your fiance decide how you want to live.
What commitments will you make towards establishing a healthy home - and a healthy kitchen. This is a good time to grab ahold of what it is that matters in that regard.
And, that will lead to establishing a healthy relationship where you work out the bumps in the road with courage, communication and thoughtfulness.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[confused]](graemlins/confused.gif)
![[group hug]](graemlins/grouphug.gif)
![[kiss]](graemlins/kissing.gif)
Printer-friendly view of this topic