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» LymeNet Flash » Questions and Discussion » Off Topic » Call for participants: study of individuals managing chronic Lyme disease

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Author Topic: Call for participants: study of individuals managing chronic Lyme disease
Katie Kuksenok
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Member # 19632

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The Human-Computer Interaction Institute at Carnegie Mellon University is conducting a study of how individuals with chronic Lyme disease, and their caregivers, use online resources to support themselves. Such resources include sites offering medical information as well as research and experience blogs, forums, and so on.

We seek participants for interviews about their experiences as patients or caregivers. All information from the interviews is confidential.
Interviews can be done by phone, IM, or in person, and participants are compensated $10 for each hour they are interviewed.

In order to participate, you must be
(1) Between 18 and 90 years of age, and
(2) Either have chronic Lyme disease or provide close support to someone with chronic Lyme disease.

The results of our study will be used to drive the design and development of tools to help individuals with chronic illness and their caregivers find, use, and share online information.

For more information, please contact us about this project as [email protected], or view the project site at chronicweb.wordpress.com.

--------------------
Katie Kuksenok

http://chronicweb.wordpress.com/

Posts: 14 | From Pittsburgh, PA | Registered: Mar 2009  |  IP: Logged | Report this post to a Moderator
bettyg
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katie,

have you gotten many lyement members yet?

i know keebler took it; i promoted it since i was so busy at the time and computer problems galore and losing phone service.

hopefully things may slow down this week and i'll look into this more ok! [Smile]

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Katie Kuksenok
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Member # 19632

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Hi bettyg,

Thanks for spending time on this!

By the way, I made another post, with a set of links for the survey: http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/3/22560

--------------------
Katie Kuksenok

http://chronicweb.wordpress.com/

Posts: 14 | From Pittsburgh, PA | Registered: Mar 2009  |  IP: Logged | Report this post to a Moderator
   

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