Topic: wow! newtown friends school deleted my review
Caryn
Frequent Contributor (1K+ posts)
Member # 366
posted
and now my computer is doing very weird things, but may be coincidental. i did post on general about this , but computer locked up. is it possible for an outside source to mess up your computer in a matter of hours?
the review was actually mild. tho i gave them one star. i gave the teachers 4 stars. we were treated badly. bullying is a problem at the school. anat rachel feingold, "best of philly" infectious disease specialist's daughter was not so nice to my daughter.
sad, but that may 2000 article was supposed to be an expose about lyme disease. i was confiding in anat and her girlfriend psychologist tori and the other "fellow moms" in the after school program i had my daughter in.
two of my infections are local and two from nantucket island where we vacationed. and during the 4 yrs we were at the school, i got very noticebly sicker and was seeing UPENN drs who were horrible to me, and the "fellow moms" were less than nice. and my children were obviously sick and not getting any care despite going to local drs and having blue cross/blue shield personal choice.
tori's husband dario larocca is in some sort of notable position at independence blue cross i just found out on a random search. did not know it then and did not put anything this strong in the post i made about newtown friends maybe not the best experience.
oh, ex husband. they divorced, but all knew each other. now that i have had some treatment, looking back, the bizarre behaviour....well, anat had on her website that lyme is easily treated. two weeks treatment at most. and " the outcome for lyme disease and post-lyme disease is excellent!"
our friend scott we now realize had lyme. carole saline was the reporter at philadelphia mag who was going to do the article. i did not know yet that i had gotten the disease so many times we unwittingly took photos of me with the text book rash. scott's mom is close friends of carole saline.
i had a PCR of my spinal fluid and independence blue cross would not ok treatment. they would not deny it in writing, but would not ok it. and i told fellow mom's tori and anat. it was so wierd to be deathly ill and they were laughing! it was serious!
ok, i know i am rambling and my post is not clear, and i am telling serious stuff, but the post i put on newtown friends was just that our experience there was not good. my child was bullied. and four yrs later, i chanced upon photos of me with the rash and new what we all had.
i did not know anat and tori and others were "the other side". i just did not understand the cruelty and indifference. the philadelphia magzine article that was supposed to be the lyme expose was instead and article about "best pediatric specialists". anat fiengold was best pediatric infectious disease specialist. grant t lui, a weird idiot who did this bizarre theatrics when i was sent to him for double vision ( dr sergott at wills eye hospital later did the test seriously and found i had double vision and recommended further treatment for lyme - that bc/bs denied. ). grant t liu said i had nothing wrong with me and put this in my records.
our friend scott, carole saline's best friend's son, tied weights on himself and jumped into the delaware river.
i don't think he would have if carole's original intention of doing an expose article about lyme had been published and scott and other friends, such as parents of a child dx autistic and another PANDAS and......
Posts: 1093 | Registered: Nov 2000
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/